Anyone who has had your port more than 3 years...

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Bev G
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Anyone who has had your port more than 3 years...

Postby Bev G » Wed Jan 09, 2013 9:07 pm

could you let me know how long you have had it, and if you've had any problems with it? Mine is going to have it's 3 year birthday in a couple of days--I want to keep it in forever, once in a while my onc asks me to get it out. I have NO...ZERO peripheral veins. For my PET/CT (where they refuse to use my port :twisted: :twisted: :twisted: ) I now have to go to interventional radiology and basically get a cut down. Anyway, just wondering about the aging of the ports we all have. I don't need to know about all the new-3 year old port, as that ship has already sailed for me---just wondering about the older ones? Thanks a lot!

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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lohidoc
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Joined: Tue Aug 09, 2011 6:37 pm

Re: Anyone who has had your port more than 3 years...

Postby lohidoc » Wed Jan 09, 2013 9:28 pm

If your veins are that bad I'd be inclined to keep the port. Biggest issue is port associated DVT (like I got). Regular flushing, and I strongly suggest low dose aspirin.
"Half of what I know is wrong. I don't know which half."

Age 56
Dx 19/7/11
R. hemicolectomy 25/7/11
IIIc, 7 / 23 nodes,
no mets
Folfox 21/8/11
CT Scan 6/3/12 NED
CT Scan 21/6/12 30+ lung mets, 2 retroperitoneal tumours
marcdu4.wordpress.com

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Phuong
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Re: Anyone who has had your port more than 3 years...

Postby Phuong » Wed Jan 09, 2013 9:54 pm

I was on the old model as well. Kept it in for 5 years with no real problems. I had the initial issue with infection when they put it in, but once that was resolved it was smooth sailing. I actually just had it taken out in November because I moved further away from the cancer center and I wasn't so diligent about going in to have it flushed, so it was a bit more difficult to get proper blood return. I felt like it was time for me to have it taken out, but my onc said that he had a patient keep theirs for over 10 years and that it was fine. Like Lohidoc said, just make sure to keep it flushed.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

hannahw
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Joined: Sat Mar 22, 2008 4:35 pm

Re: Anyone who has had your port more than 3 years...

Postby hannahw » Wed Jan 09, 2013 9:55 pm

My Dad has had his for more than five years. No problems.
Daughter of Dad with Stage IV CC

dianne052506
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Joined: Sun Nov 02, 2008 11:57 pm
Location: North Carolina

Re: Anyone who has had your port more than 3 years...

Postby dianne052506 » Wed Jan 09, 2013 10:10 pm

Port installed June 10, 2006. My live sure hasn't been the same since then, but other than some stiffness the first couple of months, no problems since.
dianne
May 06 Stage IV CC: liver,ovarian mets
Oct 07 inoperable lung mets
Feb 08 - Apr'12 chemo
allergic to oxaliplatin, irinotecan
Aug '12-Feb'14 Genentech PD-L1/Avastin trial
Mar '14 -radiation to largest lung nodule
still recovering; looking at trials again

SkiFletch
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Location: Buffalo, NY

Re: Anyone who has had your port more than 3 years...

Postby SkiFletch » Wed Jan 09, 2013 11:08 pm

Right there with ya Bev. Pretty sure my port gets it's 3-year tomorrow... I love it and will not be the one that lets it go. While I have wonderful veins, I HATE getting an IV. Some form of unrealistic phobia tbh. I only once had a trouble with my port for a CT scan. Had to arch my back for the iodine injection to get it to flow right. Every other time it's been great. I wonder if these thigns have some kind of shelf life on them?
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Rob in PA
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Location: Pennsylvania

Re: Anyone who has had your port more than 3 years...

Postby Rob in PA » Wed Jan 09, 2013 11:28 pm

Mine is 5 years, two months old today! Not a hint of problem With it other than being the old fashioned mediport instead of power port :cry: Can't use it for pet/Ct scan....which irks me.

Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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mstults
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Re: Anyone who has had your port more than 3 years...

Postby mstults » Thu Jan 10, 2013 1:27 am

I have a cousin that has had hers almost 8 years. Without any problems. I've had mine 6 months and am already on the 2nd one.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

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Bev G
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Re: Anyone who has had your port more than 3 years...

Postby Bev G » Thu Jan 10, 2013 8:00 am

lohidoc wrote:If your veins are that bad I'd be inclined to keep the port. Biggest issue is port associated DVT (like I got). Regular flushing, and I strongly suggest low dose aspirin.


