Ileus and abdominal infection

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stephh
Posts: 128
Joined: Fri Nov 04, 2011 9:51 pm
Location: Arizona

Ileus and abdominal infection

Postby stephh » Tue Aug 21, 2012 1:19 pm

Hi all-it's been a while since I've posted but think about you all and check in every day.
Just some background...I had HIPEC in december 2011, which was a success but in march mets were found in my vaginal canal...so I had a radical hysterectomy with partial vaginectomy and they removed my rectum to leave me with a colostomy. Following that, they did the hot chemo bath again (HIPEC).
I went home after 3 weeks in the hospital, and was healing decently but was getting low grade fevers and nausea at times. Bowels worked great. Woke up one day feeling crappy nauseous and had fever...and after a few more days I had not had a BM and eventually could not hold anything down :|
I ended going to the ER and was admitted....been here 3weeks now. A scan showed my bowel intercepted itself kind if like folding inside itself-like a telescope.
That resolved but then they saw an abscess near the rectal stump and I had fluid in my pelvic/abdominal area. They drew the fluid and it tested for infection. Anyhow....sorry for all the detail.
I was going to go home yesterday and I got sick multiply times... :( so I have the dreaded NG tube again! :evil:
Not sure what the deal is. Will get a CT today or tomorrow. Had xray last night.
Anyone have issues like this where your bowels mess up often? I'm hoping the docs can fix without surgery as I've been through a lot lately...was still healing from the second HIPEC.
2/9/11 Dx 33 yrs old-Stage IV
3/1/11 LAR-peritoneal met found
4/1/11 5 rds folfox/avastin
6-7/2011 radiation/xeloda
8-9/2011 3 rds folfox
10/12/11 mets-peritoneum
12/19/11 HIPEC
5/4/12-cervical mets
6/8/12-Hysterectomy/liver resection/HIPEC #2

janklo
Posts: 1567
Joined: Wed Mar 03, 2010 11:10 pm
Facebook Username: JanetKlostermann

Re: Ileus and abdominal infection

Postby janklo » Tue Aug 21, 2012 5:18 pm

Poor Steph - 3 weeks in the hospital, that is awful! Hoping you are sprung soon and back to normal.
Mom to 28 yo daughter
colectomy 2/22/10, stage 3C, signet cell
7/2011 peritoneal mets
HIPEC September 2012, difficult recovery
Hospice 10/31/2012, Died 11/16/2012

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KarMel
Posts: 1523
Joined: Wed Oct 14, 2009 7:48 pm
Facebook Username: Karin Gray
Location: Indiana

Re: Ileus and abdominal infection

Postby KarMel » Wed Aug 22, 2012 4:58 pm

I can hardly imagine how rough it has been for you. The saga you have relayed here just sounds miserable. I am glad you have the strength to hang in, in spite of this. Keep us updated..sending many wishes for healing and recovery .

The ileus may be from the rectal abscess. Your body may needs to get that healed before your bowels will work properly again.
Stage IV, April 2009.
Treatments...multiple .
Currently none
"It is well, with my soul"

RixInPhx
Posts: 1904
Joined: Fri Oct 08, 2010 11:53 pm
Location: Phoenix

Re: Ileus and abdominal infection

Postby RixInPhx » Wed Aug 22, 2012 8:47 pm

I've had a few digestion issues, but no surgery or infection.

I can't imagine how bad this is, and I feel so sorry for you.
Sure hope they find the real problem and resolve it soon.

BOL, Rick
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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Cancerislame
Posts: 230
Joined: Tue Sep 20, 2011 11:28 pm
Facebook Username: jennifer shy marrone
Location: San Diego , CA

Re: Ileus and abdominal infection

Postby Cancerislame » Fri Aug 24, 2012 12:13 am

Oh Stephh,

I wish the ng does its job! I hated that thing so much. About 4.5 weeks after my HIPEC I had severe cramping and ended up in the hospital while visiting my bil in Vegas. I ended up having a second surgery. Then a week later my insurance flew us back in a tiny plane. Anyway its been 8 weeks since that surgery and my skin and muscles still hurt. I get worried I will have a blockage all the time. I was told at first to eat a low fiber diet at first and that if I had scar tissue that wanted to get in the way there really wasn't anything preventative we could do. I wish you all the luck...I know kinda what it going through. Ng tube is really really the pits in opinion.
Jennifer
3/11- dx st IV, 5cm colon, 4.5cm Lvr, 1 of 13 LN, perit.sprd@30
4/11-1/12 FOLFOX/ERB.
5/18/12 HIPEC-rt ovary, omtm rmvd.
6/24/12 smll Bwl Obst Srg
8/20/12 Xlda, Mtc. Only
11/13 no chemo
NED5/18/12
Eat vegan/gf, fish occ.-Rd The China study

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Ashlee H.
Posts: 2435
Joined: Fri Oct 09, 2009 11:50 pm
Location: Southern California

Re: Ileus and abdominal infection

Postby Ashlee H. » Fri Aug 24, 2012 12:16 am

So sorry to hear you are going through this. Please keep us updated. You've been through so much, it's time for some good news.
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!

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stephh
Posts: 128
Joined: Fri Nov 04, 2011 9:51 pm
Location: Arizona

Re: Ileus and abdominal infection

Postby stephh » Fri Aug 24, 2012 11:54 am

Thank you guys for your responses. :)
I'm still here in the hospital :roll: so,,,we were going to do surgery to clean up adhesions that keep causing my obstructions... But both the surgeon and I agreed I should give it one more shot at eating and seeing how my bowel reacts-if it cramps up and intercepts again... Lord help me if it does. I'm tired of getting NG tubes down my throat. I've had 2 put down since being here-and they pulled it yesterday, so now it's on to liquid diet again. We'll see! Wish me luck! If I get sick again...it's surgery time. I can't believe I've been here a month. Thank God for the wonderful nurses here at Mayo-they are awesome. I think they may have to name a room after me if I stay any longer :D
2/9/11 Dx 33 yrs old-Stage IV
3/1/11 LAR-peritoneal met found
4/1/11 5 rds folfox/avastin
6-7/2011 radiation/xeloda
8-9/2011 3 rds folfox
10/12/11 mets-peritoneum
12/19/11 HIPEC
5/4/12-cervical mets
6/8/12-Hysterectomy/liver resection/HIPEC #2

jacekica
Posts: 733
Joined: Sun Aug 05, 2012 12:43 pm
Facebook Username: jasminka marout

Re: Ileus and abdominal infection

Postby jacekica » Fri Aug 24, 2012 12:07 pm

Steph, I am so sorry for all this and so long time in hospital (luckily nurses are nice, not such case here). Hope and pray that all go well without surgery, that you bowels works as expected to work. And that you go home and lay in your own bed.
Dx 2/11
surgery 5/11, T2N0MX, G2, SRC rectal ca, 22 cm removed
CT- numerous mets in abdomen - LN, 2 big ones on pancreas, one penetrated right urether. Surgery, they just take samples for PHD, 6 roundds 5FU, refuse further chemos


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