Postby fourkids » Thu Dec 06, 2012 1:14 am
I got so much from this forum and will continue to give back knowledge wherever I can. I have been on the "bleeding" edge of technology to fight this disease but my wife's cancer was a steam train that would not stop. However, I do know from our journey that things are changing daily and massive advances are on the horizon, just not in time for my wife.
My beautiful wife struggled since feb diagnosis, enduring numerous chemo protocols, suffered cardiac issues and hospitalized a number of times. We met over a decade ago and were married for 10 years. I met her on a bridge in central park, she was taking a photo and then asked me to take one of her. We lived at opposites sides of the globe, but somehow I asked her to marry me after spending 6 days with her ! We now have 4 little kids 7,4 and 20 month old twins. The irony is that before all this happened she was an oncology nurse caring for others. I searched far and wide and continue to think "out of the box", on how I could help her through this. We spent thousands on second opinions, genetic testing, naturopathic medicine and still we couldn't seem to catch a break.
In recognition of all the stories I've read, below is a final update I sent out to some friends and I thought I would share it ....
Under normal circumstances writing updates of our journey, allow us to overcome the grief of setbacks and regroup to focus on the positive. Unfortunately, our circumstances now are far from normal and there is very little to regroup from. There is no easy way to write this news, but my beautiful wife died yesterday, 4th December 2012 at 5pm. She was surrounded by her family and her close friends in the last few days of her life. Thankfully we managed to keep her at home until this morning and all of our children connected with her in some way last night. I’m comforted to know this was the best possible way we could say goodbye.
The previous two months have been extremely difficult. There are a lot of details, which at this stage seem inconsequential given the gravity of the news. On reflection the most important fact is that she fought so hard to be here for the children and myself. Even when the grief from those around her was painfully visible, she selflessly provided comforting words. Through all of her confusion and pain, she still found the ability to interact and engage the children, in a way only she could. Finding ways to see through the “fog” and break out a “funny face” for the twins, or provide a loving smile for the older ones. She was the most amazing person I could have ever hoped to meet and I was blessed to have her in my life.
Thoughts of the future are admittedly overwhelming at this stage, but certain things have become very clear and simple. I believe our children will want and need as much information about their mother as possible in their later years. The majority of this will come through our extended family and as any father would do, I will provide an enduring legacy of their mother’s love for them. Although my heart is heavy, the weight is lightened knowing that everyone around us will help us to collect ourselves and move forward.
Husband of 35 y/o mother of 4 children
Dx 2012 with Stage 4, liver & lung mets
Feb - Folfox, suffered vasospasms
Mar - Irinotecan + avastin (stable disease)
Aug - Oxaliplatin + raltitrexed (didn't work)
Oct - Temozolomide based on genome testing