Rolling the Dice
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adina91
- Posts: 490
- Joined: Wed Aug 25, 2010 6:36 pm
- Facebook Username: Adina Jewett
- Location: Los Angeles, CA
- Contact:
Re: Rolling the Dice
So happy to hear this! Congratulations!
Adina 42 yo, mom of 2 sons (5,9)
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!
11/2009 - DX-2B CC-Sigmoid resect/colostomy
Lynch Synd MSH2
1/2010 - FLOX chemo
5/2010 - Subtotal colectomy/hyster/ileostomy
Stage 3A - 1/42 LN +
8/2010 - Chemo done
10/18/2010 - ileostomy takedown
2010 - 2015 - NED
5/1/15 - "suspicious" area in liver on CT
5/14/15 - follow up PET says no metastatic disease
6/19/15 - MRI - NED!
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lorrainem
- Posts: 819
- Joined: Tue Dec 18, 2007 2:34 pm
- Facebook Username: https://www.facebook.com/lorraineaminogue
- Location: NY
Re: Rolling the Dice
The tears of joy are in my eyes. This is a beautiful sign of renewal and children are a gift. You have always been forward thinking and moving...the house, the marriage and now a child; nothing new to see here folks, keep moving. My way of saying congratulations on living your life. You and Kelly will enter this new world with new eyes and a larger heart. Enjoy!
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08
Re: Rolling the Dice
Awesome news. Children are a blessing. You and Kelly are blessed in so many ways.
RC 10/09
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!
Stage IIA
Chemorad 6 weeks, 5fu 24/7
LAR 2/10
Reversal 4/10
Chemo 5fu 2 rounds -1 week on 3 weeks off
ct scans 9/10 , 3/11,9/11, 9/12 NED!!!
Re: Rolling the Dice
CONGRATS!!!! That is wonderful!!!!!! 
wife of DH (age 41) DX 8/3/2012 with 10 cm tumor in decending colon
pre-surgery CEA 4.4, no spread to other organs
8/22 - resection DX stage 3c 9/44 positive nodes
10/3/2012 CEA 1.3
Lynch test negative, tumor IS MSI-H
Folfox 10/3/2012 w/Yance protocol
pre-surgery CEA 4.4, no spread to other organs
8/22 - resection DX stage 3c 9/44 positive nodes
10/3/2012 CEA 1.3
Lynch test negative, tumor IS MSI-H
Folfox 10/3/2012 w/Yance protocol
Re: Rolling the Dice
Great, great news ! Babies bring such healing and hope.You and Kelly will be tremendous parents. xxx
Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
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mysweetgrace
- Posts: 318
- Joined: Wed Apr 25, 2012 8:15 am
Re: Rolling the Dice
Congratulations!!!
Dad diagnosed 10/11 (56 y/o)
Colon Resection w/ Temp Colostomy 10/11
Stage 2C t4b N0 M0
Xeloda Feb '12 - April '12
New mass 4/12
Folfox 8/12 - 2/13
Resection & Reversal 3/19/13
Clean Scan 7/13 & 10/13
http://reachingoutwheninneed.blogspot.com/
Colon Resection w/ Temp Colostomy 10/11
Stage 2C t4b N0 M0
Xeloda Feb '12 - April '12
New mass 4/12
Folfox 8/12 - 2/13
Resection & Reversal 3/19/13
Clean Scan 7/13 & 10/13
http://reachingoutwheninneed.blogspot.com/
Re: Rolling the Dice
"SUPERCALAFRAGALISTICXPALIDOSIS!!!"
Sorry Fletch - Definately spelled wrong ---however, you get the point!!!!!!
You'll have to have a huge party and invite us all!!! HaHa
Love, Hugs and Rainbows,
Julie and Pete
Stamford, CT
Hubby (60) Very Very Low Rectal - 11/11
chemo/rad/Ace Surgeon/More Chemo
Addl 12 rds of 5FU/Lec
Reversal - 5/13
Scans, Cea - Normal 5/13
So Far so Good - 5/13
We are So Thankful/Grateful for Everything ---
Sorry Fletch - Definately spelled wrong ---however, you get the point!!!!!!
