mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Please feel free to read, share your thoughts, your stories and connect with others!
kpjpmom
Posts: 197
Joined: Sat Nov 26, 2011 10:27 pm

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby kpjpmom » Wed May 21, 2014 9:43 pm

Gwen,
I am so sorry about your news. :cry: Cancer SUCKS big time! I admire your faith and spirit! I always enjoy reading your posts and we have another thing in common, I am a Texas girl too. I understand how finances and no insurance can impact the choices we have to make. We also have to take into account how those financial strains will impact our families after we are gone Also, just the physical and emotional toll that this disease takes out on our bodies. I am glad you got to enjoy some Cheetos and hope that your mouth will soon heal and you can enjoy eating. Thank God for sweet grandchildren who give us light and laughter. My heart hurts for you. Gentle hugs to you. Keep us posted.
God bless,
Beckie
DX March 2011 stg 3 cc
Kidney cancer May 2011
Folfox 6months (12 rnds)
It's Back! October 2012 colon resection, kidney removed.FOLFIRI/Erbitux starts Jan.2013
Completed FOLFIRI June 2013, Erbitux continues
March 2015 Met to spine. Radiation 15 treatments
Folfri, 5fu dropped after 3x, Erbitux and Iri continued CEA rising. Moved to
Folfox, Xeloda,Avastin until Feb. 2016 oxilap. Neuropathy returns.
Xeloda,Avastin continues.

User avatar
tchan8888
Posts: 208
Joined: Mon Mar 25, 2013 8:41 pm
Location: San Francisco Bay Area

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby tchan8888 » Wed May 21, 2014 10:01 pm

To my Fantastic IV Friends .... Will be going back on the FOLFIRI grind in about two weeks .... This week's PET/CT scan showed small increases in size of all lymph node mets .... So will be going on the regimen for the near future .... Want to see whether it still works sooner rather than later since I am able to handle the side effects relatively well ....

Gwen, hang in there .... Everyday is a new one and a new day to fight .... I look at the future as a series of moments to simply smile at what my dogs do and my wife says .... :)

Blessings,

Tom
Tom, 49 now
12/12 Right Hemicolectomy 2X (29 days in hospital)
12/12 Stage IV: multiple distant LN; no organs
20X: FOLFIRI (stopped working)
8X: 5FU
8X: FOLFOX and Avastin
2016: Clinical trial pembrozilumab MSI high

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby skypup » Thu May 22, 2014 2:04 am

Gwen, I was just thinking about you and how you don't have insurance. Are you not eligible for SSDI? You should be receiving monthly payments and be on medicare by now. They can still fast-track you and pay you back pay. I don't think it can go back far enough to get you the medicare right away, but it should be a sizable chunk o' change. Please excuse me if this has been covered already, I have chemo brain!

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby Guinevere » Thu May 22, 2014 2:31 am

Jeanette,
I like the floral ones the best. I think this link will work better Elegant Henna Tattoo Crowns Help Cancer Patients Cope with Their Hair Loss. The one you posted took me to a 404 page couldn't be found page.

God bless ~
Gwen
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby Bev G » Thu May 22, 2014 7:08 am

My sweet Gwen. Of course I read your post two days ago and have thought of little else. I just can't think of what I want to say yet. I will, soon, I hope.

You are a simply amazing person, and a beacon of light and hope to us all. I love you very much, and I hate cancer equally, Mighty Queen Who is Not Nearly Dead Yet!

xoxox

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

User avatar
pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby pollo65 » Thu May 22, 2014 9:59 am

I, like Bev read your post, started to answer but just could not think of how to express my emotions. O mighty Queen you are in my thoughts and prayers, heres hoping your mouth sores heal so you can eat Flaming hot cheetos if you want and heres to watching the Princess grow. You inspire me and you make me smile and yes your last post made me blubber like a baby. Heres to feeling better and getting to eat and do what you want.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

User avatar
Candyys03
Posts: 1381
Joined: Wed Dec 10, 2008 12:51 am
Facebook Username: Candy Llamas
Location: Riverside,California
Contact:

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby Candyys03 » Thu May 22, 2014 1:30 pm

Hell Everyone!
I am dying and will not come again. Only in dying a few more years. I love all of you!
I will not be doing this or helping this gain.
I love you all!
Candy
DX8/0642yrIVCCmtsliver
9/06opcol+lymps
07oxy
08livernonop
08iri+erb
1/09opliver
NED11m
12/09lungmts
3/10livermts
NED7m
2/11lungmts
4/11NED3m
5/2Xel
9/26lungop
NED6m
3/12lungmtsirierb
11/27avas+ox
7/13Stivarga
10/28irierb
1/17
caringbridge.orgcandyllamas

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby Bev G » Thu May 22, 2014 1:56 pm

Candy, dear,

Can you tell us what is happening to you now? How can we best support you. You are surrounded by love here, dear friend.

((((Candy))))

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby drebay » Thu May 22, 2014 2:17 pm

Bad news today. Per surgeon, surgery to resect or RFA the Liver will do no good. :( I am now Chemo for Life.
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby drebay » Thu May 22, 2014 2:25 pm

I wanted to add that my Oncologist freaked me out when he stated that my case was presented to the "weekly colon conference" that they have every week. He said that my case was presented because it was "Unusual". I guess I should ask the Lung surgeon about that, huh?
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

jeanette57
Posts: 1004
Joined: Sun Mar 04, 2012 11:40 am

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby jeanette57 » Thu May 22, 2014 4:05 pm

candy you do not need to dye alone. We can hold you in light. please know it is just a journey, next stop pure spirit. :?
T3 N0 M0 -1-4-12 to 3-2013- NOW stage 4 terminal
mets Lungs & bone - halo on head (not to many can see unicorn horn)
chemo for life or until I quit

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby Guinevere » Thu May 22, 2014 4:28 pm

Candy, you know I'm not going to let you go! You were the one who helped me deal with the Stivarga. Also, we love your sense of humor.

Drebay, I was on "chemo for life" for quite a while before I realized that was what I was doing. It's doable if you listen to your body. Take 2 rounds off from time to time.

I think it's all hit me today. I just can't seem to stay awake but, then, I didn't sleep well last night. One thing I'm very grateful for is that my Thursday after seeing the onc and getting chemo is disconnect day and I'm always extremely sick for 2 1/2 days. So, no chemo on Tuesday - No disconnect day and being super sick! Woohoo! :mrgreen:

God bless ~
Gwen
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

drebay
Posts: 220
Joined: Thu Mar 20, 2014 5:39 pm
Location: Oregon

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby drebay » Thu May 22, 2014 8:17 pm

Nothing to add except I never did give my name. I am Debbie. I think that DH & I should sue whoever came up with "Bennifer" as we did it first, back in 1985. We had to write a play in High School English and we put our last names together for fun to use for the family in the play. Jokingly, we did that with our first names as well. Okay....stop laughing......
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby Guinevere » Thu May 22, 2014 8:47 pm

I started to address you as Debbie but, then, I thought that might be wrong! I guess my husband and I would be Gwary. :wink:

Still chuckling ~
Gwen
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

jeanette57
Posts: 1004
Joined: Sun Mar 04, 2012 11:40 am

Re: mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

Postby jeanette57 » Thu May 22, 2014 10:10 pm

must be dehydrated. sick. sick and still sicj=-k, :D love yto all
T3 N0 M0 -1-4-12 to 3-2013- NOW stage 4 terminal
mets Lungs & bone - halo on head (not to many can see unicorn horn)
chemo for life or until I quit


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google Feedfetcher, polluxx, roadrunner and 27 guests