Love hearing the replies everyone!!!!
Laura, I am envious of you and Peloton, the idea of doing this once a day and being done with it all is so appealing, but at this point, not happening for me. I trust I will get there.
I did my thing this am, but have had 3 BMs since, so obviously I am not getting enough of a clean out.
I just can't seem to take enough water and holding it seems to be totally out of the question. I will keep trying.
Ann...hang in there!!!!!! you said it yourself that you are getting your life back, so there must be a way to get through this part. What about taking some of those gasx pills after? Would that help elimnate the gas? My physiotherapist has me do this thing she calls I LUV U....it basically it just massaging the colon. You rub your tummy in an upwards motion on the right hand side, then across the top, then down the left hand side, sort of like a U...basically "pushing" the gas and stoool along in the direction you want it to go to come out the end...hope that makes sense. SHe says that by massaging, it helps to stimulate things to move along. I know when I am clustering I do this, and I THINK it helps. Might be worth trying. I know I get a pain on my left hand side about 30 minutes before I start to cluster, I am wondering if I have scar tissue or a narrowing of my colon here and things are getting stuck maybe. So I tend to massage here a lot, and I do think it gets things moving. Hopefully Peleton or Laura will chime in with some thoughts for you. Please don't give up...you really could be onto something here!!
Grace, I still think you are so early in the process, that things could still really improve for you without having to go to something like the daily enema. Many people find good results from bowel training with the MD Anderson plan, others make some simple diet adjustments, but at 3 weeks, your bowels are still working things out...so to speak...and where you are right now may not be even close to where you will be down the road. My surgeon said the first 6 months see the most improvement, I found I was 300% better by 8 weeks when I returned to work and you might find the same or better, I am really hoping that for you. I must admit, those first few months back to work I ate nothing until about 3 in the afternoon, so I was done work and home when things kicked in, and tied to the house until the next morning. Nothing in - nothing out was my motto. I hated it, and slowly started eating earlier as I gained some confidence. My days are still better than my evenings, but because it is so unpredictable it really disrupts my life, plus when I go, it ends up being 2 -3 hours of mad clustering.
Thanks again to all who are joining in this discussion. I feel like I have some accountability to this thread, so I am determined to find my way!!