Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING
Posted: Wed Nov 20, 2013 7:26 am
Hi Everyone.
I forgot that this thread was here when I posted in the general forum. It was great to hear from people but I thought I'd repost on this thread as I assume that the people who follow this one are more apt to be in my position and may or may not follow the general board postings. I know some people saw my last post and responded and it was really great to hear from you. I guess my "do nothing" days are going to come to a halt for abit. I can't complain, I have had a great run for a couple of years now and have had a great quality of life except for the 3 month check ups that are a constant reminder that I am never going to be done dealing with this. Last week I had my regular CT and it showed that the tumour on my vena cava has grown significantly since the last scan (2.5 to 3cm). It isn't huge and my CEA still hasn't started to rise but past experience had shown me that these suckers can grow in a hurry. I am now awaiting a PET scan, hopefully some time this week and have been referred back to a radiologist on Monday. Our last plan of action was to radiate if the tumours grew significantly or try chemo again if there were more significant growths, so I suspect the plan of action will be to radiate. I was wondering if anyone else here with a similar path to me has had radiation? I always have a million questions by the time of my appointment, but right now I'm not even sure where to start asking. Any info or advice is greatly appreciated!
Thanks
Lynn
I forgot that this thread was here when I posted in the general forum. It was great to hear from people but I thought I'd repost on this thread as I assume that the people who follow this one are more apt to be in my position and may or may not follow the general board postings. I know some people saw my last post and responded and it was really great to hear from you. I guess my "do nothing" days are going to come to a halt for abit. I can't complain, I have had a great run for a couple of years now and have had a great quality of life except for the 3 month check ups that are a constant reminder that I am never going to be done dealing with this. Last week I had my regular CT and it showed that the tumour on my vena cava has grown significantly since the last scan (2.5 to 3cm). It isn't huge and my CEA still hasn't started to rise but past experience had shown me that these suckers can grow in a hurry. I am now awaiting a PET scan, hopefully some time this week and have been referred back to a radiologist on Monday. Our last plan of action was to radiate if the tumours grew significantly or try chemo again if there were more significant growths, so I suspect the plan of action will be to radiate. I was wondering if anyone else here with a similar path to me has had radiation? I always have a million questions by the time of my appointment, but right now I'm not even sure where to start asking. Any info or advice is greatly appreciated!
Thanks
Lynn