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Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 12:53 pm
by mich
My husband celebrated his 6 years survival this month:)

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 1:03 pm
by Hapa
That is GREAT! :D


DH-Stage 3 RC

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 2:43 pm
by shmurciakova
That is fantastic mich! I know a woman who was diagnosed just a little bit before I was, maybe a year and she is still surviving. She has never been NED that entire time as far as I know but is going strong and it has been at least 13 years. She just wanted to see her kids graduate from college, and certainly has done that and has recently adopted a foster child that she was taking care of.

I guess for me it is going on 11 years now. Technically when I was diagnosed I was Stage III but they didn't realize I had a liver tumor also, so I was restaged. I guess you start measuring from the day of diagnosis, eh? :D

Here's to many more years for your husband! I look forward to seeing who else posts.

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 2:45 pm
by betsydoglover
Mich - that's great.

I'm coming up on my 8th anniversary (5/23/2013).

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 5:50 pm
by mikew42
I know I am not the longest, but coming up on 9 years (diagnosed Stage 4 January 2004). NED for 6 years, then recurrance and liver resection in January 2011, NED since.

Mike

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 9:19 pm
by Asterix
Love hearing these reports. Thanks guys. Hope to be able to post something similar in 10 years.

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 9:53 pm
by missjv
diagnosed stage 4 -7 1/2 years ago and ned.

missjv

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 10:05 pm
by scottg
6 1/2 years since diagnosis stage 4 peritoneal/ liver ect

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 10:37 pm
by Ron50
Just yesterday i was talking to an old friend in New Zealand. We keep in touch because she is the only other person I know who had 5fu and levamisole as chemo. She has just stared year 20 cancer free and I at st3c 6 nodes have just started yer 16 ca free.. Virginia had a colon resection and a wedge section to remove a liver met,,Ron.

Re: Who are the longest stage 4 survivor's on here?

Posted: Fri Jan 25, 2013 11:38 pm
by Lee
OK, I'm only a stage III C, but this coming April (April/2013), I'm coming up on 9 yrs since diagnoses. In Aug, 2013, 9 yrs since surgery (and some people says that when I became NED 8/04). My first Onc looked at April as my date.

When I was first diagnosed, 9 yrs ago, my stats were 30-60% of being alive in 5 yrs. A lot of progression have been made since then, including chemo and standard protocal. At that time, FOLFOX was only for those with a stage IV cancer diagnoses. It was still considered experimental back in 2004.

Lee

Re: Who are the longest stage 4 survivor's on here?

Posted: Sat Jan 26, 2013 5:13 am
by Jimswife
There's cptmac aka Dorothy she's about 8/9 years ned from stage 4 , Anita she's 7 years . And there's many more who don't come here now but I'm friends with them on Facebook , Vanessa about 6 yrs ned , robin 7 yrs , shaye about 8 years ... There's lots but can't blame then all of the top if my head , these are all stage 4 people too x

Re: Who are the longest stage 4 survivor's on here?

Posted: Sat Jan 26, 2013 5:14 am
by Jimswife
Typo error , name them not blame them

Re: Who are the longest stage 4 survivor's on here?

Posted: Sat Jan 26, 2013 9:36 am
by dianetavegia
SamT doesn't post here anymore but was dx'd Stage IV with over 50 liver tumors in 2005 and is still doing well.
You can do a search for his posts or an internet search on all the papers and patents he has produced in that time. He has a Phd in Chemistry.

I was dx'd Stage IIIB in Jan. 2009 and because a Stage IVa in late Jan. last year. NED after a liver resection on April 11th, 2012 so I am 4 years 24 days out from my original dx.

Re: Who are the longest stage 4 survivor's on here?

Posted: Sat Jan 26, 2013 11:15 am
by ams5796
I was diagnosed exactly six years ago at stage 3c. We found two lung mets in February of 2010 which I had removed via VATS. I have been Ned since then. Just had a scan the other day. All is well!

Re: Who are the longest stage 4 survivor's on here?

Posted: Sat Jan 26, 2013 11:58 am
by BrownBagger
ams5796 wrote:I was diagnosed exactly six years ago at stage 3c. We found two lung mets in February of 2010 which I had removed via VATS. I have been Ned since then. Just had a scan the other day. All is well!


That's great news on the scan! So good to see you posting. As you know, you're one of my inspirations around here.

I'm only about 4 years out from dx, but am looking forward to sprinting across the 5-year mark.