Who are the longest stage 4 survivor's on here?

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Dress In Blue Girl
Posts: 171
Joined: Tue Jan 16, 2007 3:14 am
Location: seattle wash

Re: Who are the longest stage 4 survivor's on here?

Postby Dress In Blue Girl » Thu Mar 05, 2015 11:56 pm

I am still here! feb 3 marked the 10 years from diagnosis!! have never had recurrence that we can see, some little spots in lungs but never grew to small to biopsy they want to cut me loose. no cea rise so......... what to do good problem to have.
anita

IV feb 2005 colon resection,
folfori w/avastin,
Aug 2005 liver resection/rfa to get rid of 8 liver tumors
Sept 2005 folfox w/avastin NED!!!!
avastin till Jan 2007
port out July 2007

Be the change you want to see in the world

dj2158
Posts: 461
Joined: Sun Oct 12, 2008 6:42 pm
Location: New York

Re: Who are the longest stage 4 survivor's on here?

Postby dj2158 » Sun Mar 08, 2015 11:05 am

Stage 4 diagnosed September of 2007. Multiple mets to lungs after multiple VATS surgeries, on Avastin and Xeloda for three years and have minimal disease in one lung. So, it's going on eight years for me.
Donna
Dx 10/'07 age 54 3CC Sigmoid 1/25 nodes lap
Folfox 11/'07-4/'08
Vats Lung 7/'09 met
Vats Lung 7/'10 two mets, Irinotecan/Xeloda 9/'10-2/'11
Lung Resec, 3 1/2 rt ribs 4/'12
10-15 spots both lungs & 1.4cm nodule, 7/'12
xeloda & avastin 9/'12

plastikos
Posts: 330
Joined: Wed Jan 14, 2015 6:09 am

Re: Who are the longest stage 4 survivor's on here?

Postby plastikos » Sun Mar 08, 2015 5:29 pm

Dress In Blue Girl wrote:I am still here! feb 3 marked the 10 years from diagnosis!! have never had recurrence that we can see, some little spots in lungs but never grew to small to biopsy they want to cut me loose. no cea rise so......... what to do good problem to have.

Amazing! Good for you. Hope everybody has the same kind of luck you had.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

Chericarlson
Posts: 1
Joined: Sun Apr 26, 2015 9:19 pm
Facebook Username: Cheri Erickson carlson

Re: Who are the longest stage 4 survivor's on here?

Postby Chericarlson » Sun Apr 26, 2015 9:25 pm

Nine years in October!

Lmsailor
Posts: 1
Joined: Tue Apr 28, 2015 1:16 pm
Facebook Username: Joan lanzarotta

Re: Who are the longest stage 4 survivor's on here?

Postby Lmsailor » Tue Apr 28, 2015 2:27 pm

I would like to know from the long term survivors what they attribute their survival to? Did anyone do anything alternative.

boxofrain
Posts: 33
Joined: Sun Apr 12, 2015 4:58 pm

Re: Who are the longest stage 4 survivor's on here?

Postby boxofrain » Thu May 07, 2015 5:32 am

also, would like to know of those who were treated outside the US.

boxofrain

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Who are the longest stage 4 survivor's on here?

Postby KWT » Thu May 07, 2015 11:15 am

I meet a really nice person who tells me she's been in the fight at st. 4 since 1998

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Frenchie's Wife
Posts: 956
Joined: Sat May 04, 2013 1:01 pm
Location: Alberta, Canada

Re: Who are the longest stage 4 survivor's on here?

Postby Frenchie's Wife » Thu May 07, 2015 11:19 am

5 1/2 years under my belt so far. Things
are touch and go these days. Off
Chemo over a year now. Fingers
crossed.
Caregiver to DH 59 yr, male, Stage IV at Dx
Dx Sept 2009
Liver,bladder mets, 5 surgeries
Lots of chemo
Inoperable lung mets nov 2013
Stopped all treatments in February 2014 due to QOL issues
I am in God's hands now !!
Feb 2015 - too many new mets to count !
At peace July 9, 2017

janderson
Posts: 679
Joined: Tue Mar 27, 2012 11:46 am

Re: Who are the longest stage 4 survivor's on here?

Postby janderson » Thu May 07, 2015 1:20 pm

9 1/2 years since being diagnosed stage IV at diagnosis.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs

Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: Who are the longest stage 4 survivor's on here?

Postby Willow.NZ » Thu May 07, 2015 1:52 pm

So good to hear of you all that are beating this thing - gives so much needed hope....
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

skypup
Posts: 2598
Joined: Mon Dec 17, 2012 12:12 pm

Re: Who are the longest stage 4 survivor's on here?

Postby skypup » Thu May 07, 2015 2:37 pm

Coming up on seven years and that's with only about a year of NED time... 8)

KWT
Posts: 3214
Joined: Thu Jul 11, 2013 7:22 pm

Re: Who are the longest stage 4 survivor's on here?

Postby KWT » Thu May 07, 2015 4:05 pm

You guys are pretty badass. :twisted:

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betsydoglover
Posts: 973
Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: Who are the longest stage 4 survivor's on here?

Postby betsydoglover » Thu May 07, 2015 4:31 pm

When this thread was first posted, I posted that I was allmost 8 years since diagnosis. Now it's 10! It can happen.
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

mich
Posts: 76
Joined: Fri Aug 27, 2010 11:07 pm
Location: Los Angeles

Re: Who are the longest stage 4 survivor's on here?

Postby mich » Tue May 26, 2015 10:46 pm

My husband is going on 8 years and 5 months ....currently he has a met in spine so will be back on the treatment treadmill yet again.
Dh DX 1/07 stg 4 age 48
colon & liver resect
1 yr chem
3yrs NED
6 mnts chem no oxy
6/12 node active
7/12 peri node excised
8/12 Rad & chemo
4/13 Lung met
lobe removed
11/2013 chemo
4/17/2014 Nodes
radiation/ not Erbuitux candidate
Cancer spreads ..starting Stirvarga
Lasted 9 weeks on stir varga
Passed away Nov2015

NIKMAKMOM
Posts: 13
Joined: Tue May 26, 2015 3:38 pm
Contact:

Re: Who are the longest stage 4 survivor's on here?

Postby NIKMAKMOM » Tue May 26, 2015 11:00 pm

So happy and congrats to all of these amazing Stage 4 survivors. I am only 7 months into my battle, but I hope to report many years survival just like you all. If anyone sees this, do any of you with multiple mets to multiple places? I have mets to lung, liver and mediastinal lymph nodes? On chemo indefinitely and unresectable, ugh. Would love to hear from others with similar situations:)
~Always Reaching for the SilverLining~ Elkie :D
Age 48 at Dx Wife/Mom to 2 Kids
Stage IV Colon T4a N2a M1b - Mets Liver, Lung, Mediastinum & Lymph Nodes
DX: 10/2014 - Colon Resection
TX: 11/2014 - Folfox/Avastin 7x (DC allergy tx #7)
Chemo 5FU/Avastin (38 rnds) 7/2016
3x Rads to lung met
Immunotx 6x Opdivo Failed CT 8/2016 Significant Progression
9/2016 Irinotecan+ Vectibix 8x Failed-Skin Issue Current: Ongoing Erbitux +Leucovorn/5FU push
http://www.caringbridge.org/visit/mystagelvcoloncancer


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