Happy Valentines Day to everyone here <3
Here is an update on me (for anyone on Facebook, this is the same). It was almost a year ago that I woke up from thoracic surgery in a foreign country and was told that the cancer had spread quite aggressively and could not all be removed from my body. A month previously, the CT looked great and I was anticipating coming home NED. Surgery revealed progression to my plura and local lung lymph nodes. Fast forward to today and I have finally found out the written results of my most recent CT that was taken a while back. It looks great!!!! I have three spots....one of which is of concern, but is stable and under a cm, and could be dead. The other two, one I believe to be scar tissue from one of my lung surgeries, the surgeon in Germany reviewed the scan with me and it seems to be the same. The 'other' spot, is so small it couldn't be measured by the radiologist, and this was noted. So, in summary, whatever it is, its working. When I was first diagnosed with lung mets, I had 'several'. How many 'several' was, I really cannot say as I never got a clear indication from my local doctors. What I can say is that I had 15 lung mets surgically removed, four were NOT cancer.
Now I need a plan coming up to the next scan. My oncologist mentioned a 'break' if the next scan looks good. I'm afraid of a break. I need a plan! I am in the midst of scheduling an appointment with Dr. Lin to disucss ADAPT. He is waiting for a sample of my tumor for testing. There is an insurance issue here in Ontario, if stop Avastin, I cannot use it again if I need it, and it seems to be doing something. If I add Celebrex to FOLFIRI and Avastin, the side effects are exacerbated (potentially). I will consult Dr. Lin about this. I'm also considering a German clinic for a few weeks if I take a break for some 'treatments'. Or, maybe just take a 'break'? I'm scared to stop chemo, I've been on it for ten months...
@Rubyred, I'm sorry to hear about your sister. This disease is awful, but can be managed to a point. There is a lot of great information here and amazing people for support. You may want to consider posting your question on the main board for greater input