Bad news today it is time for hospice.

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here4mymom
Posts: 29
Joined: Sat Apr 02, 2011 5:54 pm

Bad news today it is time for hospice.

Postby here4mymom » Wed Jul 03, 2013 11:44 pm

My mother has been fighting for three years and today we were told there is no more options and she will go on hospice. Onc told us maybe six months left. i am scared to death. My mother is my dearest friend and I just don't know how I will manage without her. I hate this f###ing cancer. In a way I am just really pissed off that this disease has to take her from me. She is only 66 years old and it just not fair. Sorry about my rant but I just needed to vent. I have been reading this forum since my mothers diagnosis and have got lots of useful information from all of you. Thanks for listening.

violeta_k
Posts: 40
Joined: Thu May 02, 2013 8:27 pm
Location: Montreal, Qc, Canada

Re: Bad news today it is time for hospice.

Postby violeta_k » Wed Jul 03, 2013 11:51 pm

I'm sorry to hear this, it must hurt so bad... My mom just turned 66 two days ago, and I'm very close to her as well...We are just at the beginning of this journey. I don't know what to say... Just wanted to send a good thought your way... I'll pray for you and your mom tonight.

Violeta
Caregiver to mom, 67, CC Stage IIIC
Diagnosed CC May '13
Hemi-colectomy June '13
FOLFOX finished Feb '14
recurrence in lungs, small met treated with SBRT Nov '14
local recurrence in abdominal wall, removed with surgery, March '15
clean CT scan May '15

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Rockovage
Posts: 128
Joined: Wed Apr 24, 2013 10:38 pm
Location: Cali

Re: Bad news today it is time for hospice.

Postby Rockovage » Thu Jul 04, 2013 12:09 am

66 is way to young , so sorry you`re going thru this .

You and your mom are in my thoughts and prayers .
52 M
Colonscopy 2/13, DX stage 1 rectal cancer
open LAR 3/13 12in. colon / rectum removed
temp ileo
reversal 7 /13

Great day to be alive

scattered edge
Posts: 405
Joined: Sun Jul 31, 2011 6:45 pm
Facebook Username: Rosie Englebert-Elmore

Re: Bad news today it is time for hospice.

Postby scattered edge » Thu Jul 04, 2013 12:20 am

Your mom and you are in my thoughts and prayers. At one point I was really struggling and very mad. Debbie Jett - BLESS HER HEART <3- stepped in a helped me to redirect my anger. There are many angels on this board.. maybe someone will strike a cord with you and help you along this sometimes agonizing journey.

Rosie
resection 2/11/11
T3N2M0 (17/24LN)
joined the IV olympians ..... 7/12 mets to distant nodes
mets to pancreas, liver, spine
chemo for life, panitumumab for now

alli227
Posts: 17
Joined: Wed Sep 26, 2012 1:54 am

Re: Bad news today it is time for hospice.

Postby alli227 » Thu Jul 04, 2013 12:47 am

I'm so sorry for what you are going through. I am in the same position my mom has been on hospice for about 4 months and we are slowly starting a progressive health decline. What I can tell you about hospice is that they are the most AMAZING people you will ever meet at least in my case they have been. They will make things so much easier and they will help you to have time to be your moms daughter. I know how hard this is my mom is 64 and she is my best friend and some days I just want to scream and cry and punch something but then I look at her and all I want to do is smile and let her know how much I love her...

If you would like to talk feel free to PM me...

Best wishes and prayers to you.

PainInTheAss
Posts: 678
Joined: Tue Jul 02, 2013 3:08 am

Re: Bad news today it is time for hospice.

Postby PainInTheAss » Thu Jul 04, 2013 1:23 am

I am so sorry, too!

My mom died when I was 13 (not from cancer) and it has always felt like a big empty hole in my soul even to this day. In your case, it may hurt even worse than it did for me because you have had so many years to bond and grow close.

I found great comfort in the book "Motherless Daughters" - mother-loss at any age is very hard to deal with for a daughter.

So I feel like I've been sucker-punched now since I would never want to wish losing a mother on anyone, especially my own children! I just hope I am one of the lucky ones who beats this disease and is around a long time to come.
47yo single mom of 4 (24, 21, 18, 16) at Dx
6/13 - RC T4b IIIc 5LNs on PET CEA 5.4
8/13 - Finish chemorad
10/13 - APR/hyst+ovaries/perm colostomy 2/12 nodes+
6/14 - Finish Xelox 6 rds
1/15 - CT clear CEA 0.2
10/15 - CT/MRI clear CEA 0.7
4/16 - CT clear
10/16 - CT/MRI clear CEA 0.6
5/17 - PET clear? Follow up MRI to verify inflammation

Lisahopes
Posts: 328
Joined: Wed Oct 17, 2012 2:09 pm

Re: Bad news today it is time for hospice.

