mCRC STAGE IV OR RECURRENT PATIENTS thread - ONGOING

[tchan8888]

Skypup,

Thanks for the Props! Am trying my hardest to give it my all on this journey and when I mean give it my all, I mean give all of my humor, my passions, my energy, to live life now. You and all of the rest of the warriors have shown me to LIVE and not just wait for the cancer to take over. Am doing my best. Thanks for helping to motivate me ....

Blessings,

Tom

[tchan8888]

Skypup,

Regarding Murakami, recommend the following:
Hard Boiled Wonderland and the End of the World
Wind Up Bird Chronicles
Kafka on the Shore
South of the Border, West of the Sun

I have read all of his works.

Blessings,

Tom

[Sharona]

Thanks to all who responded and encouraged me to get out and about more. My primary doc had discouraged any contact with restaurants, stores, church, etc. where I might pick up germs. Because of the encouragement and example of all of you, I am out and about now and much happier! I am careful, especially during this flu season, and feel better.
The roller coaster continues. Before Christmas my cea had dropped to 6.8 (lowest ever) and a brain MRI showed that the brain tumors appeared to have shrunk a tiny bit. Cause for celebration!
Had a PET/CT last weeks and got the results yesterday. I was hoping for good news, a chemo break and had even bought a pint a Ben and Jerry's to celebrate. 'Worsening metastatic disease in the lungs'. The two largest tumors showed growth and max SUV of 18 and 11.3. There were also multiple new active pulmopulmonary nodules. Not what I wanted to hear. The onc ordered another cea and I will see her in two weeks to discuss a possible change in chemo. I had my ninth round of FOLFIRI and avastin yesterday and the onc mentioned a possible switch to Zaltrap. I have been reading everything I can find about Zaltrap on this forum and have one question - is there anyone who has been on Zaltrap and found that the benefits outweigh the side effects?
Once again, thanks for the positive support. You are all in my prayers as we fight this beast.
Hugs to all,
Sharon

[Sophy]

A whole week after lung surgery and I am finally glad that I survived it! It was very very ouchy. Now that all the tubes and bags and things have come off I feel good. Still painful but very glad and grateful to be alive.

A real surprise is that Dr Rolle says he isn't sure that the two things in my other lung showing on ct scans are actually cancer - he put odds at 50/50 they are benign. This has given me such a feeling of hope that I won't need another operation. It is difficult to let myself hope but it would be so nice if it were true. I will get them scanned every 2 months to see what they do.

Love to all

[DogMom]

Sophy.. Congrats on getting through that. It would be amazing if you didn't have to go thru second operation. Please keep us posted on your recovery. I am interested in what the basis is of Dr Rolle's opinion that the ones on the other side are not cancerous.
After my next scan in Feb., I am going to send my CTs over there to be evaluated.

Best wishes.

Bonnie

[jeanette57]

Sick...hospital. CDIFF

[Sharona]

Oh, Jeanette, I am so sorry! I had it last year and it is one of the worse things I have ever experienced.
I pray for a quick recovery.
Hugs,
Sharon

[kiwiinoz]

Hard Boiled Wonderland and the End of the World

Tom

Tom

Read it when I was young (20 or 21) one time when I was living in Japan for a while and loved it. Read it again in my mid 30's and loved it more.
Will have to go and read it again

Kiwi

[skypup]

Sick...hospital. CDIFF

Prayers for you, Jeanette.

[Guinevere]

A whole week after lung surgery and I am finally glad that I survived it! It was very very ouchy. Now that all the tubes and bags and things have come off I feel good. Still painful but very glad and grateful to be alive.

A real surprise is that Dr Rolle says he isn't sure that the two things in my other lung showing on ct scans are actually cancer - he put odds at 50/50 they are benign. This has given me such a feeling of hope that I won't need another operation. It is difficult to let myself hope but it would be so nice if it were true. I will get them scanned every 2 months to see what they do.

Love to all

Oh! Fiona! This is fantastic news! I think keeping an eye on things (or thingies ) is a great idea. How much longer will you be in the hospital?

God bless ~
Guinevere

[Guinevere]

Sick...hospital. CDIFF

You're in my prayers, Jeanette. What a cruddy turn of events!

God bless ~
Guinevere

[jeanette57]

LOST HUMANITY!!
They just treated me as a gene pig. Not system.m and did a very painful flu test. Kindle not allowing of auto correct.

Pill shot s not happy I AM NOT A HUMAN TEST SUBJECT

[Guinevere]

LOST HUMANITY!!
They just treated me as a gene pig. Not system.m and did a very painful flu test. Kindle not allowing of auto correct.

Pill shot s not happy I AM NOT A HUMAN TEST SUBJECT

Sure you are, Jeanette! Seriously, I think it's a good thing that it's not systemic. Hopefully, that means it's easier to treat and you'll be home soon!

God bless~
Gwen

[Sophy]

I just found myself having one of those 'strange things to be grateful for' moments that cancer gives us.

I was feeling a bit off colour at bedtime and the nurse gave me an anti nausea pill and a cardboard bowl the size of an egg cup. I lie awake feeling terrible and 1am on the dot I throw up. The nurse now wishes she had given me a sensible size bowl.

But what I thought wasn't pity for myself feeling sick. It was immense gratitude that this hadn't happened a week ago when I had just had lung surgery and vomiting would have been extremely painful if not dangerous as well.

No-one else in the hospital has thrown up tonight so I expect it isn't anything serious. It is nice to have non-serious illness for a change.

Thinking of you Janette, and hope they get your illness under control. Strong thoughts coming your way.

[Becmac]

Jeanette, hope you are feeling better at this point. I kind of lost this thread for a few days. Dont know what happened. No Babies, Gwen? Tom I am looking for Hard Boiled Wonderland.
SkyPup I was to start taking the Stivarga this morning and my doc. called last night to tell me not to start because my liver numbers was way up all of a sudden and it would be dangerous. I thank you all for your encouraging words about the drug to begin with though hope someday I can try it but maybe there is no time for that.

So here I sit with my CEA going up as we speak. I think my time is very limited here. The plan now is for the doc. to consult with the gastroenterologist about a possible blocked duct in my liver and maybe put in a stint next week. We will see what they say. The pain is getting worse but the drugs are getting stronger so maybe I have time to do just a bit of living.

I hope everyone is free of pain tonight,

Becky