this trial sounds interesting. please post any info you get about this trial, both good and bad. i think it should be noted that I heard that NIH trials pay for all travel expenses. Have you heard this as well? If so that would make this trial more accessible to us.
I have heard they pay travel expenses, too.
I got on the phone with nurse after I sent an email requesting more info.
First, they need to review all records of treatment, scans, etc.
Then, if I pass that, I get a in person consultation.
The next week, if all ok, I get a laparoscopic biopsy of the tumor.
After that, they grow my leukocytes to get this TIL stuff. Then back to NIH for 3 weeks for treatment. There will be some misery. At least 3-4 days after injected with the designer leukocytes, you feel like worlds worst case of flu.
Then weekly visits for follow up. Scan after a couple months. If you are responding, you may get to repeat treatment.
I am gathering up records to mail them to nurse coordinator.
Stage IV, April 2009.
"It is well, with my soul"