Fistula fears

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Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Fistula fears

Postby Badass » Sun Mar 31, 2013 7:37 pm

So discouraged... Having some symptoms pointing to possible colovaginal fistula. Just when I started enjoying life and letting my cancer guard down. Just cannot face another round of invasive tests, complex treatment plans,the specter of future post-radiation issues. First real bout of depression since original diagnosis. If anyone else has had this problem and is willing to share, please PM me. I fel like I am in for a world of trouble. Trying to swim frantically to the shores of normalcy.
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Jachut
Posts: 1137
Joined: Mon Sep 26, 2011 11:16 pm
Facebook Username: hutchinson@aanet.com.au

Re: Fistula fears

Postby Jachut » Sun Mar 31, 2013 9:45 pm

That really really sucks. So sorry for you. It's really hard to accept how tough the journey to health remains even after the cancer is gone.

User avatar
CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

Re: Fistula fears

Postby CRguy » Sun Mar 31, 2013 11:11 pm

I know this topic has been discussed previously, so you may wish to check out these search results I dug up for rectovaginal fistula on this forum.

Sending posi++++vibes and best wishes for getting things under control.
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

SammyJ
Posts: 198
Joined: Wed Jul 25, 2012 5:03 pm
Facebook Username: Samantha.douglas

Re: Fistula fears

Postby SammyJ » Mon Apr 01, 2013 12:40 am

Am in the same position, will PM you x
Diagnosed Stage 3A Rectal Cancer March 12, age 39
ULAR and temp ileostomy March 12
Folfox started April 12 , completed Oct 12.
NED 16/10/12
Ileostomy reversal 23 Nov 12....

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Fistula fears

Postby Badass » Thu Apr 04, 2013 9:05 pm

Thanks for responses everyone. I did check through the search link you gave me, CRGuy and did a couple more of my own. There are many kinds of fistulas and many pages to read but didn't find my situation. Anyone out there develop a fistula AFTER rectal cancer treatment and after reversal? I would really like to be in touch. Anyone know a GREAT fistula surgeon?

Thanks as always,
Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)


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