Postby Lisahopes » Thu Jul 04, 2013 3:00 am

I, too, can understand how you feel.

I also lost my mom just a few months ago.

Her health declined suddenly when her liver started failing.

All I can say is, try to spend quality time together.

My mom made some recordings for me and my kids, we looked at old photos and talked about fun times.

It is very hard but very valuable.

Blessings
Daughter to Mom, 65, Stage IV with mets to liver, lungs and peri.
Dx 2006, Stage II.
Regular check October 2011, Stage IV established.
She has had Oxi, Folfox and Xeloda, now Avastin.
Progression.
Mom died on April 5th 2013.

here4mymom
Posts: 29
Joined: Sat Apr 02, 2011 5:54 pm

Re: Bad news today it is time for hospice.

Postby here4mymom » Thu Jul 04, 2013 9:31 am

Thank you all for your words of encouragement and prayers. It is comforting to read all that you wrote :D

livingbyfaith
Posts: 430
Joined: Wed Dec 31, 2008 5:06 pm

Re: Bad news today it is time for hospice.

Postby livingbyfaith » Thu Jul 04, 2013 11:29 am

You know, having lost my mom at 65 to a lengthy illness, the one thing I can say is I never took a minute of my time with her for granted. I told her how much I loved her, saw and called her often. Without an illness, had she died in an accident, I would never have had that chance. And guess what, doctors are not Gods, they really only can give you an estimate which I hate. Might be a cure before then. Praying for you.
Hubby 72 cc
Resctn colon 07 stage 3/11 15 cm liver met CEA 3000+
CPT 11, 12 xelox kras wild gall blddr rem 7-12 & abltn
liver stents bi-mo gilbert lng mets , cpt-11 3-13, 2 hernia surgeries2013 & liver abltn went to heaven 10-24-13

curious56
Posts: 166
Joined: Fri Feb 01, 2013 6:01 pm

Re: Bad news today it is time for hospice.

Postby curious56 » Thu Jul 04, 2013 12:06 pm

Cannot imagine your pain. Dad died at 63 (pancreatic cancer) and I thought I'd NEVER get over it. Took years, but I'm ok now -- with wonderful memories and stories that my siblings and I share with laughter on the holidays. It DOES get better.....eventually. :(

My mom is 80 and I cannot imagine what I will do when she is gone. Something about the relationship between mothers and children.

I would agree that at least you have time to say goodbye -- small comfort, I'm sure. I've often thought about the way we die -- if it is sudden, it is often easier for the person who dies, HARD on the family. Of course, death is ALWAYS hard on the family..............perhaps it is a matter of degree???? Shock versus grim resignation.

So very, very sorry. You both will be in my prayers......especially praying for GOOD drugs to keep your mom out of pain.

(((HUGS)))
dx 12/12 with CC Stage IIIB - T3N2aMO
6/18 nodes +
Resection sigmoid 12/12
Xelox 2/13 -- stopped, BAD side effects
Vegan and supplements
Clear scan 11/13
Met to abdomen - surgery 7/14
Philippians 4:6-7

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Bad news today it is time for hospice.

Postby Guinevere » Thu Jul 04, 2013 1:48 pm

I'm so sorry and hope, with hospice care, she'll have more than 6 months. Spend this time making good memories when you can. You get a heads-up and that's such a blessing and so important. Share some laughter, some tears, some memories and lots of affection.
You'll be in my thoughts and prayers ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

rosa01
Posts: 564
Joined: Sat May 19, 2012 1:24 pm
Location: California

Re: Bad news today it is time for hospice.

Postby rosa01 » Thu Jul 04, 2013 2:58 pm

I loved some of the messages that was posted for you. I lost my Mom to cc five years ago and we learned before Thanksgiving and she was gone three weeks later. I wish I had more time to make those special memories but I do have so many already collected to last my life time. My prayers will be with you and your Mom. May your days together be ones of great memory's and happiness.

Sheila
DX 12/11 DH Stg 4 cc age 60
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?

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elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Bad news today it is time for hospice.

Postby elise » Thu Jul 04, 2013 8:33 pm

(((((hugs)))))
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED


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