GOOD NEWS....MAYBE NOT!!!

Please feel free to read, share your thoughts, your stories and connect with others!
Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

GOOD NEWS....MAYBE NOT!!!

Postby Joy » Fri May 17, 2013 10:18 pm

I posted my good news report on 29th April

This is the latest update.....


I could cry....I received a phone call to-day from my oncologist. My last blood work showed that my CEA is "slightly" elevated. I guess she looked
at my CT scan and it looked good so she didn't look at my blood work too closely. I have to go and get blood work done again at the end of July.
She was most encouraging on the phone and said that there are lots of things that will elevate CEA and the fact that I was recovering from a
winter filled with pneumonia, and bronchitis could be the cause.

So here I sit, I was so happy and excited looking forward to the long week-end holiday, and now I am so scared crying :cry:

I am so depressed... I am almost at the point of saying "screw it" I'm not going for anymore tests....I'll just take my chances.
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED

some
Posts: 578
Joined: Thu Jul 05, 2012 1:39 pm

Re: GOOD NEWS....MAYBE NOT!!!

Postby some » Fri May 17, 2013 11:23 pm

Joy,

I'm so sorry for the upheaval that I can imagine this is causing you. I'm praying that it's nothing. Was CEA an indicator for you before? What exactly is elevated? Good thoughts to you and I hope you can get in there for your tests soon and that they bring you relief. Try to enjoy your weekend as planned.


Serena
DH (age 41) diag Stage IV mets to peritoneum - July 2012 (undetectable on CT PET or MRI)
Folfox 7 & Avastin started July 2012 CEA, CA 19-9 not indicators
HIPEC surgery 1/18/13
Folfiri/Erbitux - March 2013
Lots of prayers.

User avatar
Phuong
Posts: 1494
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: GOOD NEWS....MAYBE NOT!!!

Postby Phuong » Fri May 17, 2013 11:38 pm

Lots of things can definitely have an impact on your CEA - heck, smoking can do it! Colds, pneumonia, all that can contribute to elevated levels. Try not to focus on the CEAs. A good CT scan is a big deal, so kick cancer to the curb for and go enjoy the weekend. I promise that you can go back to worrying about it later if you want to. :wink: Or you can join me with a glass of wine. :mrgreen:
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

Re: GOOD NEWS....MAYBE NOT!!!

Postby Joy » Sat May 18, 2013 8:49 am

Thanks folks....I was so shocked when she called me at 6pm. I have no idea what my CEA number is. I was so
taken aback that I didn't even ask her. I did not have a CEA done prior to treatment (long story) so there
was never a "normal" base number for me. I have been having blood work done for 7 years and this is the
first time that "elevated" CEA has come into play.

I did have a strange blood reading the following week (Chronic Leukemia) related and my blood work
came back as normal. The hematologist is not convinced that it was a spontaneous remission but rather
a "Lab error"......the chances of it being spontaneous remission is 1 in 100 million :roll:

so this past few weeks have been "freaky" as far as blood work is concerned.

All the blood work is done in the Cancer Centre of a large teaching hospital....I wouldn't have
thought that there was any chance of "mistakes" :shock:
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED

User avatar
Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: GOOD NEWS....MAYBE NOT!!!

Postby Jimswife » Sat May 18, 2013 9:34 am

But if your scan was clean mustn't there be another explanation ? Xx
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

User avatar
dianetavegia
Posts: 2724
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: GOOD NEWS....MAYBE NOT!!!

Postby dianetavegia » Sat May 18, 2013 9:43 am

Diverticulitis, polyps, obstruction (serious constipation), taking Biotin, any infection, any inflammation, Labcorp admits errors up to 10%, IBS, .... did she verify that the lab has not changed testing methods or that the same lab was used? Increased CEA levels can indicate some non-cancer-related conditions, such as inflammation, cirrhosis, peptic ulcer, ulcerative colitis, rectal polyps, emphysema, and benign breast disease.

I know CEA can begin to rise 6 months before anything can be seen on a CT scan, but you are 7 years NED. I'd call back and ask for my readings for the last 4 or 5 tests to see if there's been a steady rise or if this was a one time thing. I'm going to bet it's a fluke and you're still cancer free!
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

li001sp
Posts: 54
Joined: Sat Jan 19, 2013 5:02 pm

Re: GOOD NEWS....MAYBE NOT!!!

Postby li001sp » Sat May 18, 2013 9:58 am

My CEA jumped from 22 to 56 to 199. My PT, CT scans came back normal. I had an MRI in March and it showed a 4MM node on my liver. I have to have another MRI in a few weeks. I know the feeling of how scared you are. Continue to focus and live your life. I hope everything turns out for the best.
Female 46, Rectal cancer Stage IIB 8/11
Temp illio 9/11
Rad/Xeloda finished 10/11
Rectal resection, hyst 12/11, 1 of 23 nodes, Stage IIIB
Port in 1/12
Chemo 1/12 to 6/12
Port out & Illio Reversal 10/12
11/13 Illestomy again
12/13 - 5/14 Chemo again

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: GOOD NEWS....MAYBE NOT!!!

Postby Guinevere » Sat May 18, 2013 10:00 am

Joy wrote:...
All the blood work is done in the Cancer Centre of a large teaching hospital....I wouldn't have
thought that there was any chance of "mistakes" :shock:


Honey,
Anytime humans are involved, there's always a chance for mistakes. It sounds like the blood work needs to be done again and go from there. There's a lot of things that can elevate your CEA and, since it hasn't been a "thing", we'll hope it's one of those things and not an indicator of cancer!
It sounds trite but try to find something that will keep your mind busy this weekend - puzzles, a new way of doing something, anything to keep your mind from going where it has no control anyway. Easy to say, hard to do but we're built for hard, aren't we??
God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

Re: GOOD NEWS....MAYBE NOT!!!

Postby Joy » Sat May 18, 2013 11:45 am

Hi Guinevere..Thank you for the encouragement. I am usually able to "pull-up-my socks"
and get on with it. This time I just "lost it" and went into a full blown "pity-party".

To-day I phoned and made an appointment for a pedicure with my daughter and
grand-daughter, lunch to follow :D

I gave myself a good "talking to". I will try and put on the "happy face" for the
holiday week-end.
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: AmyG, Detox, Melanie67 and 2 guests