All diagnosed under the age of 50

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sandrichelle
Posts: 396
Joined: Tue Feb 21, 2012 10:31 am
Location: Albany, NY

All diagnosed under the age of 50

Postby sandrichelle » Wed Dec 19, 2012 5:28 pm

Please participate if you are under the age of 50 and recently diagnosed (2012) with Colorectal cancer. I am curious, as it seems to be becoming an epidemic and will likely change the face of cancer in the very near future.

Please post the following:

Date of diagnosis
Stage
Age at diagnosis
Current treatment status

Here is mine

February 2012
Stage IV
34
Currently in second line Folfiri treatment with hopes of HIPEC surgery in Feb

Thanks to all that participate.

Michelle
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com

Cb75
Posts: 1216
Joined: Sun Apr 22, 2012 3:52 pm
Location: Ontario, Canada

Re: All diagnosed under the age of 50

Postby Cb75 » Wed Dec 19, 2012 5:34 pm

Date - April 2012
Stage - iv
Age - 36
Current status - round 7 of folfox, clear scan nov 28/12
39y female Stage IV
diagnosed April 2012
sigmoid resect May 2012
liver resect Aug 2012
Folfox Oct 2012
lungs Sep 2013
R and L laser lung resection Nov 2013/Feb 2014
FOLFIRI and Avastin Apr 2014 ongoing...

debzak
Posts: 424
Joined: Tue Oct 02, 2012 2:58 pm

Re: All diagnosed under the age of 50

Postby debzak » Wed Dec 19, 2012 5:38 pm

Hi,

I here are my stats:

dx stage III rectal cancer on feb 27,2012, 1 week before my 44 birthday
8 rounds 5FU and Oxi from march -june
5 1/2 weeks radiation with Xeloda july-august
august - november 12 week "break"
november 5th LAR with temporay ileostomy (to be reversed in july)
Most likely I will begin 4 rounds (months) of Xeloda in January

Debbi
2/27/12 dx rectal cancer (stage III)
3/6/12 44th B-day
3/19/12 Oxi & 5-FU (8 rounds)
7/9/12 chemo-rad
11/5/12 LAR surgery temp ileo
1/20/13 4 rounds Xeloda
5/13 multiple liver mets
6/4/13 HAI pump at Sloan
KRAS wild & BRAF mutation found :(

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mstults
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Joined: Fri Nov 30, 2012 11:23 am

Re: All diagnosed under the age of 50

Postby mstults » Wed Dec 19, 2012 5:48 pm

I was 50 plus 4 months. Barely missed it.
Male Age 53. Dx CC with numerous liver mets 6/23/12. Colon res 6/24/12. Started folfox 7/24/12. Added avastin 8/27/12. CT 12/27/12 still showing shrink. Took 17 rounds of FOLFOX. Then 5-FU + Avastin. Switched to Irinotecan for 1 yr. CEA rose to >400. Switched to Vectibix 2/18/15. CEA decreasing. Scans show some growth in liver mets. Lung Mets stable to shrinking.

https://www.facebook.com/michael.stults2/about?ref=home_edit_profile&section=work

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elise
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Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: All diagnosed under the age of 50

Postby elise » Wed Dec 19, 2012 5:53 pm

Date of diagnosis: Feb 2012
Stage: 2
Age at diagnosis: 30
Current treatment status: done surgery and 8 rounds of chemo. That should be it. Waiting for scans to indicate NED in Feb 2013!

You may want to also add if people have a genetic predisposition. I do not.
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: All diagnosed under the age of 50

Postby janklo » Wed Dec 19, 2012 6:04 pm

Lauren was diagnosed 2/9/2010
Age 25
Stage 3c
Deceased
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

Grace14
Posts: 417
Joined: Mon Oct 24, 2011 7:42 pm

Re: All diagnosed under the age of 50

Postby Grace14 » Wed Dec 19, 2012 6:22 pm

Diagnosed April 2010
Age 38
Stage 2A
Currently NED
Diag Stage 2a R/C April 2010 at 38
Rad/chemo 6 weeks
Apr surgery July 2010
Folfox 4 months
Jan appendix removed
Feb diag papillary thyroid cancer no treatments stage1
Ned so far!!!
Mother of 4 boys 21 18 11 8

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: All diagnosed under the age of 50

Postby Lee » Wed Dec 19, 2012 6:43 pm

It's been a few yrs for me, but here goes

Diagnosed April 2004
Age 46
Stage IIIC rectal cancer
currently NED

Lee

I should add, the Dr that found my cancer said it was only a matter of time before they drop the age of 50 for screening, as they were seeing an increased in people getting diagnosed with colon cancer under the age of 50
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Kathryn in MN
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Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: All diagnosed under the age of 50

Postby Kathryn in MN » Wed Dec 19, 2012 6:52 pm

This site was started for people diagnosed under age 50. You will find the highest ratio of those dx'd before age 50 right here, compared to anywhere else. If you look at signatures, most of us do have our age at dx, and our staging in our signature. So even if people don't post to your thread, you can still see many dx'd under 50 if you check signatures on any posts you read. There are some people on this site dx'd after age 50 because there is no strict rule, but the original intent was support for those dealing with a bit different situation having CRC before age 50, with issues that many older people don't have - careers and financially in a position they have to work (vs older and likely retired, or at least with more savings and less expenses), young children at home (vs grown children), or worrying about fertility issues because they don't have children yet, or wanted more, etc.

Also, you'll run across a lot of younger people with cancer on the Internet, compared to the "regular" world. The older population is less likely to use the Internet, and even less likely to visit cancer sites even if they do go online.

