E.53rd St. Gang

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usopen
Posts: 188
Joined: Mon Jul 18, 2011 12:37 pm

E.53rd St. Gang

Postby usopen » Wed Feb 13, 2013 11:23 am

Anyone here now?
I'm in waiting room. Will be around until about 1:30. Beige hoodie.
Joan

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: E.53rd St. Gang

Postby so-scared » Wed Feb 13, 2013 11:29 am

My husband is there now. They are sending him over to see another doc soon. He is blond and will definitely be wearing a baseball cap due to no hair on the back of his head. His name is Scott if you see him and want to say "hello". He has a black/gray Columbia jacket and will have his carry on luggage with him. He does not know my screen name so if you approach him just ask him if he is DeAnn's husband. He just had his first scan since starting the hai pump treatments.
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: E.53rd St. Gang

Postby so-scared » Wed Feb 13, 2013 11:32 am

Joan -

He just got on the bus to go see a surgeon at the other location. He said he will be back though so maybe you will run in to each other then.

DeAnn
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

usopen
Posts: 188
Joined: Mon Jul 18, 2011 12:37 pm

Re: E.53rd St. Gang

Postby usopen » Wed Feb 13, 2013 11:37 am

Hi. OMG - I was just sitting on side of him. He just left for that other appt.
I was sort of looking around for a husband / wife .
Oh well. Nice day in NY.
Hope the visit goes extremely well.
joan

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: E.53rd St. Gang

Postby so-scared » Wed Feb 13, 2013 11:41 am

Small world! Well if you see him again you will know who he is. I told him someone from the forum was there so feel free to say 'hello'. So far, mixed results from the scan. I will post more when I know more. I am attending the appointments via speaker phone this time.
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

User avatar
mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: E.53rd St. Gang

Postby mlibertone » Thu Feb 14, 2013 12:01 am

You may have passed my dad and my sister there today too. Not sure. She is darker skinned, short, with dark short hair, heavy set. He wears glasses, is bald from chemo, got a huge smile, about 5'11. This was his first time there.
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

stephenlamb
Posts: 148
Joined: Wed Aug 29, 2012 6:41 am
Location: ohio

Re: E.53rd St. Gang

Postby stephenlamb » Fri Feb 15, 2013 9:43 am

I'll b here for the next two wks if any body is around
Wife age 29 dx 7/5/12 stage 4
Mets liver ovary
Hai pump Feb15 2013 folfiri start
1st stage liver resection Aug 13
2nd stage liver Dec 10 ned just 5fu
3/14 peritoneal met folriri/erb

SaveMyArchie
Posts: 306
Joined: Tue Jan 19, 2010 10:14 pm

Re: E.53rd St. Gang

Postby SaveMyArchie » Tue Feb 26, 2013 5:45 pm

Hey all, I'm in Manhattan tonight, Thursday night and Friday night into Saturday evening (Saturday coffee/lunch?). Get in touch :-) I won't be too far from MSKCC.

Steve
51 @ dx (I'm her son - call me Steve)

8/12: referred for hospice
7/12: significant progression
4/12: Vectibix
11/10: recurrence; XELIRI+Avastin 'forever'
7/10: NED; lingering CIPN
1/10: FOLFOX
12/09 - removed 19cm sigmoid colon/prox rectum; 5/13 nodes

SaveMyArchie
Posts: 306
Joined: Tue Jan 19, 2010 10:14 pm

Re: E.53rd St. Gang

Postby SaveMyArchie » Fri Mar 01, 2013 2:28 am

Come on now, don't be shy! Bev G will corroborate the fact that I don't bite :-)
51 @ dx (I'm her son - call me Steve)

8/12: referred for hospice
7/12: significant progression
4/12: Vectibix
11/10: recurrence; XELIRI+Avastin 'forever'
7/10: NED; lingering CIPN
1/10: FOLFOX
12/09 - removed 19cm sigmoid colon/prox rectum; 5/13 nodes

User avatar
CRguy
Posts: 10476
Joined: Sun Feb 10, 2008 6:00 pm

O/T reply

Postby CRguy » Fri Mar 01, 2013 12:19 pm

SaveMyArchie wrote:Come on now, don't be shy! Bev G will corroborate the fact that I don't bite :-)

That's not what I heard :shock: !!.. :mrgreen: :mrgreen: :mrgreen:

Good to see you here again, Steve. FYI, not ignoring the FB "friending" by fellow CClubbers, it's just that I am pretty much never there and DIS-like FB a lot, so thinking of shutting my account down permanently.

Here is where you will catch me, multiple times, most days.

Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: E.53rd St. Gang

Postby Jack&KatiesMommy » Mon Mar 04, 2013 10:43 am

Anyone around today? I am here for the day....would love to grab lunch, coffee, pizza with someone.
Cynthia
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

usopen
Posts: 188
Joined: Mon Jul 18, 2011 12:37 pm

Re: E.53rd St. Gang

Postby usopen » Mon Mar 04, 2013 12:01 pm

I'm not there today....but wishing you a productive, good visit.

Joan

stephenlamb
Posts: 148
Joined: Wed Aug 29, 2012 6:41 am
Location: ohio

Re: E.53rd St. Gang

Postby stephenlamb » Mon Mar 04, 2013 2:54 pm

Heading there now. If ur still around let us know me and the wife have a 3:30 apt.
Wife age 29 dx 7/5/12 stage 4
Mets liver ovary
Hai pump Feb15 2013 folfiri start
1st stage liver resection Aug 13
2nd stage liver Dec 10 ned just 5fu
3/14 peritoneal met folriri/erb

User avatar
mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: E.53rd St. Gang

Postby mlibertone » Mon Mar 04, 2013 3:48 pm

My dad and sister are out there. Staying at the Miracle house. Probably staying through tomorrow and into Wednesday.
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

SaveMyArchie
Posts: 306
Joined: Tue Jan 19, 2010 10:14 pm

Re: O/T reply

Postby SaveMyArchie » Tue Mar 05, 2013 1:48 pm

CRguy wrote:
SaveMyArchie wrote:Come on now, don't be shy! Bev G will corroborate the fact that I don't bite :-)

That's not what I heard :shock: !!.. :mrgreen: :mrgreen: :mrgreen:

Good to see you here again, Steve. FYI, not ignoring the FB "friending" by fellow CClubbers, it's just that I am pretty much never there and DIS-like FB a lot, so thinking of shutting my account down permanently.

Here is where you will catch me, multiple times, most days.

Cheers and best wishes
CRguy


Haha, alright then. FB is good and bad... I can't decide if I want to shut mine down. I like it for sharing/posting photos but otherwise, it's a bit obnoxious.

mlibertone -- looks like I'll be missing you by a day. For anyone else, I'm eating dinner with two friends at an Indian restaurant within yelling distance of Sloan on 53rd Street this Thursday night. Let me know if you're free between 8 and 11pm...
51 @ dx (I'm her son - call me Steve)

8/12: referred for hospice
7/12: significant progression
4/12: Vectibix
11/10: recurrence; XELIRI+Avastin 'forever'
7/10: NED; lingering CIPN
1/10: FOLFOX
12/09 - removed 19cm sigmoid colon/prox rectum; 5/13 nodes


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