Who are the longest stage 4 survivor's on here?

[dj2158]

Five years and seven months since diagnosis. Currently on Xeloda, Avastin and Celebrex. Last CT/PET scan had no uptake three months ago. Scheduled for another scan next month. Keeping fingers crossed.

[concernedrelative]

Dear dj2158-

Is your Celebrex for RA or did a clinician prescribe it specifically for mCRC? TIA, concerned relative

[dj2158]

I had horrible body aches from my head to my toes so I asked for it. It has completely taken away the aches. However, I did ask, at the beginning of this recurrence, if I could be put on celebrex due to Dr Lin in Washington who has had success with this as part of the regimen. My specialist would not put me on it but once I started having these horrible body aches, she prescribed it for me. I did have good results though, with the xeloda and avastin before that. I am anxious to see if I continue to have a good scan results. My next scan is in May.

[janderson]

What an awesome discussion. This is why I get angry about all of the statistics focusing on 5 year survival. There should be stats. There should be stats for 5, 10, 15 year survival. It just goes to show how outdated statistice are.

BTW I am 7.5 years and NED for the third time. Each time for over a year.

[ams5796]

Diagnosed in January of 2007 at stage 3c and had a recurrence of lung mets in February 2010. I have been NED since June of 2011.




Ann

[Lee]

There was a lady who was already 9 or 10 years living with stage 4 who had a article on line about her journey...I dont remember her name,but I really want to find that article again. She was kind of famous to the CC world,and I may have initially got her name off this board.
I remember she was writing about quality of life , and wanted people to know her truth about the journey of living with stage 4 CC.
Does anyone remember her name?

Was her name Gaelen????

[Bev G]

There was a lady who was already 9 or 10 years living with stage 4 who had a article on line about her journey...I dont remember her name,but I really want to find that article again. She was kind of famous to the CC world,and I may have initially got her name off this board.
I remember she was writing about quality of life , and wanted people to know her truth about the journey of living with stage 4 CC.
Does anyone remember her name?

Hi Mich,

Of course I have no way of knowing, but I wonder if you're thinking about Suzanne Lindley?

Best wishes,

Bev

[Mummabear]

I'd like to hear how many and how long for those who haven't had surgery. My husband is at the 20 month mark - no surgery for Stage 4 RC. he's had to skip the irinotecan since December due to low platelets (lowest was 52) but I put him on papaya leaf extract for the last two weeks and they've risen to 76 but since we are off to London next month, our onc didn't wanted to compromise his immune system any further so he did just Avastin and will stick with Xeloda. Scanxiety this week as well as awaiting his CEA results on Monday. He hit a new low last visit at 11.3. Luckily it's a very good marker for him. Should be interesting to see what that is doing with the lack of the iri.

Cat

I would love to hear the same....my DH is not a surgical candidate either! He isonly doing chemo,tomslow down the cancer and to prolong his life! he had ileostomy, but no other surgery! If you can read through my posts you'll get kind of a background!

[dewife]

You guys are wonderful!!! What an inspiration! My hubby was dx'd in dec of 2009, so we are relatively new to all this, compared to many of you. We are at MDAnderson right now, where he just underwent HIPEC surgery, so hopefully, we'll be around in 10 yrs when someone else asks that question!!

[SoConfused]

We are at MDAnderson right now, where he just underwent HIPEC surgery, so hopefully, we'll be around in 10 yrs when someone else asks that question!!

Wishing you & your hubby all the best ... hope he is recovering well from his hipec.

I am glad that hipec was possible in the presence of a liver met ... your message may offer others awareness about this option - thank you.

[Candyys03]

Diagnosed August 28 2006-6.5 years. Many surgeries.On chemo then a break and then chemo-the whole time.
Candy

[Jimswife]

Suzanne is on my Facebook , if I'm not mistaken she has been living with stage 4 for 14/15 years and is doing very well x

[mich]

Checking in again..husband stage IV will be going on 7 years in a few months (January 2014)
Its been a journey,but not debilitating by any means.
Although he is having issues again and back on chemo we are still very positive.Just want people to know
its not been so bad...until this current round of chemo.

[vancouver eve]

I am 6 and a half years out from DX. Don't know if I am Ned. until I receive scan report.

[dianetavegia]

I'm more of a newbie, too. Dx'd Stage IIIB in Jan. 2009. NED for 3 years and then a tiny liver met removed in April 2012. No chemo after HR and NED again for 18 months now. That's 5 years this coming Jan. 7th. since my original dx.