Update on DH. Tired, terrified, shaky

[Bev G]

Hello all,

I posted last week re: husband with stage IV lymphoma and bad PET/CT. We saw our oncologist yesterday, and none of the news was good, at all. Chemo will restart 1/7. Bad, bad chemo. No more working. Chemo schedule is INSANE. Day one: Outpatient 7 hour infusion, day 2 home, day 3, admission for 4 days, day 6 labs, day 7 back to hospital for Neulasta, day 9 see doc, day 13 labs, day 20, labs, day 21, start all over again. This new stuff trashes bone marrow, causes bladder hemorrhage, etc, etc. After two rounds (ie 3rd week in February) they'll re-do PET/CT and if there hasn't been dramatic improvement, they'll stop chemo and we're basically toast. Then, ?? clinical trials. Overall, this has, best case, a 40% chance of working. The cancer is far more widespread than we were told last week. Radiation is not an option. Bone marrow transplant is not an option. And whine, whine, whine, this stage IV girl is running a bit low on energy to deal with this. All I want to do is make my husband's time as stress-free and pleasant as possible. PRAYERS, PLEASE!!!

Love you all,

Bev

[jean60]

Oh, you dear dear lady. I am so sorry this is happening and I am praying for you both.

Jean

[CRguy]

You got 'em Bev, sending lotsa prayers for you both.
CRguy

[Laurettas]

Oh, Bev, that sounds so intimidating and harsh. So sorry for your husband and you to have to go through this. And how ironic in a way. Lymphoma is supposed to be more treatable than stage 4 colon cancer and here you are doing fine but your husband is not responding well to the treatment. We just can't second guess anything with this cancer, can we?

[mymom]

So sorry you are dealing with this. I think you have a son...correct? How is he holding up?

[Mona]

Oh Bev, I am so very sorry. Very difficult time ahead for both of you. I will be holding you both in my prayers.
Big hug.
Maria

[skypup]

Prayers, prayers, prayers and more prayers coming your way! Many weeks of prayers!
And a big hug for you...

[tytiff]

Our prayers are with you, Bev. May peace find you and your chemo weary husband. I am so sorry that you are going through this. Big virtual hugs to you. Keep up your strength as best you can.

Love,
Tiff

[BrownBagger]

Doing the best I can, Bev, to back you guys up. Good luck.

[elise]

Ah Bev, I'm so sorry. Nobody needs news like this. You're both in my good thoughts for the day XOXOXOX

Elise

[Mys]

My prayers for your strength and your husbands health, Bev.

[Badass]

Sending you strength and high hopes! And, of course, lots and lots of hugs.

[KarMel]

If there is anything I can do, prayers or otherwise, I got your back. Always.


XOXO,
Karin

[some]

Bev,

I am so sorry. I wish I could help more, but prayers are definitely on the way for you and your dear husband. I wish the chemo didn't have to be so harsh and pray it works.

Serena

[janklo]

I don't even know what to say. I just wish you both all the patience in the world to get through this period of time. Your DH, as I recall, is not the most patient man. Seems like he will be at the mercy of the medical people for a big chunk of time. I hope he gets nice people to work with on this phase of treatment.