tammylayne wrote:Frustration has driven me to it...I don't know what else to do. The clustering is taking over my life. Every second day, or third, or every day I have this clustering that does not end. It lasts for about 3 - 4 hours, drains me mentally and physically and is ruining my quality of life. I have no idea when it is going to happen, no real warning. I find myself having to cancel outings, late for work, stuck at places for hours becasue I can't make the drive home and starting to shut down socially.
My surgeon has suggested a couple of months ago that I consider daily enemas to make things happen every day to hopefully eliminate the clustering/urgency and allow me to spend 30 minutes in the bathroom every day on my own terms. He does not feel they are harmful, and may in fact give me back a better quality of life. He told me to give it a try for a couple of weeks and then come see him if I don't feel things have improved.
Not the direction I saw myself going when I decided to go for the reversal, but I always knew there might be hiccups greater than what I was expecting. I could deal with this better if it was always in the evenings in the privacy of my home, but it is happening at work, and starting to keep me from fulfilling employment obligations - ie I can't go to out of town meeting with co-workers as I am terrified this will happen enroute, or keep us from being able to leave to come back home.
I know I am not the only one that is challenged in this area. I would love some feedback, either on this tread or a PM. I am really struggling here, and the stress of it all is starting to wear me down. Any ideas, thoughts or otherwise would be greatly appreciated.
Note to anyone thinking about having a reversal - please remember everyone is different and don't think that my result will be your result. There are many reversalites here that are very pleased with their results!!!
ams5796 wrote:Exactly, Susie! That's the feeling I have most days doing enemas. I wish I could tell you why. I wonder if it has anything to do with what I'm eating. One of the reasons I like doing enemas is so that I do have more freedom with food choices. I don't mean that I take the liberty of eating junk or not eating well. In fact, it's almost the opposite. I use the opportunity to eat more fruit, vegetables, nut etc. When I don't use an enema I'm more careful about everything I eat wondering how my bowels will react. Maybe the folks that have success using enemas are still careful about what they eat taking into consideration what foods will cause gas. Hopefully, they will weigh in.
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