Pinch me! - UPDATE 2-13-13

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Re: Pinch me!

Postby SkiFletch » Wed Feb 06, 2013 11:14 pm

Hells yeah Ashlee! I know you were dreading going back on "weapons grade" chemo. I know you'll enjoy your continued hiatus :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Location: Ireland

Re: Pinch me!

Postby Deirdre » Wed Feb 06, 2013 11:22 pm

I check in every day but rarely post anymore but I simply cannot convey how thrilled I was to read your update. Incredibly happy for you and look forward to continued happy updates.
Just wonderful!
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

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Re: Pinch me!

Postby NWgirl » Thu Feb 07, 2013 12:34 am

Whatever is giving you good results - woohoo!!!!!!! I'm doing the happy dance for you! Okay, I'm envisioning the happy dance, I'm actually very tired and typing a few notes before I call it a day - but what a great way to end the day - reading such great news from you!
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Location: Netherlands

Re: Pinch me!

Postby CheeseHead » Thu Feb 07, 2013 12:54 am

Great news Ashlee!

Happy wiggle here (early morning, still in bed here)!

    10 Stg 4 colon srgry
    12 Xelox/Avast
    05 Liver srgry
    -12 Xelox
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    03-07 Ph I trial
    08-11 Regorafenib

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Location: Pacific NW

Re: Pinch me!

Postby weisssoccermom » Thu Feb 07, 2013 2:01 am

Hey there Ashlee. I saw this earlier but just got around to posting. Sooo loved to read your posts - both of them!! The news is fantastic...keep up the good work. Hey whatever is working is working so keep it up.
As others have said...consider yourself pinched. By the number of 'pinches' you're receiving, you should be a nice colorectal cancer blue by now :D
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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Re: Pinch me!

Postby americangrl » Thu Feb 07, 2013 2:08 am

woo hooooooo!!!!!!!!!!

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Location: Hawaii

Re: Pinch me!

Postby Kathleen808 » Thu Feb 07, 2013 2:50 am

Awesome Ashlee!!!!! You keep rocking it my friend!!!

DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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Kathryn in MN
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Re: Pinch me!

Postby Kathryn in MN » Thu Feb 07, 2013 4:39 am

Yippeee!!!!! Wow, this is fantastic news!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining

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Re: Pinch me!

Postby jean60 » Thu Feb 07, 2013 5:48 am

Simply wonderful news!! So happy for you

Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

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Re: Pinch me!

Postby abuttigi » Thu Feb 07, 2013 6:44 am


Love this!
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfori, Avastin
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

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Location: Brisbane, Australia

Re: Pinch me!

Postby Asterix » Thu Feb 07, 2013 6:48 am

Pinch pinch pinch - I guess you're awake! Great news!
Stage IVb age 37 Nov11
FOLFOX+Avastin, Xeloda+Avastin
1 year NED
regorafenib Oct13-Feb14
lymph node, lung, spine, rib and liver mets
GNAQ Q209P mutation > Mekinist Jul14
Radiation bone mets Aug14
Pain>hospital Oct14
Home Xmas 14

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Re: Pinch me!

Postby pollo65 » Thu Feb 07, 2013 7:48 am

Wow Ashlee that is great news. I think you probably feel the I did when I got my 1st clean scan, remember that I have had three clean scans since---Have decided not to question--- just ENJOY. Truly God's hand.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
chemo break

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Re: Pinch me!

Postby vickitwo » Thu Feb 07, 2013 8:21 am


DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
radiation tx to L5 and hips
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

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Re: Pinch me!

Postby dianetavegia » Thu Feb 07, 2013 9:07 am

That sounds like good news! Hope you hear from your onc early this a.m. to explain those nodes that are not lighting up and give you the good news personally. I really am glad the Metformin is helping you. I don't understand how it works or why, but wondered if it might make someone who has a low normal BS move into the hypoglycemic range.

Ashlee, I know you're a Christian woman and would never mean to sound 'ugly'. Please remember that Fede only wants to help and part of his reason to be so vigilant in searching for answers is that he already lost his Grandfather to colon cancer, his mother to cancer and now is caregiver to his beloved father, who has Stage IV colon cancer. With odds like that, Fede well could be a patient instead of a caregiver any day now.

Truthfully, I've gotten some good advice from SAHM's (too numerous to mention), elementary school teachers (including Lisa42), an accountant (Kimby), College music professors (Justsing), a paper pusher (Clift and his 'term' for his job), an AT&T wireman (Bruins1974), etc. who've walked the path before me and were able to share what did and did not work for them. If only those with fancy letters after their name were to be allowed to share info, we might as well block all posts except for those from the handful of RN's and our Veterinarian.

So, embrace your joy and good news and let go of all else! Enjoy this day that you have been given and be blessed!
Stage III cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage PET = 1.5cm liver met. HR 4/11/12 No chemo

11 years since dx and 7 1/2 years post liver resection.
Pronounced CURED

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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Re: Pinch me!

Postby Badass » Thu Feb 07, 2013 9:18 am

Ashlee, that's fabulous news!
Don't want to pinch you... so clapping you on the back, high-fiving you and jumping up and down! Oh yeah, and many hugs too. :D

R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

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