What a horrible, sickening day on the Colon Club today.

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Bev G
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Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

What a horrible, sickening day on the Colon Club today.

Postby Bev G » Mon Nov 05, 2012 3:01 pm

Just.that.

I am wishing everyone peace and love from the bottom of my heart.

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: What a horrible, sickening day on the Colon Club today.

Postby Guinevere » Mon Nov 05, 2012 3:11 pm

I agree, Bev! I was thinking the same thing but also know it's part of being in a group like this. That said, it SUCKS!!
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

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Ashlee H.
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Joined: Fri Oct 09, 2009 11:50 pm
Location: Southern California

Re: What a horrible, sickening day on the Colon Club today.

Postby Ashlee H. » Mon Nov 05, 2012 3:28 pm

I find comfort that we all have the support of each other. Could you imagine going through this without the support? We get it. We cry together and do happy dances together. Some of us get miracles. I wish there were more miracles. I treasure all the friends I have made here. My heart aches missing those that are gone. But the pain would be so much worse if we didn't have each other to lean on.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!

SMR
Posts: 631
Joined: Thu Feb 16, 2012 1:20 pm

Re: What a horrible, sickening day on the Colon Club today.

Postby SMR » Mon Nov 05, 2012 3:30 pm

Couldn't agree more wholeheartedly...
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

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lepperl
Posts: 389
Joined: Fri Jul 13, 2012 10:17 pm
Facebook Username: slep22@gmail.com
Location: ohio

Re: What a horrible, sickening day on the Colon Club today.

Postby lepperl » Mon Nov 05, 2012 3:55 pm

It certainly is a bad day. It seems lately all I do is log on here and cry.
Ashlee- everything you said was right on. I couldn't agree more
Lori
8/11CRC Stage 4 Nodes KRAS+ Signet Cells
10/11xelox
irinotecan
Folfiri,avastin
10/12 xeloda,avastin
"It will be said that she stood in the storm, and when the wind did not blow her way, and surely it had not, she ajusted her sails" Liz Edwards

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TripMama
Posts: 100
Joined: Wed May 18, 2011 10:10 pm
Location: Oregon

Re: What a horrible, sickening day on the Colon Club today.

Postby TripMama » Mon Nov 05, 2012 4:00 pm

Bev,

Agreed. It's so hard to read. I'm glad we're here for each other though. What a life-line this forum has been for me personally.

I'm so grateful to you awesome group of people.

M.
DH Robert, dx 4/29/11, RC, Kras mut, L/L mets; CEA 146.2
4/29/11 5FU
7/11/11 Xeloxi/Avastin
2/17/12 Stopped oxal
4/23/12 Growth of primary and mets
4/25/12 palliative rad
6/20-8/30 half-dose iri only
9/13/12 chemo stopped
10/2/12 Hospice
10/4/12 Passed

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Maia
Posts: 2443
Joined: Fri Aug 24, 2012 8:00 am

Re: What a horrible, sickening day on the Colon Club today.

Postby Maia » Mon Nov 05, 2012 4:04 pm

What a terribly sad day.
I couldn't express it better than how Ashlee has said it -agreed, so agreed, each word.

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Kathryn in MN
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Joined: Mon Sep 14, 2009 12:25 am
Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: What a horrible, sickening day on the Colon Club today.

Postby Kathryn in MN » Mon Nov 05, 2012 4:35 pm

Agreed. I have been very sick and not on my computer for over 1 1/2 weeks, just accessing the Internet a little from my phone (way too hard to do this site on my phone). Today is the first time I've been able to log on here. My heart breaks reading all the losses.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: What a horrible, sickening day on the Colon Club today.

Postby Badass » Mon Nov 05, 2012 4:50 pm

Uh oh- just checking in now. Dread what awaits me. So glad you all are here.
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

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cecioboe
Posts: 597
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Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: What a horrible, sickening day on the Colon Club today.

Postby cecioboe » Mon Nov 05, 2012 4:56 pm

Yes. But I keep checking the board throughout the day in hopes of good news. My heart is aching... Everyone here has helped us tremendously through Jim's battle and without you, we would havebeen lost. I keep praying for good health and good news for all who are in the trenches. And for those unable to climb out of those trenches, I pray for comfort and peace and a gentle remainder of life.
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

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KarMel
Posts: 1523
Joined: Wed Oct 14, 2009 7:48 pm
Facebook Username: Karin Gray
Location: Indiana

Re: What a horrible, sickening day on the Colon Club today.

Postby KarMel » Mon Nov 05, 2012 6:36 pm

Horrible day, yes, I agree.

But I have tears in my eyes, not for all the losses, but at the wonderful, marvelous, supportive, crazy, outlandish, beautiful, funny, intelligent, and loving family we have here. I cant imagine being on this journey without you.

XOXOX
Stage IV, April 2009.
Treatments...multiple .
Currently none
"It is well, with my soul"

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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: What a horrible, sickening day on the Colon Club today.

Postby jgall » Mon Nov 05, 2012 8:52 pm

Nicely said Ashlee and KarMel! I agree, Bev, tough day indeed. In fact...this has been a tough year on the board.

Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia

lauragb
Posts: 899
Joined: Sun Aug 28, 2011 5:25 pm

Re: What a horrible, sickening day on the Colon Club today.

Postby lauragb » Mon Nov 05, 2012 8:55 pm

Yes, a sad day. Seems like these days come in waves of frequency. Hard to take.
Peace to everyone.

Laura
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

boweltumor
Posts: 193
Joined: Wed Jun 17, 2009 9:27 pm

Re: What a horrible, sickening day on the Colon Club today.

Postby boweltumor » Mon Nov 05, 2012 8:56 pm

galean was right. the stats don't lie. this disease kills a lot of people, much more than we want accept

rosa01
Posts: 564
Joined: Sat May 19, 2012 1:24 pm
Location: California

Re: What a horrible, sickening day on the Colon Club today.

Postby rosa01 » Mon Nov 05, 2012 8:58 pm

We have had a hard year so far this year. But are friendships on this board have given me courage and strength to go on. I have learned so much from all of you. Can't tell you how. Much everyone friendship means to me. This is a great place to vent when things aren't. Going very well. Where else can a person swings chickens. Lots of love coming to all my cc members and fa
milies.

Sheila
DX 12/11 DH Stg 4 cc age 60
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?


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