Postby crazymotherof8 » Mon Nov 19, 2012 10:23 am
My hubby is in the same boat as you. Following is an update i recently posted in the "wives" thread. hope it helps or at least gives you something to consider. We don't want to go on the big R either. And Matt is just so tired of chemo. Quality of life is becoming an issue rapidly.
"He recently showed some growth in the both the liver and lungs but nothing new in the bones. The plan from here is to add back in the 5FU, which Matt really hates. Right now he is on Irinotican and Erbitux. Our onc also added Zocor which is a cholesterol lowering medication that in the lab has worked well but no human testing done yet. He told us that he has prescribed this to other CRC patients and has had good results. Matt will do this through the holidays and then sometime in Jan he will rescan and do some type of targeted therapy to the liver; either HAI pump or Sir Spheres and take a chemo break. Matt REALLY needs a chemo break! He is almost at the point of saying he is done. The onc feels that if we can get the liver, which is the most pressing issue right now, under some kind of control, then Matt could take a break. The lungs seem to grow very slowly and all of the tumors there are smaller than a cm. We of course will have to watch the bones, but hopefully if something does pop up again we can radiate again. So that is the plan for now.....we can only take it one day at a time, but Matt does have something to look forward to so that is nice."
Niki
DH Matt - 49 - father to 8
Dx Mar11 w/Mets to liver, lungs Folfox + Avastin Mar 11 - Jul 11
Sept11 Spleen remvd bc low platelets
Oct12 Folfox+Avastin
Mar12 Folfiri+Avastin
Aug12 bone mets; irinotecan+Erbitux
Dec12 chemo failed - trial
passed June 17, 2013