New cancer blog

[Oneeyeddog]

I have started a blog about my treatment and feelings blah blah blah.

http://theoneeyeddog.tumblr.com

Perhaps of interest for other newbies going through something similar. For the veterans, perhaps not much to see here. Hope some will find it interesting.

Cheers,

OED

[raym]

I didn't see any place to comment on your blog but I wanted to note something. You had mentioned that they can use the port or CT contrast. My experience is that does not happen as the tech doing the injection is not trained on the use of a port (and there are several different kinds). Thanks for sharing the blog!

[Oneeyeddog]

Hi Raym, thanks for your note. That's what they told me -- that they could use it for CTs, but perhaps you're right that in the end they'll just do it the normal way. No biggie.

[Guinevere]

Good job on the blog! I'm looking forward to reading the your next entries.

My understanding is a trained nurse can access the port for contrast CT if what you have implanted is a power port. Alas, we found out mine isn't. But blood draws as well as chemo through the port is a heaven sent thing to me. I can't imagine doing it any other way!

God bless ~
Guinevere

[lohidoc]

Good thoughtful writing. Don't shy away from exploring the darker sides of this disease. I know we are all meant to be brave, battling, positive and so on, but it is not like that - how could it. Face this disease in all its aspects - sunlight and shadow.

I tried to follow you on Tumblr - had to sign up, computer now deluged with celebrity pictures, fashion whatever and ground to a halt.

Good luck.

[ams5796]

I really like your blog. Great writing and you hit on some really interesting points.

I really could relate to the feeling of being so out of the loop of life when I first got diagnosed. I can remember walking around the mall and being so sad? envious? something? when I saw all the folks just living their lives. The moms pushing the baby strollers, people laughing, shopping , eating...it all got to me. I felt like I lost the innocence of my life. I knew things would never be the same. I guess that's why we cancer folks are always talking about "the new normal."

I look forward to reading more.


Ann

[Busymamaof3]

Yes, I too find myself looking at the world around me sometimes and feeling like I am a distant observer. Other times I will be out and think to myself that no one would pick me as a cancer patient. Just a woman in her 40s going about her business.

[Grace14]

I can so relate! I would look around and see people enjoying their lives and would be so envious! I was so jealous of old people I wanted to get old like them! It's so funny how we all feel the same way!

I remember for my SIL's Bday a bunch of us went out to eat, and I felt like I didn't belong there! I had to leave I was so sad! Nobody will ever know unless in our shoes how it feels to be diagnosed!

Great blog!

[manders]

Thank you for sharing your thoughts and experiences in your blog. I am just at the beginning of this journey and did find it interesting. Your post about diet cracked me and my husband up since we have been in the process of improving our own diets.

[NWgirl]

I couldn't access the site - not sure why I was blocked (?). Blogging, what little I do, is very therapeutic for me - I hope it helps you in your journey as well. And as for the port, they use mine for contrast all the time. I have a power port. I do have to make arrangements in advance so that there is someone there to access it properly - sometimes the nurse in the imaging dept. isn't trained on how to access the port. I'm so tired of getting poked multiple times by nurses trying to find a vein I now INSIST that they use my port. I have to raise a fuss sometimes, but it's worth it to use the port vs. my arm - or worse yet, my hands. Ouchy.

[Val*pal]

I just read some of your blogs today, and I am hooked! You're a fantastic writer who is willing to share some of the darker sides to struggling with cancer. Thank you so much. Though I kind of get what my husband is going through, I know I don't truly know, so your blog gives me more insight. My husband is a bit of the strong, silent type who doesn't always share his fears and worries. This helps. I'm looking forward to more of your blogs. I also bought your Kindle single.