What a time to have neuropathy/WOW its snowing! NOW baking

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prtza
Posts: 405
Joined: Mon Apr 02, 2012 2:47 am

What a time to have neuropathy/WOW its snowing! NOW baking

Postby prtza » Tue Aug 07, 2012 8:44 am

I've finally been in snow. For the first time in my life. First time in decades in Pretoria.

Image
Last edited by prtza on Thu Aug 23, 2012 3:01 am, edited 2 times in total.
DX CRC 2/29/12 Signet Ring Cell @44 YOA
Left hemicolectomy 3/9/12
T4N2M0 Stage IIIc 10/11 LN
April-June 2012 30 treatments chemoradiation
6 cycles XELOX 7/11/12-11/7/12
12/7/12 NED
Recurrence Jan '13
Starting FOLFIRI 2/20/2013

SkiFletch
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Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: What a time to have neuropathy

Postby SkiFletch » Tue Aug 07, 2012 9:54 am

Try being on oxaliplatin through winter in buffalo :). That picture doesn't look too bad. Hope things warm up for you soon
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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prtza
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Re: What a time to have neuropathy

Postby prtza » Tue Aug 07, 2012 9:59 am

SkiFletch wrote:Try being on oxaliplatin through winter in buffalo :). That picture doesn't look too bad. Hope things warm up for you soon


Yeah Ski, I can deal with the snow every 50 years... I think it has all melted already.

My post was more about "WOW it's snowing!"
DX CRC 2/29/12 Signet Ring Cell @44 YOA
Left hemicolectomy 3/9/12
T4N2M0 Stage IIIc 10/11 LN
April-June 2012 30 treatments chemoradiation
6 cycles XELOX 7/11/12-11/7/12
12/7/12 NED
Recurrence Jan '13
Starting FOLFIRI 2/20/2013

Patricia Ann
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Facebook Username: Patti Flaig Stippich
Location: Wisconsin

Re: What a time to have neuropathy/WOW its snowing!

Postby Patricia Ann » Tue Aug 07, 2012 10:19 am

WOW - they said the last time they spotted any snowflakes was in 1959 and 1968 in Pretoria. The kids must have loved it. Sounds like you have beautiful weather most of the year. Pretty picture - Thanks for sharing.

Patti
Age 57 DX 6/07 Stage IIIC RC
Resection 7/07; 8/16 nodes
Folfox, 28 Rad Trtmnts w/5FU pump 24/7
NED 6/08
CT Scan 6/09, 6 mets to lungs Stage IV
Folfiri w/Avastan
Lung surg 2/10
Add'l mets to lung
Xeloda, Avastan & Oxi
Chemo stopped
Cyberknife

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hopeful
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Re: What a time to have neuropathy/WOW its snowing!

Postby hopeful » Tue Aug 07, 2012 10:48 am

What a lovely photo! You could put it on a Christmas card this year. :D
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

Peteswife
Posts: 218
Joined: Sat Jun 27, 2009 2:45 pm

Re: What a time to have neuropathy/WOW its snowing!

Postby Peteswife » Tue Aug 07, 2012 2:31 pm

Hi Prtza,

Was a bad and very cold day in Pretoria today! I live in Centurion and we had snow this afternoon! And then the sun shines through! But it was still 6 degrees celcius on the car's meter.

Ek hoop jou neuropatie word gou beter. By watter hospitaal is jy vir behandeling. My man was by Little Company of Mary in Groenkloof. Sleg om jou hier raak te loop, maar nou voel ek ook tuis.

Groete
Regards
Ilse
Pete's wife
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

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prtza
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Re: What a time to have neuropathy/WOW its snowing!

Postby prtza » Tue Aug 07, 2012 2:53 pm

Peteswife wrote:Hi Prtza,

Was a bad and very cold day in Pretoria today! I live in Centurion and we had snow this afternoon! And then the sun shines through! But it was still 6 degrees celcius on the car's meter.

Ek hoop jou neuropatie word gou beter. By watter hospitaal is jy vir behandeling. My man was by Little Company of Mary in Groenkloof. Sleg om jou hier raak te loop, maar nou voel ek ook tuis.

Groete
Regards
Ilse
Pete's wife


Hallo Ilse,

Ja ek het sneeu vir die eerste keer vandag beleef! Ek is al 'n paar keer oorsee maar ek moes wag vir die sneeu om na my toe te kom, hier in Pretoria. Ek is by Wilgers Onkologie met Dr F. en die dame Dr B. Ek is besig met my tweede siklus Xelox. Ek sukkel hierdie keer meer met naarheid as die vorige keer. Die neuropatie is hanteerbaar. Ek vergeet net soms daarvan en probeer iets koud drink of aan iets koud vat. Hoe gaan dit met julle?

sterkte en groete,
Paul





H
DX CRC 2/29/12 Signet Ring Cell @44 YOA
Left hemicolectomy 3/9/12
T4N2M0 Stage IIIc 10/11 LN
April-June 2012 30 treatments chemoradiation
6 cycles XELOX 7/11/12-11/7/12
12/7/12 NED
Recurrence Jan '13
Starting FOLFIRI 2/20/2013

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prtza
Posts: 405
Joined: Mon Apr 02, 2012 2:47 am

Re: What a time to have neuropathy/WOW its snowing!

Postby prtza » Thu Aug 23, 2012 2:58 am

and now we are in summer! Looks like we skipped spring this year.

The warm ambient temp can only help with the cold sensitivity, after yesterday's Oxi infusion.

I'm wondering now if I will be able to swim next Saturday, being 1 Sept which is spring day here. The pool water will still be "freezing" no doubt but I like to open the swimming season then. Even if it is a case of jumping in and then out immediately!

Forecast temps for Thur thru Sun

(Celsius) 14 deg C = 57 deg F, 30 deg C = 86 deg F
max min
30° 14°
29° 14°
28° 14°
28° 12°

BTW regarding my infusion, we couldn't get my port to work. The previous time we used an infusion pump but yesterday even that didn't work so we ended up using a vein in the arm, which isn't ideal. My forearm is bruised and sore today. I did have a portogram done, and the conclusion is that the catheter is entering the blood vessel at too large an angle and has adhered to the vessel wall (?) . One can inject fluids easily using a syringe but the resistance is too much for the pump apparently.

So. We are probably going to abandon the port and use arm veins for the last three treatments.

PS blood test results from Monday: CEA 1 CA 19-9 11
DX CRC 2/29/12 Signet Ring Cell @44 YOA
Left hemicolectomy 3/9/12
T4N2M0 Stage IIIc 10/11 LN
April-June 2012 30 treatments chemoradiation
6 cycles XELOX 7/11/12-11/7/12
12/7/12 NED
Recurrence Jan '13
Starting FOLFIRI 2/20/2013


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