Postby Kathryn in MN » Mon Nov 05, 2012 5:57 pm
I'm glad that hospice is working out so well for Lauren, and that they were able to explain things to her, rather than you having to do it. She has had time to process this for a while - and even if she wasn't talking with you about it, I bet she thought a lot about it before going in for HIPEC - such a serious surgery, and she's been dealing with such a complicated serious situation all along. I don't talk with my family about my death very often - I don't want to sound like I am giving up yet to any of them. So they might not realize that if someone told me I only had a little time left that I'd be prepared. They probably have no idea how much I have thought about it. That is kind of sad that our society doesn't want to talk about death, when it is certain that if we are born, we die. All part of a natural cycle. But if someone with a serious and/or terminal illness talks about dieing, too often people take that as giving up. (Not saying you would - but just that our societal pressures do influence how we handle this as patients - even when we don't want it to.)
I can't imagine what it is like to be the parent. I can't imagine if this were my 23 or 26 year old daughters who are just getting started in life. I am glad it is me and not them. I know what it is like from a patient side only, and worrying mostly about my sons who are still in high school and college.
Lauren sounds a bit like me - being busy getting everything in order is probably helping her with it all. Yet after three years, I still don't have everything done that I feel I need to for when the end is close for me. (That has changed a bit as children have grown up more, etc.) Maybe I've ignored some of it so that I have it to focus on when I need it. I hope Lauren is able to get everything arranged the way she wants it and spend time with family and friends, enjoying the time she has left - able to stay away from the hospital with your help and the help of hospice.