Reversal Log: Experience,Problems, Q & A's

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mm66ny
Posts: 427
Joined: Mon Jan 18, 2010 11:11 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby mm66ny » Thu Jul 27, 2017 9:05 am

AbbyDoo wrote:All the organs of the body were having a meeting, trying to decide who was in charge.

The brain said: "I should be in charge, because I run all the body's systems, so without me nothing would happen."

"I should be in charge," said the heart, "because I pump the blood and circulate oxygen all over the body, so without me you'd all waste away."

"I should be in charge," said the stomach, "because I process food and give all of you energy."

"I should be in charge," said the rectum, "because I'm responsible for waste removal."

All the other body parts laughed at the rectum and insulted him, so in a huff, he shut down tight. Within a few days, the brain had a terrible headache, the stomach was bloated, and the blood was toxic. Eventually the other organs gave in. They all agreed that the rectum should be the boss.

The moral of the story?

You don't have to be smart or important to be in charge... just an asshole


Yes, and now more than ever, that asshole can be your best friend or your worst enemy.
Dx RC, T3N1M0, Feb. 2009
LAR, Ileostomy June 2009
12 Folfox tx
Ileostomy takedown Jan. 2010
June 2014 five years NED
Age 48
married w/7 children
Generally irresponsible

rtcasper
Posts: 48
Joined: Sat Aug 04, 2018 12:12 pm
Location: Ohio

Re: Reversal Log: Experience,Problems, Q & A's

Postby rtcasper » Sun Jan 13, 2019 9:48 pm

Bump, great thread for those looking into the future
By the glory, by the grace, by the strength of God, I will be made whole.

43-M
Aug 3, 18-colonoscopy, 5cm mass 12cm from AV rectal cancer
Aug 16-MRI
Aug 17-CT,chest and pelvis
CEA-.99-likely not a good marker
Clinical DX-T2/T3n1 -3cm mass, 13.5 from AV-might be colon? - let surgeon make determination
Sept 10-14 radiation
Sept 25-CR lap surgery, temp loop ileostomy
Oct 2-path stage pT1N0M0-no chemo recommended
Jan 8-stoma takedown

Lordswood77
Posts: 39
Joined: Tue Mar 08, 2016 1:30 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby Lordswood77 » Mon Jan 14, 2019 10:39 am

Anyone got any advice to curb flatulence?

Had a few episodes recently and cant put it down to anything specific
4/2013 - Diagnosed with Colon cancer aged 35 (no family history) T1N0M0
8/2013 - LAR with temp Ileostomy
12/2013 - Ileostomy Reversal
09/2014 - Clear CT Scan
01/2016 - PET Scan high probability of reoccurance
01/2016 - VATS right lung
03/2016 - VATS left lug
05/2016 - Start CAPOX regime for 6 months
07/2016 - Clean CT scan next scan October
08/2016 - Clear MRI scan following migraines
10/2016 - Finished Chemo & Clear scan, next scan Jan

lakeswim
Posts: 146
Joined: Sat Mar 31, 2018 9:37 am

Re: Reversal Log: Experience,Problems, Q & A's

Postby lakeswim » Mon Jan 14, 2019 11:33 am

Commenting here to save this thread as, apparently, it's my future.
50 - F
Mom to 2 teens
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18 (8 rounds total chemo - but stopped Oxaly after severe reactions in Round 5 or 6)
Capecetabine + Radiation - 28 sessions (Oct - Nov 2018) (Stopped Cap after 20 days due to intolerance)
Jan 19 - MRI and Flex Sig shows tumor "completely gone"
Indistinct fat plane btwn uterus & rectum - the one thing in the way of a cCR - surgery next :(

mandosquiddy
Posts: 20
Joined: Sat Oct 06, 2018 11:45 am
Location: Colorado
Contact:

Re: Reversal Log: Experience,Problems, Q & A's

Postby mandosquiddy » Mon Jan 14, 2019 7:45 pm

Perfect time for bumping this thread.

I had my reversal on January 3rd. Started having very loose stool about 36 hours after surgery. On the night of the 5th/6th I had severe cramps and it felt like the blockage I had prior to discovering I had cancer in March of 17. However, the next day the cramps subsided and I eventually started having loose stool again. I was released from hospital on the 7th. I continued to have loose stool at home until the 8th or 9th when I started having more solid clustering. At first I was excited to see more solid output but quickly realized what a literal pain in the butt clustering is. I did use baby wipes and diaper cream to achieve some relief. On Friday (11th) I continued to have clustering and I noticed my surgical wound was excreting a decent amount of pus. I sent a pic to my surgeon and he advised me to go to my local ER (this was at end of day and hospital of surgery is over an hour away and it was snowing). ER did a CT scan and doc saw nothing in the scan or in the wound to indicate a problem. It was a somewhat pointless 3 hours at the ER but better safe than sorry. After the ER I came home and my stool was suddenly very loose and I had no control but it did seem to empty me out. Yesterday I had my worst clustering yet. I must have gone between 20-30 times and each time seemed more painful. I eventually took Imodium to hopefully slow things down. It seemed to work. Today was my best day since surgery. This morning I had a light amount of clustering (4 or 5 times to the bathroom) and it seemed to be over by 9 am. I managed to household chores, go for a walk and even make a quick trip to the store.