You'll have to have a huge party and invite us all!!! HaHa
Love, Hugs and Rainbows,
Julie and Pete
Stamford, CT
Hubby (60) Very Very Low Rectal - 11/11
chemo/rad/Ace Surgeon/More Chemo
Addl 12 rds of 5FU/Lec
Reversal - 5/13
Scans, Cea - Normal 5/13
So Far so Good - 5/13
We are So Thankful/Grateful for Everything ---
Pete (hubby) Stage 3 VLRC - 11/11
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020
Chemo/Rad/Ace Surgeon - 11/11 - 4/12
Oxi/Xeloda (Severe Toxicity to OXI) - 5/12 - 6/12
5Fu Only - 8/12 - 2/13
Liver Resection/Hai Pump/Folfiri/FUDR - 10/13 - 5/14
Lung Ablation (MSKCC) - 12/31/2014
Xeloda through 4/2015
NED - 1/2015 - 1/2024
Hai Pump/Port Removed - 1/2020
Re: Rolling the Dice
That is fantastic news Fletch. I'm very happy for you. Playing with my little nephew brings me such joy. Obviously understand why in some ways it was a hard decision for you. When I was freaked about my scans this year it really upset me thinking about how I might not be a part of his life because of this damn disease.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
Re: Rolling the Dice
Wonderful news! I am soooo happy for you both.
Jean
Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13
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nicola smith
- Posts: 1040
- Joined: Thu Oct 07, 2010 9:06 am
Re: Rolling the Dice
wonderful news. may your blessings continue.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP
Re: Rolling the Dice
Way to "tickle the twine" and score one for Fletch!
Best decision ever made. I choose love everytime when I make a decision.
Rob
Best decision ever made. I choose love everytime when I make a decision.
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED
Re: Rolling the Dice
Fletch and Kelly,
Much love and congratulations coming from our entire family! Funny, just this afternoon my son asked how you were doing and he smiled big when I told him of some of your adventures. Every now and again they both mention meeting you at Elmo's and joke about making a 'road trip' up there sometime for wings! You both really made an impression. You're going to be terrific parents. It is the adventure of a lifetime!
Thanks for sharing it with us,
Cj
Much love and congratulations coming from our entire family! Funny, just this afternoon my son asked how you were doing and he smiled big when I told him of some of your adventures. Every now and again they both mention meeting you at Elmo's and joke about making a 'road trip' up there sometime for wings! You both really made an impression. You're going to be terrific parents. It is the adventure of a lifetime!
Thanks for sharing it with us,
Cj
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED
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SkiFletch
- Posts: 6361
- Joined: Mon Dec 07, 2009 3:39 pm
- Facebook Username: Michael Fletcher
- Location: Buffalo, NY
Re: Rolling the Dice
Mmmmm, Elmos. Haven't been there in a while... I might have to rectify that 
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
Re: Rolling the Dice
Wishing you and your wife as much joy and happiness that my son has given me...
I am so happy for you!
All the best,
Jeri
I am so happy for you!
All the best,
Jeri
2/09 dx CRC
3/09 SIGMOID Resect (Stage 1)
2/12 Mets Sacrum/lung .. Rad to sacrum/FOLFOX/Avastin
Xeloda
2/13 PET: new 4.5 x 6 cm tumor in sacral vertebrae
3/13 3 Wks RAD/Sacrum
3/09 SIGMOID Resect (Stage 1)
2/12 Mets Sacrum/lung .. Rad to sacrum/FOLFOX/Avastin
Xeloda
2/13 PET: new 4.5 x 6 cm tumor in sacral vertebrae
3/13 3 Wks RAD/Sacrum
Re: Rolling the Dice
Skifletch,
Being a dad is awesome. I did it relatively late in life (Im 47 and my kids are 1 and 4) and the one most surprising thing to me is how much fun it is.
My one-year-old is irreparably entwined in my diagnosis because within a few weeks we moved house (for a new job the other end of the country), found out we were pregnant, then found out I had cancer. I fully understand your fears because in my darkest moments my thoughts center around the fact that if I DONT beat the odds and get past 5 years survival (in whatever condition) my son will be left with no meaningful recollection of me
. On the other hand, my two kids give me a cast-iron reason for putting myself through the heaviest treatment I can handle - It has to be worth it.
Good luck with the pregnancy and congratulations.
Being a dad is awesome. I did it relatively late in life (Im 47 and my kids are 1 and 4) and the one most surprising thing to me is how much fun it is.
My one-year-old is irreparably entwined in my diagnosis because within a few weeks we moved house (for a new job the other end of the country), found out we were pregnant, then found out I had cancer. I fully understand your fears because in my darkest moments my thoughts center around the fact that if I DONT beat the odds and get past 5 years survival (in whatever condition) my son will be left with no meaningful recollection of me
. On the other hand, my two kids give me a cast-iron reason for putting myself through the heaviest treatment I can handle - It has to be worth it.Good luck with the pregnancy and congratulations.
09.11 Dx @ 46, uT3uN1M0 G2
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015
11.11 radio+Xeloda
01.12 LAR
03.12 Xeloda
09.12 Liver mets, 2 LN
09.12 Folfox+Avastin
02.13 Resection
04.13 Folfox & Avastin
11.13 Local recurrence
02-07.14 FOLFIRINOX
08.14 Re-rediation
Left us 28.05.2015
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