Postby dianne052506 » Tue Jan 08, 2013 1:19 am
When I spoke with Dr. Powderly Thursday, he didn't say "If" the drug goes to Phase I and Phase II trials, he said, "When." I can't say that he believes MPDL3280A is THE cure, but he certainly seems to believe it is helpiing enough people that it is a viable product.
I like what the people in CO told Niki - that there were no side effects. It's hard for me to say if I even have any that are related to the study. I'm tired all the time, but, gee, in the last 67 months, I've had 3 abdominal surgeries, 68 round of chemo, and 100 or so rounds of Avastin - and all this was before starting the study! I dream of new patients being offered a therapy for cancer where the side effects aren't also horrendous.
Gloria, congratulations on getting DH accepted into the trial in Tennessee. I don't know anything at all about the study. Have you started another thread asking questions? I also have found out a lot just Googling PD-1 and Genetech. Perhaps you can find out more just with internet searches. I am pleased that the people there are honest enough to say you can back out and chose another trial if you like. Sounds like they have the patients' best interests at heart.
Niki, I hope one of the studies opens up in perfect time for your DH. Since the single-agent study requires the positive protein test, do you know for certain that there is stored tissue available for testing? I don't guess anyone could be talked into doing the testing in advance of the slot opening.
Dianne
May 06 Stage IV CC: liver,ovarian mets
Oct 07 inoperable lung mets
Feb 08 - Apr'12 chemo
allergic to oxaliplatin, irinotecan
Aug '12-Feb'14 Genentech PD-L1/Avastin trial
Mar '14 -radiation to largest lung nodule
still recovering; looking at trials again