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Trying to sleep but leaking keeps him up

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Trying to sleep but leaking keeps him up

Postby COHgirl » Wed Mar 20, 2013 10:18 pm

My boyfriend is miserable with this constant leaking he is dealing with. It's either poop or mucus and it happens all the time. I can't say that I've seen him go longer than an hour and a half without something leaking out of him. He never gets any good sleep. Does anyone have any suggestions on how to get thru the night with this stuff coming out all the time? We've used the anti diarrhea medicines but he is afraid of getting constipated. Since anything moving thru his colon causes pain the last thing he needs is to pass hard stools. I've got the big green underpads on the couch and towels. He wears Depends. I told him to not worry and just sleep thru the leaks if he can but he hates the idea of waking up all messy.

Any suggestions on how to sleep thru the night when you leak almost every hour?

Lizzy
COHgirl
 
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Joined: Tue Feb 26, 2013 12:06 pm

Re: Trying to sleep but leaking keeps him up

Postby Rob in PA » Wed Mar 20, 2013 10:34 pm

Watch the food eating in evening. Look into getting ambien script to help get him into a deeper sleep. Lay on right side.
hope this helps.
rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/LAR
J-pouch/ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/SBRT again 8/13
2 lung mets 5/14, Lung resect 8/14
Rob in PA
 
Posts: 1344
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Trying to sleep but leaking keeps him up

Postby Rob in PA » Thu Mar 21, 2013 2:33 pm

Lizzy, sorry I couldn't elaborate more on my first post. I was posting from a kindle and I'm no good with that keypad!

Anyhow, could we get a little more info on your boyfriends status? Did he have an ostomy and go through reversal and now he is leaking? Or, did he have resection with no ostomy and maybe had some sphinter muscles damaged (although if surgeon got close enough to sphincter he probably would have had a temp iliostomy)?

We could probably help more with a little more info. Has he tried kegel exercises?

If this is a longterm problem he may want to consider a permanent colostomy.


Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/LAR
J-pouch/ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/SBRT again 8/13
2 lung mets 5/14, Lung resect 8/14
Rob in PA
 
Posts: 1344
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Trying to sleep but leaking keeps him up

Postby Kathryn in MN » Thu Mar 21, 2013 4:37 pm

Rob - in another thread she has posted that he just finished chemo/rad. The tumor has shrunk and they are hoping to schedule surgery soon. A colostomy will take care of this issue after surgery.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume
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Kathryn in MN
 
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Re: Trying to sleep but leaking keeps him up

Postby COHgirl » Thu Mar 21, 2013 7:21 pm

Kathryn in MN wrote:Rob - in another thread she has posted that he just finished chemo/rad. The tumor has shrunk and they are hoping to schedule surgery soon. A colostomy will take care of this issue after surgery.


Yes, that's correct. I was just wondering if there was anything that would make him more comfortable until surgery. Tomorrow we are supposed to schedule the surgery. I thought we would know today. Always waiting....

A bright spot for today, he had three ACTUAL bowel movements sitting on the toilet. I wonder if this is his colon waking up after being off the OxyContin, oxycodone, and morphine for a couple of weeks. He was on them for a little over six weeks.

Lizzy
COHgirl
 
Posts: 16
Joined: Tue Feb 26, 2013 12:06 pm

Re: Trying to sleep but leaking keeps him up

Postby Rob in PA » Thu Mar 21, 2013 10:13 pm

COHgirl wrote:
Kathryn in MN wrote:Rob - in another thread she has posted that he just finished chemo/rad. The tumor has shrunk and they are hoping to schedule surgery soon. A colostomy will take care of this issue after surgery.


Yes, that's correct. I was just wondering if there was anything that would make him more comfortable until surgery. Tomorrow we are supposed to schedule the surgery. I thought we would know today. Always waiting....

A bright spot for today, he had three ACTUAL bowel movements sitting on the toilet. I wonder if this is his colon waking up after being off the OxyContin, oxycodone, and morphine for a couple of weeks. He was on them for a little over six weeks.
Thanks for filling me in. Hope his colon is getting its "second wind"!
Lizzy
dx 11/07 crc IIIb @ 39
Xelox/Rad/LAR
J-pouch/ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/SBRT again 8/13
2 lung mets 5/14, Lung resect 8/14
Rob in PA
 
Posts: 1344
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania


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