Very Happy ! I made it to 5 Years today !

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barbara jayne
Posts: 759
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Very Happy ! I made it to 5 Years today !

Postby barbara jayne » Thu Jan 03, 2013 6:00 am

Hi everyone :)
Just wanted to let you all know (especially newly diagnosed ) that here I am 5 years to the day of my colon cancer surgery.
I still check on here practically every day and post if I can add anything that hasn't been already said, this board has been my life line of help and information, I love it and all the amazing people on here and I miss all the lovely friends that we have lost, they are always in my thoughts.
I feel as if I have come full circle just lately and maybe left parts of me (mentally & physically) along the way :wink:
Life is wonderful again albeit definitely different to my "old" life, I can't quite believe I am here writing about 5 yrs later.
For anyone going through the awful treatment, it does get better eventually, I never anticipated just how long it takes, just keep believing !
I want to say a big thank you to all the close relatives and loved ones in our situation,
I almost think its worse for them sometimes, we the patient feel the pain etc we know how we feel ! but they are always wondering and worrying about us on the sidelines, ( an unenviable position)
I wish you all the best !
Thank you all for the endless sharing !

Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
13 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

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pollo65
Posts: 1564
Joined: Thu May 20, 2010 3:11 pm
Facebook Username: pollo2
Location: central valley, calif

Re: Very Happy ! I made it to 5 Years today !

Postby pollo65 » Thu Jan 03, 2013 7:15 am

Congratulations, what a great milestone :D :D :lol:
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

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cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Very Happy ! I made it to 5 Years today !

Postby cecioboe » Thu Jan 03, 2013 7:24 am

Congratulations on your good health! :mrgreen:
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

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Jimswife
Posts: 907
Joined: Fri Nov 18, 2011 9:53 am

Re: Very Happy ! I made it to 5 Years today !

Postby Jimswife » Thu Jan 03, 2013 8:15 am

I was only thinking about you the other day Barbara thinking it must be coming up your 5 yr anytime now . Excellent news , gives us all so much hope and a big congratulations on being officially CURED !!!!
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Very Happy ! I made it to 5 Years today !

Postby BrownBagger » Thu Jan 03, 2013 9:04 am

Congratulations!
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

JavelinGuy
Posts: 54
Joined: Sun Dec 30, 2012 12:42 pm

Re: Very Happy ! I made it to 5 Years today !

Postby JavelinGuy » Thu Jan 03, 2013 9:46 am

HALLEHUJAH!!! Doing a major happy dance for you!!! :D
JG (and wife CC)
***********************
JG - age 61
diag CRC adenocarcinoma Aug 2012
5 wks Xeloda & radiation
T1N0M0 - Stage 1
Colon resection Dec 2012


PTL and waiting for follow-up appts to see what's next . . .

sbrainbolt
Posts: 146
Joined: Mon Oct 08, 2012 1:01 pm
Location: Houston, TX

Re: Very Happy ! I made it to 5 Years today !

Postby sbrainbolt » Thu Jan 03, 2013 9:54 am

This is fantastic news, not to mention it gives hopes to those of us just begining the post chemo waiting game!

Congratulations!!!!

Susan
DX 1/12 50 yrs
LAR 2/12 CR 3A T1N1M0
chemo 3/12- 9/10/12 FOLFOX, issues with platelet counts every 4th treatment
CEA normal
CT 3/15 stable lung nods since 1/2012 NED.
SBO kinked small bowel 10/13 - LAPRO surgery to fix
yrly scans now
09/25/2017 - Graduated to the Survivorship Clinic at MDA! Cured!!!

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Rob in PA
Posts: 2022
Joined: Wed Dec 09, 2009 9:16 pm
Location: Pennsylvania

Re: Very Happy ! I made it to 5 Years today !

Postby Rob in PA » Thu Jan 03, 2013 10:34 am

That's terrific news Barbara! Please do keep checking in with us!
Rob
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Folfox-8
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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dianetavegia
Posts: 2731
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Very Happy ! I made it to 5 Years today !

Postby dianetavegia » Thu Jan 03, 2013 10:37 am

That's GREAT NEWS!
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

beth568
Posts: 961
Joined: Fri Mar 25, 2011 7:49 am
Location: Boston area, MA

Re: Very Happy ! I made it to 5 Years today !

Postby beth568 » Thu Jan 03, 2013 10:56 am

Congratulations! Wonderful news, and an inspiration for so many of us. :)
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Very Happy ! I made it to 5 Years today !

Postby michelle c » Thu Jan 03, 2013 11:10 am

Congratulations Barbara! Such wonderful news! May you remain NED always!
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

jacekica
Posts: 733
Joined: Sun Aug 05, 2012 12:43 pm
Facebook Username: jasminka marout

Re: Very Happy ! I made it to 5 Years today !

Postby jacekica » Thu Jan 03, 2013 1:02 pm

Barbara Jayne - congratulations! It is something we all hope for ourselves and our love ones. It is so nice when we read this, joy to all of us and hope for reaching 5 zears for many many members of CC
Dx 2/11
surgery 5/11, T2N0MX, G2, SRC rectal ca, 22 cm removed
CT- numerous mets in abdomen - LN, 2 big ones on pancreas, one penetrated right urether. Surgery, they just take samples for PHD, 6 roundds 5FU, refuse further chemos

Peabody5422
Posts: 334
Joined: Fri Dec 09, 2011 10:21 am
Facebook Username: debbie.whitaker

Re: Very Happy ! I made it to 5 Years today !

Postby Peabody5422 » Thu Jan 03, 2013 4:18 pm

Yeah! Your story gives hope! Happy Days
DX: RC 11/11 T1 N1c MX
Surgery: LAR 12/23/11
Rad & Xeloda: 1/12 - 4/12
Clean CT: 4/12
Reoccur: Lymp 4/14 4 new locations. 2 Aortic, 2 locations Rectum
Chemo to start: 6/14, OXI, Advastin, 5FU
10/14: One tumor left - on Avastin only
Surgeries: 4/15, 7/15 and 8/15 :last tumor w/Illeostomy then Ostomy
NED by 7/15 Surgery

Dsod
Posts: 14
Joined: Sat Dec 22, 2012 7:40 am
Location: Manchester UK

Re: Very Happy ! I made it to 5 Years today !

Postby Dsod » Thu Jan 03, 2013 4:50 pm

Congratulations. Your news gives hope to us beginners.

Donal

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: Very Happy ! I made it to 5 Years today !

Postby Maia » Thu Jan 03, 2013 5:19 pm

Congrats, Barbara, and thank you for sharing your happiness!


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