I hadn't really thought of the low dose ASA, M. Thank you--well, actually, I've thought of it a million times because of the type 1 dm (for 48 years) but haven't done it--now I will. Really good idea. Best to you, always, every day!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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pollo65
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Location: central valley, calif

Re: Anyone who has had your port more than 3 years...

Postby pollo65 » Thu Jan 10, 2013 11:14 am

I have had mine in for very close to 4 years, I have seldom had a blood return on starting or flushing, have had to put my arm over my head at times to get it to run well but never have the problems that I was told I would have. I have really crummy, itsy bitsy rolling veins so don't really want to give up my port though the onc at Stanford said he would switch to oral chemo if cancer reappears. I just like the safety net that it gives me and really would rather not go through having another put in down the line.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

meeko
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Joined: Thu Dec 18, 2008 7:15 pm
Location: Bellingham, Washington

Re: Anyone who has had your port more than 3 years...

Postby meeko » Thu Jan 10, 2013 12:26 pm

I have had mine 4 yrs this month. great blood return always. get it flushed or used every 3 months. mine isnt a power port its something like a Baard port? have some irritation with it sometimes like itching or if i lay wrong it pulls something and hurts. thinking i would like it out this year sometime but kinda scared to...
rectal cancer 9/08
LAR 10/1/08
2nd surgery for peritonitis and abcess 10/08/08 w/ temp ileo
stage 2A (t3) N0/16 M0
total of 8 rounds of 5fu/Leucovoran-- 5/09
Reversal and Hysterectomy 10/09/09
Married, 2 daughters
So far ..so Good!

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tytiff
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Location: Missouri
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Re: Anyone who has had your port more than 3 years...

Postby tytiff » Thu Jan 10, 2013 3:16 pm

Bev G, Ty has had his port since 09/09 and except for the initial pain of the placement, has had no issues with it. Doc says we can talk about removing it when he's 5 years NED. He'll be NED two years this March. We have it flushed about every six months with no problems so far. Just our two cents. :)

Tiff
Tyler: pt Tiffany: crgvr
St IV
Dx 08/09 Age 41
15/15 rnds cmplt 5FU/Oxi/Avas
End chemo: neck surg
Dad of 3, teens
NED 03/10
3 New tmrs after chemo brk
New chemo 6/10
NED 8/10
3 new tmrs
Xeloda
Rad. 01/11
Clean scan 3/11
NED 6/12 no trtmt 15 mos!
NED 2/14

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: Anyone who has had your port more than 3 years...

Postby lauragb » Thu Jan 10, 2013 3:47 pm

I've just had mine since July 2011 and I plan on keeping it for awhile as long as I don't have issues with it. I had a pneumothorax with insertion and skin rashes at first. After the initial problems, it has functioned very well. With small veins and IV phobia, it makes sense. I just finished up a 16 day hospital stay for a small bowel obstruction with surgical repair.
That port sure came in handy. CT, blood draws, IV access, it was used for everything. I was so glad I still have it.

Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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horizon
Posts: 1545
Joined: Tue Apr 12, 2011 10:10 pm

Re: Anyone who has had your port more than 3 years...

Postby horizon » Thu Jan 10, 2013 10:44 pm

Phuong wrote:I was on the old model as well. Kept it in for 5 years with no real problems. I had the initial issue with infection when they put it in, but once that was resolved it was smooth sailing. I actually just had it taken out in November because I moved further away from the cancer center and I wasn't so diligent about going in to have it flushed, so it was a bit more difficult to get proper blood return. I felt like it was time for me to have it taken out, but my onc said that he had a patient keep theirs for over 10 years and that it was fine. Like Lohidoc said, just make sure to keep it flushed.


Mine doesn't bother me too much but 10 years? Good gravy.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

nicola smith
Posts: 1040
Joined: Thu Oct 07, 2010 9:06 am

Re: Anyone who has had your port more than 3 years...

Postby nicola smith » Fri Jan 11, 2013 9:09 am

I am about 5 months short of 3 years with my port. I have had no issues although I do wonder if the port is linked to frozen shoulder issues that developed about a year ago on the same side of the body as the port.

When I was last at the oncologist, I asked, just casually, what the plans were, if any, to remove the port. They were astounded - 'what do you mean? - do you still have it in!!!'. Erm, yes I do. Mild panic ensued on their part as they explained they thought it had been taken out yonks ago and the hospital practice was, now, not to leave the port in because it is regarded as a foreign object in the body and not a good thing. Hmmm.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D


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