You are correct about people being diagnosed at younger ages with CRC. While the rate of CRC dx for those over age 50 is actually dropping (due to screening), the rate for those in the 20's, 30's, and 40's is climbing. We are the ones who didn't reach standard screening age yet. Sometimes we should have been screened earlier than age 50 and didn't know it. In my case I did not know that my grandmother died from colon cancer (I was told probably liver, but not certain). I also did not know that both my mother and father had multiple polpys removed at their first screening colonoscopies. Especially since I had one primary cancer before, I should have started screenings earlier, but I did not know that. My husband had 5 polyps removed at his first screening at age 50. His son knows he has to start at age 40. My children know they have to start at age 35. (One son had his first already at age 19 due to symptoms and family history.)

We need to spread the word everywhere we can, that people need to know their family history - if parents had polyps removed before age 60, they need to start screening earlier. If they had relatives with CRC they need to start screening earlier. But they also need to know that cancer plays by no rules. There is no "magic" age to get any cancer. Everyone has to be an advocate for themselves, and if they have any changes in bowel habits, including blood or mucous in stool, thinning of stool, or if they have unexplained abdominal pain or bloating, fatigue, anemia or weight loss, they need to see their doctor. And they need to keep pushing for answers until they get them.

I don't fit your criteria because I was diagnosed before 2012. But I see others who have replied diagnosed other years anyway. I was dx'd at age 47 in 2009 after being misdiagnosed for 2 years. Stage IV.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

JerseyGirl
Posts: 95
Joined: Mon Jan 02, 2012 10:16 am

Re: All diagnosed under the age of 50

Postby JerseyGirl » Wed Dec 19, 2012 6:59 pm

Diagnosed Nov 2011
Age 30
Stage 4 Colon Cancer
Second line of FOLFOX plus Avastin :(
Diagnosed Nov. 11' Stage 4 @ Age 30
9/40 nodes, 3 liver tumors
Colon Resection 12/11
Liver Resection 2/12
FOLFOX + Avastin for 12 rounds
Cancer back a few months after chemo ended:(
Inoperable/Chemo for life
KRAS Mutant and allergic to Irronitican

CindyDee
Posts: 7
Joined: Wed Oct 24, 2012 1:35 pm
Location: Miami, Florida

Re: All diagnosed under the age of 50

Postby CindyDee » Wed Dec 19, 2012 7:02 pm

Cindy
Dx age 35
Stage IV
Liver Ablation, Colon Resection
Starting Chemo in Jan/13
Cindy 35 Yrs old
10/1/12 Dx stage IV CC 4 mets to liver 3/33 nodes
10/8/12 Colon Resection
12/5/12 Liver Mets Ablated
Starting Chemo Jan/2013
"I can do all things through Christ who gives me strength." Philp 4:13

1year

Re: All diagnosed under the age of 50

Postby 1year » Wed Dec 19, 2012 7:46 pm

Age 45
Diagnosis 12/2011
Stage 4 CEA 180
1/2012 colon resection, pancreatic tail resection, partial gastrectomy, splenectomy, temporary colostomy
Folfox 12 rounds, avastin 11 rounds. CEA LESS THAN 0.5. Neulasta approx 9 rounds
9/2012 RFA liver
10/2012 hernia repair, colostomy takedown
11/2012 CEA 1.0
Follow up appt 12/31 plan avastin
OH WHAT A YEAR!

Sandygma

Re: All diagnosed under the age of 50

Postby Sandygma » Wed Dec 19, 2012 8:18 pm

My daughter, my only child:

Age 32
Diagnosed October, 2011, 7 weeks after the birth of her first child
Stage IV, multiple liver mets, CEA 2,800, went up to 6,800 before starting treatment
Folfox for 4 months, then LAR
CEA back up to 3,000 something
Folfiri for 4 months
Theraspheres, right lobe May, left lobe June 2011
CEA crazy after spheres - CEA rising - oncologist sure it was Folfiri failing, stopped treatment, IR and onc said spheres "didn't work," tumors bigger
Went to Cancer Treatment Centers of America - continued Folfiri, added Erbitux and complementary treatments
CEA when last checked was 10.4 (2 wks ago), daughter feels wonderful - "normal" again, gained weight back, optimistic
Will have chemo 1st week in January then no chemo for 4 weeks, then PET scan
Onward and upward!

Sandy

tdeb
Posts: 5
Joined: Wed Jun 06, 2012 6:23 pm
Facebook Username: tdebruler

Re: All diagnosed under the age of 50

Postby tdeb » Wed Dec 19, 2012 8:49 pm

Diagnosed April 2011
Age 35
Stage 2 poorly differentiated and into the bloodstream
Surgery May 2012
8 rounds of Xeloda finished Nov. 16th!
Now playing the waiting game...

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kimmercans
Posts: 364
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Facebook Username: kimschlagel@msn.com

Re: All diagnosed under the age of 50

Postby kimmercans » Wed Dec 19, 2012 9:00 pm

10/12/09
Stage 2 rectal cancer
Age 44
Currently NED
Kimberly Age 54 Diagnosed at 44
Dx'd rectal ca 10/12/09
LAR,TME 10/14/2009 Stage 2a
Opted out of Folfox.
4/19/12 CT scan clear NED CEA<0.5
10/2019 still NED
Taking curcumin, Celebrex, vitamin d, digestive enzymes, bio identical hormone replacement.
2015 to present. Stopped all surveillance. Living life one glorious day at a time.


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