Laurettas wrote: have you looked into metronomic chemo? Or the possibility of Celebrex/Xeloda for maintenance?
Ashlee H. wrote: He knew of a European study where they were getting good results with being able to have longer chemo breaks if you don't go in for the attack at the first sign of cancer growth. And then when you did do the chemo it was just as effective as if you started chemo when the cancer was first visible on the scan. Any European Clubbers hear of this study (no clue what Country did the study)?
Ashlee H. wrote:Saw my ONC today to hear possible options to dealing with these lymph nodes. Because my tests are still good, he is ok with me staying off chemo for another month. He did mention maintenance chemo. In looking at my history - I could be on maintenance chemo for 5 months before having to hit it hard again with FOLFIRI, or I could be off chemo totally for 3 months before the cancer gets active again. Usually, in this whack a mole game, as soon as the numbers creep up, we start back on the full chemo. He suggested, if I was comfortable with it, to kind of wait it out. He knew of a European study where they were getting good results with being able to have longer chemo breaks if you don't go in for the attack at the first sign of cancer growth. And then when you did do the chemo it was just as effective as if you started chemo when the cancer was first visible on the scan. Any European Clubbers hear of this study (no clue what Country did the study)? The thought of being off chemo for 6 months, and then the possibility of knocking it down again made me happy. Some of you know I was considering going off chemo for a few months, then going back on chemo for the same amount of time, then back off chemo. Onc thought this type of pattern would not be good. I asked him about what Kathryn mentioned about chemo being like antibiotics - (I DONT UNDERSTAND ASHLEE, Kathryn mentioned that if you stop antibiotics/chemo for awhile after the a period the resistant will finish ??? or the resistant will continue despite of the rest??? and he said it is true. If you over use the chemo, it will eventually stop working.
I know I won't be cured. PERHAPS, but win time here is buy possibilities... But the appt. today helped me feel better about living with cancer. Letting the cancer grow a bit probably wouldn't be wise for someone who is peppered with cancer. This may be a huge mistake on my part. But, I had pretty much decided to stop chemo due to my quality of life. I plan on using the next few months to get my health back and try to repair some of the damage done by chemo. PERFECT ONE KEY... We are working on... in this period TRY to design a plan to rebuild the immune system without glucose (if it is necessary with bsl inducted controlled, we are woriking on it yet. ADD IT...hiperbaric oxygen therapy... if you want, I can send you the links, despite We have not the plan yet... Who knows, maybe this will work for a few more years. All I know is I couldn't continue with "Chemo for Life" - because for me, that is not a life worth living.
-Ashlee
Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”
Users browsing this forum: No registered users and 98 guests