sulthana wrote: with no significant CT abnormality,SUV max of 5.5".
Ehut wrote:I had the reverse case a few months ago, where the CT showed some ill defined tissue behind the anastomosis, so my surgeon recommended a PET/CT which showed almost no uptake so he wasn't concerned anymore. I suspect a biopsy will be the next step for you.
Ehut wrote:Hello SoConfused,
So sorry to hear that you are dealing with a possible recurrence, especially so far out from the original diagnosis. I was diagnosed in 2011, so it is a bit jolting to see that recurrence is still possible when things are going well for so long. Hopefully your situation turns out to be benign so you don't have to go through the rodeo again.
In my case, the CT scan was performed at a local hospital, and the area of concern wasn't really flagged as concerning by the radiologist. I had the CT sent to my surgeon at Mayo Clinic, and he was a bit more concerned about the "ill defined" area behind the anastamosis, so he suggested I get a PET/CT scan. The area in question did not light up on the scan, so it was deemed to be "post operative changes", which I think is just code speak for scar tissue and connective tissue that forms in a void after surgery. This area was spotted about a year after my surgery, so that would be around March of 2013. At the time, the surgeon had said that if it turned out to be malignant, that he would perform an abdominoperineal resection (APR), which would have left me with no rectum and a permanent colostomy.
Have you had radiation to the affected area? I had a "short course" of radiation to the rectum the week before surgery. They said that would roughly halve the probability of recurrence in that area (from 20% to 10%).
I hope you have a good outcome, preferably without any treatment needed. Feel free to ask me if you have any more questions.
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