Hello fellow travelers,
I have been awake for hours icing down my lower back trying to get pain in a better place. I now have met/mets in my spine. I will know more as we see doctors this week. I was admitted to the hospital on Wednesday with pain to my tailbone that had increased over the last 5 week. We had been taking care of my father in law who is very ill. I thought the pain might be coming from sitting in those dad gum chairs at hospitals. Anyway, the pain increased so I went for and xray. GP said no mets and needed PT. Pain continued for 1 day and I mentioned pain at my 8 month lab draw for oncologist appointment. Thank goodness for Oncology nurses. She advised me to let my oncologist know my problems. Long story short, he admitted me for testing and found tumor in tailbone.
Pain meds are on board around the clock and I should see the radiologist on Tuesday to start radiation to the spine. Chemo to follow, Oncologist says. We will see what he offers. I am in a place where I want to choose quality over quanity. I only have one kidney left and it is showing signs of damage. I do not want chemo until I die. I want pain relief in the best possible ways so that I can enjoy the things I love without being so sick from chemo. I pray this will be possible. Thinking out loud here this morning.
I feel I am turning a corner in my journey. I feel the need to get things clarified and down so my family will have what they need to continue on. My friends and family, tell me I can fight this, I can beat this once again. I just don't know if I have the emotional stamina to do this. Besides, its me doing the work and them coaching on the sidelines, not doing the actual treatments. Thanks for listening to my wanderings. Take care fellow 4's.
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.