Who are the longest stage 4 survivor's on here?

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GreenMonkey
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Re: Who are the longest stage 4 survivor's on here?

Postby GreenMonkey » Tue Feb 04, 2014 5:15 pm

reading each post gives me tremendous hope. I'm towards the end of chemo but I feel defeated and I know I shouldn't be. the unknowns can be so debilitating.

thank you for posting your positives! Shannon
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED
greenmonkeytales.blogspot.com

pfCml73183
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Re: Who are the longest stage 4 survivor's on here?

Postby pfCml73183 » Tue Feb 04, 2014 7:12 pm

Steven,
Congratulations on your good news.
My husband and I were wondering where you got surgery/medical care?
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

stevieb
Posts: 407
Joined: Sat Feb 09, 2013 12:26 am

Re: Who are the longest stage 4 survivor's on here?

Postby stevieb » Thu Feb 06, 2014 1:23 pm

If you are referring to me (Stephen), I had my surgeries at MDA in Houston.
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

pfCml73183
Posts: 653
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Facebook Username: Celeste Marie Comeau
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Re: Who are the longest stage 4 survivor's on here?

Postby pfCml73183 » Mon Feb 10, 2014 12:04 am

It sounds like you are in good hands Stevie. I hope you continue on that road.
Best wishes.
Wife and BF to Peter, 54
mCRC/IV/BRAF+
Erbitux and Urelumab trial @MSKCC 3/15
went home 5/8/15

mich
Posts: 76
Joined: Fri Aug 27, 2010 11:07 pm
Location: Los Angeles

Re: Who are the longest stage 4 survivor's on here?

Postby mich » Thu Jan 22, 2015 7:48 pm

Just checking in to report that my husband is still here its been 8 years since DX of stage 4
...at the present time it is in his chest lymph nodes and its been rough but he is still here! I hope this brings hope to some of the newbies.
Dh DX 1/07 stg 4 age 48
colon & liver resect
1 yr chem
3yrs NED
6 mnts chem no oxy
6/12 node active
7/12 peri node excised
8/12 Rad & chemo
4/13 Lung met
lobe removed
11/2013 chemo
4/17/2014 Nodes
radiation/ not Erbuitux candidate
Cancer spreads ..starting Stirvarga
Lasted 9 weeks on stir varga
Passed away Nov2015

Nik Colon

Re: Who are the longest stage 4 survivor's on here?

Postby Nik Colon » Thu Jan 22, 2015 7:57 pm

Glad to hear so many great success stories, gives me hope!

janderson
Posts: 679
Joined: Tue Mar 27, 2012 11:46 am

Re: Who are the longest stage 4 survivor's on here?

Postby janderson » Fri Jan 23, 2015 10:17 am

9 years, 3 months and still going strong.
DX 10-05 stage IV
liver resection 12-05 Folfox1-05 to 7-06
Liver resection 8-07 Folfiri 9-07 to 3-08
Liver resection 12-11
Recurrence 2/7/2014, liver, chestwall mets, 16 rounds chemo
7/3/14, y90 radioembolization, steady shrinkage
12/8/14, cryoablation to liver and chest wall
6/1 to 6/26 SBRT radio surgery
7/2 more cryo ablation to right lung
7/16 lung infection drain tube installed
9/4 chest wall resection to remove 2 ribs

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Bev G
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Re: Who are the longest stage 4 survivor's on here?

Postby Bev G » Fri Jan 23, 2015 10:31 am

5 years and NED for almost 5 years.

God bless you all.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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pollo65
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Re: Who are the longest stage 4 survivor's on here?

Postby pollo65 » Fri Jan 23, 2015 3:07 pm

Well it is six years and a couple of weeks.
Pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

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exaussie
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Re: Who are the longest stage 4 survivor's on here?

Postby exaussie » Fri Jan 23, 2015 11:00 pm

wow just wow.. So many over the 5 years mark, and still checking in, You guys rock.
DS 26 yrs old diagnosed 6/13 T3N2aM1b
Resection 6/13
6 rounds chemo folfax
12/13 Fissure
hernia surgery 12/13
5 months break
Maintenance chemo 3/14
Crazy growth. Liver failing. Folfox and vectibex 7-29-14
Chemo failure Hospice 8/26
Left us 8/28

annalexandria
Posts: 682
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Location: Seattle, WA

Re: Who are the longest stage 4 survivor's on here?

Postby annalexandria » Fri Jan 23, 2015 11:42 pm

Still here, 5 1/2 years post dx, NED for a hair over three years. Had my final PET scan two weeks ago, and will be doing only blood tests going forward.
Mom, librarian
Dx age 43, Sept. '09, Stage IV Carcinosarcoma of the colon
5 surgeries, 2009-2011:
colon/sm. bowel res., node removal, peritoneum, hysterectomy
FOLFOX/Avastin Feb.'10-Aug '10
Carbo-Taxol Dec. '10-Feb. 2011
NED since Dec. 2011.

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ff970
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Re: Who are the longest stage 4 survivor's on here?

Postby ff970 » Fri Jan 23, 2015 11:49 pm

My wife has been NED for 6 years as of the end of this month.

Diagnosed stage IV (mets to liver & lymph node involvement) in April 2007, wow... 8 years since dx...
Wife dx April/07 at age 28
R/T hemi-col. April/07
Stage IV, liver mets, T3,N2,M1
Folfox, 18 treaments
lymphadenectomy surgery, rt hemi col, liver biopsy Jul/08
Liver resection Sept 9th/08
Back on adjuvent Folfox Oct '08, 23 rounds total
Done chemo Feb 09

missjv
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Location: FLORIDA

Re: Who are the longest stage 4 survivor's on here?

Postby missjv » Sun Jan 25, 2015 5:05 pm

still kicking! 8 1/2 years from stage 4 diagnosis

missjv

JDinNC
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Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: Who are the longest stage 4 survivor's on here?

Postby JDinNC » Sun Jan 25, 2015 6:46 pm

When I was first diagnose....I looked for survival stories of people who had stage 4 and were still living. I couldn't find anything and what I did find....where stories of folks at three or four years and those post were back in 2009 or 2011..
I see a lot of names that have posted some I have never seen before. I'm happy to see that they have taken the time to let us know they are here and doing well. This gives us a lot of hope that we can fight this.

I have my 18 months PET scan next week...and living with the fear that Cancer has returned. But seeing that others have had recurrance and still are beating their disease tells me not to give up.

Thanks to all of you for giving us ...HOPE!!!!
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

jillbugs4110
Posts: 266
Joined: Thu Jul 31, 2014 3:36 pm

Re: Who are the longest stage 4 survivor's on here?

Postby jillbugs4110 » Wed Jan 28, 2015 7:04 pm

scottg wrote:6 1/2 years since diagnosis stage 4 peritoneal/ liver ect



didbyou have surgery? Resections?
Live One Day At A Time
I Abandon myself to God
46 6 yo.....9yo...
stage 1V liver mets :-(
my one prayer to got to sustain me to raise my two babies this is my only wish then take me out if needed.


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