Need some positive vibes...very nervous. Updated....again

Please feel free to read, share your thoughts, your stories and connect with others!
Je9616
Posts: 220
Joined: Wed Aug 25, 2010 3:44 pm
Facebook Username: jennifer.edgerton

Need some positive vibes...very nervous. Updated....again

Postby Je9616 » Thu Mar 14, 2013 7:10 pm

Went to the dr. Today and he told me to stick out my tongue and it went to the right. I have been getting headaches and pain on the right side of my head, but I had pulled a neck muscle, so I thought that is what it is. Turns out he thinks it is a bone met at the base of my skull or a brain met...getting MRI tomorrow. Will not get results til Monday!!!!! Please.....please let it just be a pulled muscle!!!


------updated
Dr did not even call. My mom called and talked to the nurse and said it is unspecific and that I have to go see a neurologist. Hoping it is still nothing.
Last edited by Je9616 on Tue Mar 19, 2013 8:30 pm, edited 2 times in total.
Jennifer
STAGE IV with lung mets
dx 04/28/2010
4/18/2012 bone met on rib cage
06/11/2012-started clinical trial with sofraneib
10/2012 stopped trial- stopped working
11/2012- 5 FU
01/2013-tumors growing stopped 5FU
02/21/2013- starting Vectibix

User avatar
dianetavegia
Posts: 2722
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Need some positive vibes...very nervous

Postby dianetavegia » Thu Mar 14, 2013 7:38 pm

I'm so sorry to hear this but let's hope and pray it's just a nerve thingy from hurting your neck. Please let us know as soon as you hear.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

mom_2_3
Posts: 361
Joined: Sat Nov 29, 2008 8:09 pm

Re: Need some positive vibes...very nervous

Postby mom_2_3 » Thu Mar 14, 2013 8:03 pm

Jennifer,

A couple of weeks ago I had a month-long headache and tingling fingers. I convinced myself I had a brain met and had and MRI. I had the scan on Friday and had to wait until Monday. That was the longest weekend. Turned out I had a clean scan and the headache went away.

So this could all be nothing but the neck sprain. Try and keep busy as much as you can over the weekend. I had the husband and kids going non-stop so I wouldn't think about it and I took and Ambien both weekend nights.

I will say a special prayer for you this evening.

Amy
CC discovered during c-section (11/4/08)
Diagnosed Stage IV 11/10/08 -- Happy 39th Birthday! 5 bilobar liver mets
02/09: Colectomy, liver resection, HAI pump implanted, 7 of 42 nodes
7 months of FUDR and 5FU ended 11/2/09
10 years NED.

User avatar
Rob in PA
Posts: 2001
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Need some positive vibes...very nervous

Postby Rob in PA » Thu Mar 14, 2013 8:48 pm

Wow, that is incredibly stressful for you! I am praying and swaying poultry that it turns out to be minor.

Best,
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

nbrandt
Posts: 474
Joined: Sun May 01, 2011 7:42 pm
Facebook Username: craig.brandt

Re: Need some positive vibes...very nervous

Postby nbrandt » Thu Mar 14, 2013 9:33 pm

Sending positive and prayerful thoughts your way. Had left side facial numbness with sensation of swollen eye and jaw pain. After ct and pet no brain met just nerve damage from Folfox. Prayers, NB
DXCCT3N2aMx 5/20LN
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Need some positive vibes...very nervous

Postby Bev G » Thu Mar 14, 2013 9:47 pm

Hi Jennifer,

I know the waiting will be so hard. Praying for you, and hoping it's a pinched nerve that's set your tongue aswayin' We got your back here, Jennifer. I hope you'll be able to rest a little.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

DaniMags
Posts: 105
Joined: Tue Nov 01, 2011 2:10 pm
Facebook Username: Dani Johnson Magnuson
Location: Lehigh Valley, PA

Re: Need some positive vibes...very nervous

Postby DaniMags » Fri Mar 15, 2013 12:22 am

Hi Jennifer,

I think we can all understand the anxiety of the dreadful waiting period. I will definitely send some positive vibes and say some prayers for you that you get good news.

