My dad has been being treated by the VA hospital. We recently did a benifit to raise money to pay for health insurance for him bc before this point, he had none. We did it!! Yay! This week dad got accepted by an insurance company so we are now able to find him another place to go other than the VA. We were very pleased. We still are. Today he went online to look up his CEA from his last blood draw 2 weeks ago. It has gone up about 25 points. Ok....I'm freaking out, he's freaking out. I'm scared his cancer is growing again or his meds aren't working. We also found out today after a year and a half of fighting this that his cancer is the mutant type. We are just learning this! I know nothing about mutant. I do know that after the Folfiri plus avastin, our only other hope is the big R, which I also know nothing about. Am I right?? Is there anything else? Can they try other combos? I know I might be premature in my thoughts and what not but, we all know how it goes. We all know how fast things go sometimes. I am just trying to keep on top of things. I am the only person in my family wo researches or tries to find out any and all information I can to help my dad. So, any help or advice would be greatly appreciated here. We did call his current Onc after we looked at the CEA. She said that the jump isn't that big, that she has seen bigger. It doesn't help me to feel better bc I know the last time my dad's CEA rose, his cancer was growing and his meds were no longer working. Anyway, we requested that she recheck his CEA and if it is still on the rise, we have requested at CT scan to find out what is going on. It just seems like we can't catch a break. I just want something to work. I'm scared and I'm sorry for babbling or going on and on. Thank you for any help in advanced. Love to all!
UPDATE IN LAST POST
Last edited by mlibertone
on Wed Dec 26, 2012 9:12 pm, edited 1 time in total.
Michelle, Daughter of Mark
Dad DX: 7/25/11 Kras mutant
Stage IV RC mets to liver
10 rounds of Xelox 8/11-5/12
Xeliri 6/12/12 added Avastin
3/13 radiation, hip met
My beautiful angel 9/16/13 @ 3:23pm
I love you daddy! I'll see you again!