Hi All,
Wow...I feel so loved
The past two weeks have been really blurred. Hospice people came out every day for the first week. Then I just saw a nurse and social worker this week.
I'm keeping my spirits up, staying close to home, sleeping a lot, taking a lot of hydrocodone.
My CT scan results of my chest finally came in ... as I suspected, widespread nodules in my lungs. The nurse called me with the results Tuesday morning and said the onc said I could either do chemo or not....(?) I asked, what is his recommendation, and of course they want me to come in to talk to him, which wouldn't be a problem if he weren't an hour and a half away. I guess I am not satisfied with the answer that I can do "This or that"...I just want to be told how it is, what would be better for me, keeping in mind I would rather not take chemo til I die. That being said, I'll probably just keep on hospice and enjoying my time.
I had a heinous allergic reaction to a drug Sunday night and it kept me feeling awful til today, when I finally feel a bit more human.
I'm not ready to die!!! My 18 year old daughter still has not dealt with this and she graduates high school in June...my niece gets married in St. Kitts in June also. Would love to be blessed with those events...but at my stage, four months away is a very long time.
My shortness of breath is getting worse as you would imagine. The oxygen helps a bit I think.
The sun was out today, I had two visitors, I watched Austin Powers and laughed and played with my dog....those simple pleasures are so valuable to me right now!!!
I try not to think about how the outcome might have been different, had I been on chemo all last year....would my mets be less? Would the chemo have weakened me to the point where I succumed quicker? Only God knows these answers. But, I would not have been able to go to LA, Michigan, Georgia, Florida, and the Bahamas; and danced the night away to disco tunes like I did when I was 21.
I'm living, I'm breathing, and God willing, I'll still be doing that for a while to come....
<3