I know I'm still early in the process and thankful to have some good days but I am concerned about returning to work and how to manage. Physically it's an easy job but I really don't want to have an accident at work. How did others manage? How long did you take off? Do I just need to suck it up and where diapers for a bit while at work? The solid clustering I have so far always made it to the bathroom but the loose stool is a different story.
4/2017 DX: sigmoid colon cancer
colon resection with colostomy
stage II with one positive margin
5/2017 - 11/17 12 rounds of FOLFOX
11/17 - 12/17 Increase in back pain and testicular pain.
CEA increased, CT scan indicated mass on rectal portion of colon
1/18 - 2/18 25 rounds of radiation treatment
5/18 surgery, interoperative radiation, bladder/ureter modification
7/18 normal blood work and CT scan
9/18 increased CEA, mass on outside of small intestine
10/18 Debulking surgery HIPEC skipped bc complications

Caat55
Posts: 563
Joined: Sat Dec 23, 2017 6:01 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby Caat55 » Mon Jan 14, 2019 11:38 pm

I am curious too. It will be about 14 months with the ileo by the time I am reversed. I really am nervous, on the floor with kids most of the day so I certainly won't be able to do that for a while, bathroom is down the hall as its on a school campus. Dr. has me doing prehab, strength, core and dieting prior to surgery. I am not heavy but am happy to lose some weight.
It seems most people are reversed within the first year, true? My skin was so trashed after radiation and chemo I couldn't have wiped, even bidet would have been too much.
S
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018

User avatar
O Stoma Mia
Posts: 1464
Joined: Sat Jun 22, 2013 6:29 am

FAQ: How to bookmark a thread

Postby O Stoma Mia » Wed Jan 16, 2019 12:58 am

lakeswim wrote:Commenting here to save this thread as, apparently, it's my future.

Lakeswim -

You have expressed an interest in saving threads for future access. Here is the direct link to the first post in this particular thread:
https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=38032&p=271257#p271257

Here is another post link that might be of interest:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=53157&p=420069#p420069


For your information, there are several ways for registered users to save thread links for future use. One way is to make use of the Bookmarks Folder in your User Control Panel. (Note: You have to be logged into your account for this to work. If you are just a 'lurker' or a 'browser' here, it won't work because you won't have a User Control Panel with the relevant menu items.)

How do I bookmark a specific topic?
You can bookmark a specific topic by clicking the appropriate link in the “Topic tools” menu, which is conveniently located near the top and bottom of of the topic that you are currently viewing (scroll to the very first or very last post in the thread to see this menu). This menu is the one with the tool (wrench) icon. Once you select this drop-down "Topic tools" menu, you can then select the second option ( "Bookmark topic" ) and this will cause a link to the current topic (thread) to be saved in your Bookmarks folder.

Your Bookmarks folder is located in the Manage Bookmarks link in your User Control Panel:
http://coloncancersupport.colonclub.com/ucp.php?i=ucp_main&mode=bookmarks.
Whenever you access this link you will see all of the topic bookmarks that you have created in the past.


NOTE: The bookmark described above is a Topic Bookmark (i.e., a Thread Bookmark). This kind of bookmark will link to the first post (or the last post) of the thread. It does not link specifically to any particular post within the thread itself. If your objective is to create a link that will open one very specific post, then you have to use a different kind of bookmark -- a Post Bookmark

lakeswim
Posts: 146
Joined: Sat Mar 31, 2018 9:37 am

Re: Reversal Log: Experience,Problems, Q & A's

Postby lakeswim » Wed Jan 16, 2019 5:00 pm

Thank you!
50 - F
Mom to 2 teens
RC - dgns 3/18 at age 49
Adenocarcinoma
10-11 cm frm anal verge ("large")
Stage 3a - T4N0M0
FOLFOX May -Sept '18 (8 rounds total chemo - but stopped Oxaly after severe reactions in Round 5 or 6)
Capecetabine + Radiation - 28 sessions (Oct - Nov 2018) (Stopped Cap after 20 days due to intolerance)
Jan 19 - MRI and Flex Sig shows tumor "completely gone"
Indistinct fat plane btwn uterus & rectum - the one thing in the way of a cCR - surgery next :(


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