I posted this news on the reversal log thread but I thought I would also make a thread here because I find this so amazing and thought it could help others. Also wondered if anyone has an explanation. Since stopping my single morning cup of coffee, all of my frequency, clustering and just plain uncomfortable feeling problems have come to a grinding halt. Even clusters in the evening have stopped (over 12 hours after the morning cup). I have gone from 12-20 or more BMs a day with 0- 2 clustering sessions a day (some brief, some for hours) to just plain 0-2 bowel movements a day just like normal with no discomfort in between. Actually, I am a little constipated without my coffee boost but added some prunes with no problems. Up until I stopped coffee, I couldn't look at a prune without loose clusters kicking in.
I am drinking tea (0-3 cups a day) and have no prob so it is not the caffeine.
I am pinching myself this is so amazing. I have been eating EVERYTHING, hiking and biking without a care. This is incredible. Seems impossible-- change occurred the day I stopped coffee.
I have been drinking a lot of kefir--not sure if that is helping too.
Anyway, if you are having irritable intestines, clustering, gas, frequency, try stopping the coffee- even if your bm problems are many, many hours after your morning joe.
I have read that there are elements in coffee beyond the caffeine that may be culprits but seems not to be well understood. Interested in other people's thoughts on this. May stop the kefir for a few days too and see if that is part of my transformation.
Anyway, giddy about this all!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)