So this is me, on my way out.
I'll post it here rather than the main board.
I won't re-run the details, but before Xmas I had significant rectal bleeding. Tests showed that my second dose of radiation had nuked everything and left behind a massive inflammation, within which tumor cells could still be detected. In other news, the mass on my liver got significantly less, but the stable-for-two-years things on my lungs grew slightly.
The plan was to set a colonostomy or ileostomy to stop stool running through thei inflammation and give it a chance to heal. As a result of renewed bleeding on Friday, I took myself off to the hospital and they pulled the op forward to yesterday.
Now I've been hit by a CRC classic - They opened me up and almost couldn't find enough small bowel to build an ileostomy, let alone a colostomy, because everything was "just one big lump" due to peritoneal metatastasis. F#%k.
I'm recovering from the op ok, the ileo seems to be working well, tomorrow is tumor board so I'll guess I'll know then if any more treatment makes any sense. My gut feeling is no - I'd rather try and spend a few good weeks with the family than a couple of months on the couch with chemo side effects. It doesn't look like I'm going to make 50 though (in June).
I've always known this disease can go nasty quickly, but it's another thing when it happens to you. My poor family, My 5-year old obviously knows I'm sick, but not how bad. Goodness only knows how and what we are going to tell her.
09.11 Dx @ 46, uT3uN1M0 G2
09.12 Liver mets, 2 LN
04.13 Folfox & Avastin
11.13 Local recurrence
Left us 28.05.2015