Reversal Log: Experience,Problems, Q & A's

Please feel free to read, share your thoughts, your stories and connect with others!
MaryannW
Posts: 65
Joined: Thu Jun 04, 2015 7:32 am

Re: Reversal Log: Experience,Problems, Q & A's

Postby MaryannW » Wed May 25, 2016 9:51 pm

Thanks tammylane for the encouragement. It is a marathon not a sprint and patience is the key. I'm confident I can get to a new and acceptable normal with time. And in between time I'm taking it as easy as I can and not putting too much pressure on myself.
Dx Feb 2015 RC Stage 2a
Pathology stage 1 (post surgery)
5.5 weeks Xelolda + Radiation
ULAR 25.6.2015
6 Rounds mop up Xeloda
Reversal 7 April 2016

Mister Wu
Posts: 64
Joined: Sat Sep 27, 2014 6:08 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby Mister Wu » Sat Jun 18, 2016 7:14 am

Bump

There is a lot of good info in the thread.

Wu
7/14 Mrs. Wu dx rectal cancer T3N0M0
completed CRT 10/29/14
Filter placed in vena cava for clot 1/18/15
Resection and temp ileostomy 1/22/15
2/4/15 path report T2N0M0
6/22/15 flex sig. Reversal 7/24/15 obstructed bowel 9/3/15
11/24/15, 2/23/16, 6/28/16, and 9/20/16 NED

tarheelmom
Posts: 156
Joined: Mon Mar 07, 2016 5:55 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby tarheelmom » Fri Jun 24, 2016 8:20 am

I'm 10 days out from my reversal. At first my BMs were loose, urgent, and uncontrollable. Well I haven't had any BMs for the last 3 days. I don't feel bloated or nauseous; I have been eating; I am passing gas. The MD has recommended I take some Miralax. I was going ~20X/day and now nothing. Can my system really make that abrupt of a transition?
52 y at dx, mom to 4
DX: RC on 2/22/2016
Stage I, T2N0M0, 0/32 LN
23 mm x 7 mm moderately differentiated invasive adenocarcinoma
3 cm from anal verge
4/12/16: ULAR, TME, & temp ileostomy
6/14/16: ileo reversal

Mister Wu
Posts: 64
Joined: Sat Sep 27, 2014 6:08 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby Mister Wu » Sun Jul 17, 2016 12:02 pm

Bump
7/14 Mrs. Wu dx rectal cancer T3N0M0
completed CRT 10/29/14
Filter placed in vena cava for clot 1/18/15
Resection and temp ileostomy 1/22/15
2/4/15 path report T2N0M0
6/22/15 flex sig. Reversal 7/24/15 obstructed bowel 9/3/15
11/24/15, 2/23/16, 6/28/16, and 9/20/16 NED

Mister Wu
Posts: 64
Joined: Sat Sep 27, 2014 6:08 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby Mister Wu » Sun Oct 09, 2016 9:36 am

There is a lot of good info in this.
7/14 Mrs. Wu dx rectal cancer T3N0M0
completed CRT 10/29/14
Filter placed in vena cava for clot 1/18/15
Resection and temp ileostomy 1/22/15
2/4/15 path report T2N0M0
6/22/15 flex sig. Reversal 7/24/15 obstructed bowel 9/3/15
11/24/15, 2/23/16, 6/28/16, and 9/20/16 NED

Mister Wu
Posts: 64
Joined: Sat Sep 27, 2014 6:08 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby Mister Wu » Sun Feb 26, 2017 6:39 am

Bump
7/14 Mrs. Wu dx rectal cancer T3N0M0
completed CRT 10/29/14
Filter placed in vena cava for clot 1/18/15
Resection and temp ileostomy 1/22/15
2/4/15 path report T2N0M0
6/22/15 flex sig. Reversal 7/24/15 obstructed bowel 9/3/15
11/24/15, 2/23/16, 6/28/16, and 9/20/16 NED

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby JudeD59 » Thu Mar 30, 2017 5:53 pm

This hasn't been bumped up in awhile and there is so much good information for members dealing with the aftereffects of a reversal. Hope all my other reversal buddies are doing well.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

justin case
Posts: 4183
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Reversal Log: Experience,Problems, Q & A's

Postby justin case » Sat Apr 01, 2017 2:23 pm

JudeD59 wrote:This hasn't been bumped up in awhile and there is so much good information for members dealing with the aftereffects of a reversal. Hope all my other reversal buddies are doing well.

