Pinch me! - UPDATE 2-13-13

Please feel free to read, share your thoughts, your stories and connect with others!
SkiFletch
Posts: 6360
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: Pinch me!

Postby SkiFletch » Wed Feb 06, 2013 11:14 pm

Hells yeah Ashlee! I know you were dreading going back on "weapons grade" chemo. I know you'll enjoy your continued hiatus :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

Deirdre
Posts: 613
Joined: Mon Sep 06, 2010 7:10 am
Location: Ireland

Re: Pinch me!

Postby Deirdre » Wed Feb 06, 2013 11:22 pm

Ashlee
I check in every day but rarely post anymore but I simply cannot convey how thrilled I was to read your update. Incredibly happy for you and look forward to continued happy updates.
Just wonderful!
Dx
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Pinch me!

Postby NWgirl » Thu Feb 07, 2013 12:34 am

Whatever is giving you good results - woohoo!!!!!!! I'm doing the happy dance for you! Okay, I'm envisioning the happy dance, I'm actually very tired and typing a few notes before I call it a day - but what a great way to end the day - reading such great news from you!
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

User avatar
CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: Pinch me!

Postby CheeseHead » Thu Feb 07, 2013 12:54 am

Great news Ashlee!

Happy wiggle here (early morning, still in bed here)!

Cheese
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

weisssoccermom
Posts: 5950
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Pinch me!

Postby weisssoccermom » Thu Feb 07, 2013 2:01 am

Hey there Ashlee. I saw this earlier but just got around to posting. Sooo loved to read your posts - both of them!! The news is fantastic...keep up the good work. Hey whatever is working is working so keep it up.
As others have said...consider yourself pinched. By the number of 'pinches' you're receiving, you should be a nice colorectal cancer blue by now :D
Hugs
Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

americangrl
Posts: 20
Joined: Mon Jul 23, 2012 10:39 pm

Re: Pinch me!

Postby americangrl » Thu Feb 07, 2013 2:08 am

woo hooooooo!!!!!!!!!!

User avatar
Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Pinch me!

Postby Kathleen808 » Thu Feb 07, 2013 2:50 am

Awesome Ashlee!!!!! You keep rocking it my friend!!!

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

User avatar
Kathryn in MN
Posts: 2970
Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: Pinch me!

Postby Kathryn in MN » Thu Feb 07, 2013 4:39 am

Yippeee!!!!! Wow, this is fantastic news!
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

jean60
Posts: 427
Joined: Sun Sep 02, 2012 3:47 pm

Re: Pinch me!

Postby jean60 » Thu Feb 07, 2013 5:48 am

Simply wonderful news!! So happy for you

Jean
Dx Rectal Cncr 5/12
Stage III
5 weeks Chemo (5FU) & Radiation completed
LAR with temporary ileostomy 9/12, complete response
Began FOLFOX 10/12. oxil reduced after tx 1, eliminated after tx 2. Now 5FU.
Finished 1/13
Ileostomy reversal 5/13

User avatar
abuttigi
Posts: 669
Joined: Tue Feb 08, 2011 9:39 am
Location: SE Michigan

Re: Pinch me!

Postby abuttigi » Thu Feb 07, 2013 6:44 am

WOOOOHOOOOOOOOOO!!!!!!

Love this!
Daughter to George (64)
Dx'ed Jan '11 Stage IV CC liver and peritoneum, KRAS mutant
Folfox
Folfori, Avastin
SIRT
Aug '12- progression in liver, mets to lungs
Oct '12- mets to bone, Regorafenib
Nov '12- Hospice
12/10/12- Became my beautiful angel in heaven

Asterix
Posts: 333
Joined: Wed Sep 26, 2012 1:51 am
Location: Brisbane, Australia

Re: Pinch me!

Postby Asterix » Thu Feb 07, 2013 6:48 am

Pinch pinch pinch - I guess you're awake! Great news!
Stage IVb age 37 Nov11
FOLFOX+Avastin, Xeloda+Avastin
1 year NED
regorafenib Oct13-Feb14
lymph node, lung, spine, rib and liver mets
GNAQ Q209P mutation > Mekinist Jul14
Radiation bone mets Aug14
Pain>hospital Oct14
FOLFIRI Nov14 >
Home Xmas 14

User avatar
pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: Pinch me!

Postby pollo65 » Thu Feb 07, 2013 7:48 am

Wow Ashlee that is great news. I think you probably feel the I did when I got my 1st clean scan, remember that I have had three clean scans since---Have decided not to question--- just ENJOY. Truly God's hand.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

vickitwo
Posts: 696
Joined: Thu Apr 26, 2012 9:56 am
Location: USA

Re: Pinch me!

Postby vickitwo » Thu Feb 07, 2013 8:21 am

OH MY GOSH. I AM SO EXCITED FOR YOU. WONDERFUL,WONDERFUL NEWS.
Vicki

DH Dx 1/2012 @ age 52
stage IV CC
transverse colon,omentum, cecum,liver,lungs,L5
9 rounds of Folfox, Avastin,
5FU/Leucovorin/Avastin
radiation tx to L5 and hips
Folfiri/Zaltrap
12/13/13 Folfox/Avastin
1/4/2014 passed away @ Hospice House- age 54

User avatar
dianetavegia
Posts: 2715
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: Pinch me!

Postby dianetavegia » Thu Feb 07, 2013 9:07 am

That sounds like good news! Hope you hear from your onc early this a.m. to explain those nodes that are not lighting up and give you the good news personally. I really am glad the Metformin is helping you. I don't understand how it works or why, but wondered if it might make someone who has a low normal BS move into the hypoglycemic range.

Ashlee, I know you're a Christian woman and would never mean to sound 'ugly'. Please remember that Fede only wants to help and part of his reason to be so vigilant in searching for answers is that he already lost his Grandfather to colon cancer, his mother to cancer and now is caregiver to his beloved father, who has Stage IV colon cancer. With odds like that, Fede well could be a patient instead of a caregiver any day now.

Truthfully, I've gotten some good advice from SAHM's (too numerous to mention), elementary school teachers (including Lisa42), an accountant (Kimby), College music professors (Justsing), a paper pusher (Clift and his 'term' for his job), an AT&T wireman (Bruins1974), etc. who've walked the path before me and were able to share what did and did not work for them. If only those with fancy letters after their name were to be allowed to share info, we might as well block all posts except for those from the handful of RN's and our Veterinarian.

So, embrace your joy and good news and let go of all else! Enjoy this day that you have been given and be blessed!
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. PET = 1.5cm liver met. HR 4/11/12 No chemo

Over 10 years since dx and 7 years post liver resection.
NED since 2012

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

Badass
Posts: 1166
Joined: Sun Jan 15, 2012 11:42 am

Re: Pinch me!

Postby Badass » Thu Feb 07, 2013 9:18 am

Ashlee, that's fabulous news!
Don't want to pinch you... so clapping you on the back, high-fiving you and jumping up and down! Oh yeah, and many hugs too. :D

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 36 guests