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Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Wed May 21, 2014 9:43 pm
by kpjpmom
Gwen,
I am so sorry about your news. :cry: Cancer SUCKS big time! I admire your faith and spirit! I always enjoy reading your posts and we have another thing in common, I am a Texas girl too. I understand how finances and no insurance can impact the choices we have to make. We also have to take into account how those financial strains will impact our families after we are gone Also, just the physical and emotional toll that this disease takes out on our bodies. I am glad you got to enjoy some Cheetos and hope that your mouth will soon heal and you can enjoy eating. Thank God for sweet grandchildren who give us light and laughter. My heart hurts for you. Gentle hugs to you. Keep us posted.
God bless,
Beckie

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Wed May 21, 2014 10:01 pm
by tchan8888
To my Fantastic IV Friends .... Will be going back on the FOLFIRI grind in about two weeks .... This week's PET/CT scan showed small increases in size of all lymph node mets .... So will be going on the regimen for the near future .... Want to see whether it still works sooner rather than later since I am able to handle the side effects relatively well ....

Gwen, hang in there .... Everyday is a new one and a new day to fight .... I look at the future as a series of moments to simply smile at what my dogs do and my wife says .... :)

Blessings,

Tom

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 2:04 am
by skypup
Gwen, I was just thinking about you and how you don't have insurance. Are you not eligible for SSDI? You should be receiving monthly payments and be on medicare by now. They can still fast-track you and pay you back pay. I don't think it can go back far enough to get you the medicare right away, but it should be a sizable chunk o' change. Please excuse me if this has been covered already, I have chemo brain!

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 2:31 am
by Guinevere
Jeanette,
I like the floral ones the best. I think this link will work better Elegant Henna Tattoo Crowns Help Cancer Patients Cope with Their Hair Loss. The one you posted took me to a 404 page couldn't be found page.

God bless ~
Gwen

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 7:08 am
by Bev G
My sweet Gwen. Of course I read your post two days ago and have thought of little else. I just can't think of what I want to say yet. I will, soon, I hope.

You are a simply amazing person, and a beacon of light and hope to us all. I love you very much, and I hate cancer equally, Mighty Queen Who is Not Nearly Dead Yet!

xoxox

Bev

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 9:59 am
by pollo65
I, like Bev read your post, started to answer but just could not think of how to express my emotions. O mighty Queen you are in my thoughts and prayers, heres hoping your mouth sores heal so you can eat Flaming hot cheetos if you want and heres to watching the Princess grow. You inspire me and you make me smile and yes your last post made me blubber like a baby. Heres to feeling better and getting to eat and do what you want.
pollo 65

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 1:30 pm
by Candyys03
Hell Everyone!
I am dying and will not come again. Only in dying a few more years. I love all of you!
I will not be doing this or helping this gain.
I love you all!
Candy

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 1:56 pm
by Bev G
Candy, dear,

Can you tell us what is happening to you now? How can we best support you. You are surrounded by love here, dear friend.

((((Candy))))

Bev

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 2:17 pm
by drebay
Bad news today. Per surgeon, surgery to resect or RFA the Liver will do no good. :( I am now Chemo for Life.

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 2:25 pm
by drebay
I wanted to add that my Oncologist freaked me out when he stated that my case was presented to the "weekly colon conference" that they have every week. He said that my case was presented because it was "Unusual". I guess I should ask the Lung surgeon about that, huh?

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 4:05 pm
by jeanette57
candy you do not need to dye alone. We can hold you in light. please know it is just a journey, next stop pure spirit. :?

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 4:28 pm
by Guinevere
Candy, you know I'm not going to let you go! You were the one who helped me deal with the Stivarga. Also, we love your sense of humor.

Drebay, I was on "chemo for life" for quite a while before I realized that was what I was doing. It's doable if you listen to your body. Take 2 rounds off from time to time.

I think it's all hit me today. I just can't seem to stay awake but, then, I didn't sleep well last night. One thing I'm very grateful for is that my Thursday after seeing the onc and getting chemo is disconnect day and I'm always extremely sick for 2 1/2 days. So, no chemo on Tuesday - No disconnect day and being super sick! Woohoo! :mrgreen:

God bless ~
Gwen

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 8:17 pm
by drebay
Nothing to add except I never did give my name. I am Debbie. I think that DH & I should sue whoever came up with "Bennifer" as we did it first, back in 1985. We had to write a play in High School English and we put our last names together for fun to use for the family in the play. Jokingly, we did that with our first names as well. Okay....stop laughing......

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 8:47 pm
by Guinevere
I started to address you as Debbie but, then, I thought that might be wrong! I guess my husband and I would be Gwary. :wink:

Still chuckling ~
Gwen

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Posted: Thu May 22, 2014 10:10 pm
by jeanette57
must be dehydrated. sick. sick and still sicj=-k, :D love yto all