When all else fails, Xanax is a real help!

Please take care,

Dani
DX 12/09 St IIIC
1/10-6/10 FOLFOX
9/11 mets omentum/abd; 10/11 FOLFOX/Erb
1/12 Alimta/Herc
3/12 mets to liver -FOLFOX/Erb
5/12 FOLFIRI/Erb
8/12 FOLFIRI/Avastin, 1/13-Temodar/Avastin
3/13 widespread progr inc. lungs
4/13 - Stivarga (failed)

User avatar
Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Need some positive vibes...very nervous

Postby Guinevere » Fri Mar 15, 2013 11:44 am

Prayers and swingin' chickens for a pulled muscle! The things we wish for now, huh? :roll:
God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

Je9616
Posts: 220
Joined: Wed Aug 25, 2010 3:44 pm
Facebook Username: jennifer.edgerton

Re: Need some positive vibes...very nervous

Postby Je9616 » Fri Mar 15, 2013 2:19 pm

Thanks all for the prayers... I had the MRI today and it was so uncomfortable. I was in pain during it which only escalates my fear. I tried to see if I could get the results today, but I don't think that will happen. Going to be a long weekend. :cry:
Jennifer
STAGE IV with lung mets
dx 04/28/2010
4/18/2012 bone met on rib cage
06/11/2012-started clinical trial with sofraneib
10/2012 stopped trial- stopped working
11/2012- 5 FU
01/2013-tumors growing stopped 5FU
02/21/2013- starting Vectibix

sdon0507
Posts: 31
Joined: Sun Aug 07, 2011 6:30 pm
Location: Rochester, NY

Re: Need some positive vibes...very nervous

Postby sdon0507 » Fri Mar 15, 2013 5:11 pm

So many positive vibes being sent your way!!!!!
Age 30 mother to 3; 1 year 4 y.o, 5 y.o.
Stage IV Colon cancer August 8th, 2011
Colon ressection and RFA to 2 R-sided liver tumors Aug 16th, 2011
4 rounds Folox
Liver Ressection Thanksgiving Day
8 more round Folfox
All scans clean

User avatar
Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: Need some positive vibes...very nervous

Postby Kathryn in MN » Fri Mar 15, 2013 7:06 pm

Try to find things you enjoy that keep your mind occupied through the weekend. Play board games or watch movies or something that keeps your brain engaged. It will be what it will be - ruining your weekend won't change the results, but it is so hard not to think about it and worry - so distract yourself! Enjoy each day that you can - none of us are promised more than today, and letting cancer ruin any of those days is giving it more than it deserves.

Praying for a clear MRI!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

Badass
Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Re: Need some positive vibes...very nervous

Postby Badass » Fri Mar 15, 2013 7:35 pm

Hi Jennifer,

I am really feeling for you right now-- cancer is so great at blindsiding us. But I am really hoping for the best for you and will check back on Monday. Sending you all good wishes!
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Need some positive vibes...very nervous

Postby Val*pal » Fri Mar 15, 2013 7:39 pm

I'm sending many, many positive thoughts your way. Big hug!
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

User avatar
KarMel
Posts: 1523
Joined: Wed Oct 14, 2009 7:48 pm
Facebook Username: Karin Gray
Location: Indiana

Re: Need some positive vibes...very nervous

Postby KarMel » Fri Mar 15, 2013 8:16 pm

Sending positive vibes and prayers your way. I know for the first two or three years that I felt any little ache or pain I thot it was a met. I wasn't right until this week, after four years. Stay strong and hopeful.
Stage IV, April 2009.
Treatments...multiple .
Currently none
"It is well, with my soul"

User avatar
dianetavegia
Posts: 2722
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Need some positive vibes...very nervous

Postby dianetavegia » Mon Mar 18, 2013 1:07 pm

Any update?
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 22 guests