Judy

Jeez, 5 years, and I can't find a milk dud anywhere! Although it does depend on what I eat .....
:shock: :shock: :shock: :shock:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Reversal Log: Experience,Problems, Q & A's

Postby JudeD59 » Fri Apr 07, 2017 1:49 pm

Bumping this up for TC24!! This is worth reading, TC, as it has a lot of information.
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

justin case
Posts: 4183
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Reversal Log: Experience,Problems, Q & A's

Postby justin case » Mon Apr 17, 2017 7:09 pm

Bump, for miles 66!
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

justin case
Posts: 4183
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Reversal Log: Experience,Problems, Q & A's

Postby justin case » Sun Jul 23, 2017 10:55 am

Bump
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

AbbyDoo
Posts: 127
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: Reversal Log: Experience,Problems, Q & A's

Postby AbbyDoo » Wed Jul 26, 2017 12:14 pm

All the organs of the body were having a meeting, trying to decide who was in charge.

The brain said: "I should be in charge, because I run all the body's systems, so without me nothing would happen."

"I should be in charge," said the heart, "because I pump the blood and circulate oxygen all over the body, so without me you'd all waste away."

"I should be in charge," said the stomach, "because I process food and give all of you energy."

"I should be in charge," said the rectum, "because I'm responsible for waste removal."

All the other body parts laughed at the rectum and insulted him, so in a huff, he shut down tight. Within a few days, the brain had a terrible headache, the stomach was bloated, and the blood was toxic. Eventually the other organs gave in. They all agreed that the rectum should be the boss.

The moral of the story?

You don't have to be smart or important to be in charge... just an asshole
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

ams5796
Posts: 2265
Joined: Fri Feb 06, 2009 10:07 am

Re: Reversal Log: Experience,Problems, Q & A's

Postby ams5796 » Wed Jul 26, 2017 5:00 pm

I love that! It's so true. My rectum is a real pain in the ass and totally runs the show.




Ann :lol:
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

justin case
Posts: 4183
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Reversal Log: Experience,Problems, Q & A's

Postby justin case » Wed Jul 26, 2017 7:27 pm

AbbyDoo wrote:All the organs of the body were having a meeting, trying to decide who was in charge.

The brain said: "I should be in charge, because I run all the body's systems, so without me nothing would happen."

"I should be in charge," said the heart, "because I pump the blood and circulate oxygen all over the body, so without me you'd all waste away."

"I should be in charge," said the stomach, "because I process food and give all of you energy."

"I should be in charge," said the rectum, "because I'm responsible for waste removal."

All the other body parts laughed at the rectum and insulted him, so in a huff, he shut down tight. Within a few days, the brain had a terrible headache, the stomach was bloated, and the blood was toxic. Eventually the other organs gave in. They all agreed that the rectum should be the boss.

The moral of the story?

You don't have to be smart or important to be in charge... just an asshole

OK.. You are now in charge of taking my place, this place needs a person just like you, to keep some balance between worry, and some witty irreverence !
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

[Ana & Alex]
Posts: 77
Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: Reversal Log: Experience,Problems, Q & A's

Postby [Ana & Alex] » Thu Jul 27, 2017 3:57 am

I just laughed out loud for the first time in the last couple of days. Thank you!

:lol:
Dx @ 29 yo. Mum (22. Mo) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d


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