Latest CT Scan

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lohidoc
Posts: 454
Joined: Tue Aug 09, 2011 6:37 pm

Latest CT Scan

Postby lohidoc » Sat May 04, 2013 6:04 pm

I just got my results today. A bit of a mixed bag. The lesions in my right lung have increased in size, the largest one now measuring 3.5 cm. But the left lung is almost clear, with only one 9 mm area remaining. Only one tiny node remains in my chest, one cm.

The abdominal retroperitoneal nodes are now reported as normal, so that is good. I will know more when I meet with my oncologist next week.

I am not too disappointed, particularly as I know why those lung lesions are so pesky. I have a terrible confession - I have been a lifelong pipe and cigar smoker. I gave up the pipe in 2011, but continued the cigars. In September, after everything shrunk except my lungs I managed to give those up too. After my wonderful December scan I bought one packet, just to celebrate. You can guess where this is going. So that is going to stop, whatever it takes.

I'll also go back to using my cannabis oil vaporiser, which I used between September and December, but had stopped using.

With that I hope my next scan in three months will be more positive.
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com

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kimmercans
Posts: 364
Joined: Sat Nov 21, 2009 11:38 am
Facebook Username: kimschlagel@msn.com

Re: Latest CT Scan

Postby kimmercans » Sat May 04, 2013 6:28 pm

I would consider this a good scan. You are STABLE OFF CHEMO...and that is fantastic in my opinion:) Your body is figuring things out.

Best of life,
Kim
Kimberly Age 54 Diagnosed at 44
Dx'd rectal ca 10/12/09
LAR,TME 10/14/2009 Stage 2a
Opted out of Folfox.
4/19/12 CT scan clear NED CEA<0.5
10/2019 still NED
Taking curcumin, Celebrex, vitamin d, digestive enzymes, bio identical hormone replacement.
2015 to present. Stopped all surveillance. Living life one glorious day at a time.

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Latest CT Scan

Postby skypup » Sat May 04, 2013 7:49 pm

Doc, I am so happy to read your news. A mixed bag, perhaps, but so much is good. Your therapy is doing its job, it seems. Incredible!
You should have a ceremonial burning of the cigars under a full moon or something. 8)

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Latest CT Scan

Postby Guinevere » Sat May 04, 2013 9:22 pm

A mixed bag to be sure but more good news than bad. I'm sending positive thoughts that giving up the cigars will go as easy as possible.
God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: Latest CT Scan

Postby Laurettas » Sun May 05, 2013 12:53 am

Well, Lohidoc that is an interesting scan report, isn't it? Hooray that your nodes and left lung are almost back to normal. That is awesome! So interesting that the right lung is not responding. I'm trying to come up with some sarcastic reason as to why that might be happening or a corny way to get your treatment focused there but my brain is just not delivering tonight for some reason. I will have to sleep on it and see if I can come up with something tomorrow. Overall I think you can feel comfortable going out and having a grand celebration of the results--they are truly amazing.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

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Bev G
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Facebook Username: Bev Golde
Location: Quechee, VT

Re: Latest CT Scan

Postby Bev G » Sun May 05, 2013 9:31 am

This sounds really good, and quite encouraging! Are you still taking the Coley's (??) solution? Hang in there, Marc!

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Latest CT Scan

Postby Jack&KatiesMommy » Sun May 05, 2013 10:12 am

I think this is pretty damn wonderful, in my opinion! I am amazed at how your body is responding to this treatment! I remain enthusiastic!
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

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CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Latest CT Scan

Postby CRguy » Sun May 05, 2013 5:37 pm

lohidoc wrote:With that I hope my next scan in three months will be more positive.

As do we ALL my friend.
Cheers and continued best wishes.
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

smokeyjoe
Posts: 137
Joined: Wed Sep 21, 2011 8:40 am

Re: Latest CT Scan

Postby smokeyjoe » Sun May 05, 2013 6:39 pm

I've been wondering about how you were as I hadn't seen you really post recently. Wonderful news for the most part, so happy to see :D

usopen
Posts: 188
Joined: Mon Jul 18, 2011 12:37 pm

Re: Latest CT Scan

Postby usopen » Sun May 05, 2013 6:57 pm

I've been waiting for this scan results.....and I think it is amazing.
I am so happy for you. I hope, too, the other lung will look better the next time, but still incredible.
Way to go!!
Joan

jimc

Re: Latest CT Scan

Postby jimc » Sun May 05, 2013 9:43 pm

Lohidoc, I'm remembering that your two retroperitoneal node masses were rather sizable prior to your current therapy. Amazing results there!!

I pray this treatment again becomes available. Your willingness to share your experience has, I think, put it on the radar of many stage IVs/caregivers. As a legitimate and compelling option. I know it's on my mind with regard to my wife. If it was available, I imagine she'd be trying it right now.

So here's a vision for you: a devitalization procedure (there must be a surgeon somewhere in the world that would be willing to do this) to enact some Matzingerian necrosis (maybe on a single larger lesion in your right lung) followed by continued therapy as soon as possible. Kind of jump-start the healing in the right lung.

Wishing you the best.

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Latest CT Scan

Postby juliej » Mon May 06, 2013 1:29 am

I remember a doctor telling me that when patients aspirate during surgery, most of them aspirate in the right lung. It occurred to me that maybe people are right or left-lunged like they are right or left-handed. If so, the question is -- are you left-handed? If you are left-dominate, it might be the left lung that responds to treatment first. That would explain why the right lung is slower responding. I hope that's the case and your next scan shows a similar response in the right lung. All in all though, your treatment is definitely kicking cancer's butt!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Dobe Man
Posts: 75
Joined: Wed Oct 31, 2012 10:47 am
Location: Smyrna, GA

Re: Latest CT Scan

Postby Dobe Man » Mon May 06, 2013 3:12 pm

lohidoc wrote:I just got my results today. A bit of a mixed bag.


A mixed bag > a bad bag, keep on keeping on.

Yet another item in the category of health risks/outcomes we will never really figure out, my dad is 77 and a retired dentist. He smoked pipe and cigars primarily on weekends over most of his adult life, but since retiring roughly 10 years ago smokes 3 big ring (54-60) 6" cigars a day...every day. The convo goes something like: "Hey man, aren't you worried about oral or lung cancer?". Response is "I am 77, who cares?" Go figure, but it really sets his wife off as he otherwise is in really good physical and mental health. Occasionally I would join him a couple of times a year and have 1-not 3, but finally I just said no mas, primarily as it really sets off GERD.
4.2012 Dx @ 48 with CRC
5.2012 resection of 10" sigmoid colon/UR & 20 LNs
T3N0M0 2x1.5x.8 cm Adenocarcinoma low grade tumor
1-YR tests: clear scan, xray, ultrasound
3-small benign polyps removed during colonoscopy
Continued quarterly Onc apptmt

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Latest CT Scan

Postby BrownBagger » Mon May 06, 2013 3:30 pm

Thanks for the update, Doc. Glad to hear things are relatively stable.

I stopped smoking my favorite herb after my last recurrence, though I still drink the tincture with good results. So many benefits--from cramp suppression to nausea control to a welcome sense of relaxation. However, I did suck up my share of wood smoke over the winter, and I wonder if that had anything to do with it. If I eventually get off chemo and don't recurr over the summer, I might think about using a mask or respirator when filling up the boiler next winter. Or, get my family members to do it instead (even better idea!). You know, I kind of doubt that it's a factor, but I'm getting to the stage where I'll try just about anything that seems to make sense, and keeping my lungs free of smoke of all kinds seems like a logical approach, all things considered.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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