Wanted to share what I believe is good news!

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mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Wanted to share what I believe is good news!

Postby mlibertone » Wed Feb 06, 2013 4:35 pm

Got a great call today. Dad's records have been reviewed. Dr. Kemeny wants to see him! So, seems like next Wednesday we are off to MSK in New York City. My dad is so happy he is crying. We don't know what will happen but it's restored some hope here. Dad was about to start Regorafenib as kind of a last effort but, in the mean time we were trying for Sloan. Words can't express how I feel as dad will be going from being treated at a VA hospital for a year and a half to a top notch, cutting edge cancer center. I just wanted to say thank you to all who pointed me in that direction and encouraged us to keep trying. I hope we're on a good path here!
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

stu

Re: Wanted to share what I believe is good news!

Postby stu » Wed Feb 06, 2013 4:40 pm

Hi, More great news. I hope it creats many successful options for him. What a lovely daughter you are.
Love stu

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: Wanted to share what I believe is good news!

Postby so-scared » Wed Feb 06, 2013 4:46 pm

That is fantastic news!! We will be there Wed too.
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

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mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: Wanted to share what I believe is good news!

Postby mlibertone » Wed Feb 06, 2013 4:55 pm

So scared, my sister will be the one traveling with my dad. I can't as I have a 3yr old and almost 14 yr old I'm here taking care of while my husband works. My dad does live with me though. I hope Dr. Kemeny can do something to help my dad. I don't think she would have said she wanted to see him if she didn't think she could. They just got his records yesterday bc we overnighted them to them and we got the call today. I'm not sure what time his appointment will be for. I'll let you know. Maybe you'll run into each other!
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

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Phuong
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Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Wanted to share what I believe is good news!

Postby Phuong » Wed Feb 06, 2013 5:00 pm

Yahoo! Good luck to your dad.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Wanted to share what I believe is good news!

Postby Maia » Wed Feb 06, 2013 5:32 pm

Your dad will be in some of the best hands! Happy to read this!! : )

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mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: Wanted to share what I believe is good news!

Postby mlibertone » Wed Feb 06, 2013 6:17 pm

Thanks Stu, Phuong and Maia!
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

dianne052506
Posts: 1651
Joined: Sun Nov 02, 2008 11:57 pm
Location: North Carolina

Re: Wanted to share what I believe is good news!

Postby dianne052506 » Wed Feb 06, 2013 6:32 pm

That is very good news! when I logged on, there were three posts in a row with good news. That seldom happens. Need to do that more often.
Dianne
May 06 Stage IV CC: liver,ovarian mets
Oct 07 inoperable lung mets
Feb 08 - Apr'12 chemo
allergic to oxaliplatin, irinotecan
Aug '12-Feb'14 Genentech PD-L1/Avastin trial
Mar '14 -radiation to largest lung nodule
still recovering; looking at trials again

so-scared
Posts: 1059
Joined: Wed Jun 01, 2011 12:53 pm

Re: Wanted to share what I believe is good news!

Postby so-scared » Wed Feb 06, 2013 6:44 pm

Well, regardless of who he is traveling with, I am so happy he is going there! As you know, my husband was/is in the same shoes as your father (except dh has disease outside the liver too) and has a new found hope now. He will have his first scan since starting the FUDR etc while he is out there and that will tell the tale. I sure hope that Dr.K decides that your dad is a good candidate for the pump!! I have everything crossed for him!!
DH 51 yo
dx 5/16/11 stg 4 RC
mets both lobes liver & lung
6/11 chem/rad
FOLFOX 9-12/11
12/11 TME/liver resect/rfa (15 tumors)
more Folfox w/Avastin
5/12 innumerable mets liver
Folfox/Avas FAIL
9/12 FOLFIRI/Erb FAIL
HAI pump 12/12
Had to leave 5/23/14

tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: Wanted to share what I believe is good news!

Postby tammylayne » Wed Feb 06, 2013 6:50 pm

What wonderful news for you and your family! Your new doc has quite the reputation, at least on this board. Sounds like he is in excellent hands, Hope the appointment goes really well!
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."

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mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: Wanted to share what I believe is good news!

Postby mlibertone » Wed Feb 06, 2013 7:34 pm

Thank you Tammy and Dianne! We are excited! Right now we are just trying to figure stuff out so dad can stay out in NY for a day or two. Plus gathering the rest of the info that Dr. Kemeny needs.
So scared, I sent you a private message. Hope to hear from you soon!
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

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abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Re: Wanted to share what I believe is good news!

Postby abuttigi » Wed Feb 06, 2013 7:41 pm

You go girl! I'm rooting for you and your daddy :)

Angie
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

User avatar
mlibertone
Posts: 261
Joined: Wed Nov 02, 2011 12:56 pm
Facebook Username: Michelle Libertone-Cook

Re: Wanted to share what I believe is good news!

Postby mlibertone » Wed Feb 06, 2013 7:44 pm

Thank you Angie! That means so so much! <3
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
4/12/13-hospice
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!

sbrainbolt
Posts: 146
Joined: Mon Oct 08, 2012 1:01 pm
Location: Houston, TX

Re: Wanted to share what I believe is good news!

Postby sbrainbolt » Wed Feb 06, 2013 8:05 pm

This is fabulous. I will be praying for safe travels, great news from his appointment there and peace of mind for you while you wait to hear from he and your sister!
DX 1/12 50 yrs
LAR 2/12 CR 3A T1N1M0
chemo 3/12- 9/10/12 FOLFOX, issues with platelet counts every 4th treatment
CEA normal
CT 3/15 stable lung nods since 1/2012 NED.
SBO kinked small bowel 10/13 - LAPRO surgery to fix
yrly scans now
09/25/2017 - Graduated to the Survivorship Clinic at MDA! Cured!!!

michelle c
Posts: 1885
Joined: Wed Dec 02, 2009 3:58 am

Re: Wanted to share what I believe is good news!

Postby michelle c » Wed Feb 06, 2013 9:32 pm

Awww! That's great news! I will be hoping and praying for you and your dear Dad and that the appointment goes well! Love and best wishes xoxoxo
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair


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