Erbitux seems to be working for me

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Surroundedbylove
Posts: 3126
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: Erbitux seems to be working for me

Postby Surroundedbylove » Thu Sep 06, 2012 7:01 pm

WONDERFUL news Belle - so glad to hear it and I bet you're doing the happy dance. :-)

SBL
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

bob/tami
Posts: 13
Joined: Wed Jul 04, 2012 10:47 pm

Re: Erbitux seems to be working for me

Postby bob/tami » Tue Sep 11, 2012 7:12 pm

Glad to hear the Erbitux is working for you. Its doing a good job for my wife as well. I just wanted to let you know Tami suffered fro mthe rash as well but her dermatologist sitched her to Minocycline and she takes it twice a day. She also has some type of steroid cream she applies and her rash has cleared up amazingly. Her onc had her on Doxy but that he was switching due to her results. Hope it works for other folks as well.

Good Luck,
Bob

scattered edge
Posts: 405
Joined: Sun Jul 31, 2011 6:45 pm
Facebook Username: Rosie Englebert-Elmore

Re: Erbitux seems to be working for me

Postby scattered edge » Tue Sep 11, 2012 10:03 pm

Yay Belle. Now that is "re-loading" You go girl :D

Rosie
resection 2/11/11
T3N2M0 (17/24LN)
joined the IV olympians ..... 7/12 mets to distant nodes
mets to pancreas, liver, spine
chemo for life, panitumumab for now

Dress In Blue Girl
Posts: 171
Joined: Tue Jan 16, 2007 3:14 am
Location: seattle wash

Re: Erbitux seems to be working for me

Postby Dress In Blue Girl » Tue Sep 11, 2012 11:06 pm

Belle,
Great, Great news !!!!!! maybe this will be a new positive trend for you :)
anita

IV feb 2005 colon resection,
folfori w/avastin,
Aug 2005 liver resection/rfa to get rid of 8 liver tumors
Sept 2005 folfox w/avastin NED!!!!
avastin till Jan 2007
port out July 2007

Be the change you want to see in the world

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Kathryn in MN
Posts: 2970
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Facebook Username: Kathryn Finn-Blume
Location: Minnesota & Mexico
Contact:

Re: Erbitux seems to be working for me

Postby Kathryn in MN » Tue Sep 11, 2012 11:13 pm

Fabulous news Belle!

And Erbitux may be back on the table for some KRAS mutant patients too. New studies show that some of the mutations still do well on Erbitux - just not all of them do. So for us mutants, we may still have Erbitux in our arsenal.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

vancouver eve
Posts: 1507
Joined: Fri Jan 18, 2008 3:04 pm
Location: Vancouver

Re: Erbitux seems to be working for me

Postby vancouver eve » Wed Sep 12, 2012 12:10 am

Belle, it is about time you had some good news. Keep up the great results. I am so happy for you.

Georgie
Posts: 421
Joined: Tue Sep 27, 2011 6:39 pm
Facebook Username: Georgie Adams

Re: Erbitux seems to be working for me

Postby Georgie » Wed Sep 12, 2012 5:47 am

Great news! I hope the encouraging results continue.

Georgie
Nuclear Medicine/PET Tech
Stage 3 T4N1M0 Rectal Ca diag 1/11 at age 29
Clinical trial (chemoradiation) 12 wks incl FOLFOX
Surgery 14 June '11
Post op infection
Iliostomy reversal 12 Sept '11
NED 6 years!
2017 Stage II Breast cancer triple positive
BRCA2 mutation
Bilateral mastectomy, chemo, herceptin

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Jack&KatiesMommy
Posts: 640
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Erbitux seems to be working for me

Postby Jack&KatiesMommy » Wed Sep 12, 2012 10:10 am

Belle:
This is really really fantastic news!!!! Wow that kind of drop in CEA is really significant!!!
Cynthia
Mommy to Jack (8) now (18) and Katie (4) now (14)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

FatBob2012
Posts: 198
Joined: Tue Jul 03, 2012 3:41 pm
Facebook Username: arthur.h.baker1
Location: Texas, USA

Re: Erbitux seems to be working for me

Postby FatBob2012 » Wed Sep 12, 2012 10:20 am

Great news...hope it continues to get better quickly for you...Art
Stage IV 5/2012
FOLFOX + Avastin
Liver res 7/2012
Chemo 9/2012
NED 10/2012
CEA @ 5 mets lung&liver 12/13
Liver spot 3.7 x 2.5 cm found January 2014
Cystectomy 2/14
3/14 FOLFIRI 8 treatments
10/14 CEA 3 with stable METS
12/14 CEA 51 :-((


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