Final Bill5107 Update (see pg 10)

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Lois7718
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Final Bill5107 Update (see pg 10)

Postby Lois7718 » Fri Aug 03, 2012 8:19 pm

Good evening folks,

Bill asked me to post to let you know how he's doing. He hasn't had the patience to deal with his Nook and is not focused enough to want his laptop at the moment. Monday he was scheduled for chemo but they ended up sending him to the ER for the head rush episodes he'd been having for the last 2 and a half weeks.

Tuesday they did yet another MRI and a lumbar puncture done. (Previous Monday's MRI had shown a mass in the brain membrane but did not look like cancer mets). Apparently the tests were quite an adventure per Bill's usual style. He had warned them that when he laid down it would probably precipitate an episode and he would likely not be able to hear them well but if they just gave him some time to relax he would be okay. Sure enough laying down caused an episode and he closed his eyes to relax and let it ease up. He opened his eyes to find them all in a panic becuase he was "Non Responsive". Unbeknownst to him they had put ear plugs completely blocking out what little bit he could hear! They nearly called of all the tests.

All tests were finished but still no real answers. He's on a heart monitor and they're watching his blood pressure. But it's starting to feel like they will eventually send him home with no real answers. They have been giving him some additional meds which are taking off some of the edge of the headaches that accompany the episodes but there's been no real change in frequency.

I have to say it has been difficult watching him as these episodes have from where I'm sitting (he may disagree) sapped what little energy he has had. I'm wondering how he will handle going back on chemo (he's been off now since early June). It could help or it could completely wipe him out.

So swing some chickens or do what ever you do to send him some good vibes and lift his spirits.
Last edited by Lois7718 on Thu Aug 23, 2012 7:29 am, edited 1 time in total.
Wife of Bill5107
DX 7/10 Stage III

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CRguy
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Re: Bill5107 Update

Postby CRguy » Fri Aug 03, 2012 8:39 pm

Lois,
Thanx for your update...you and Bill are always in my thoughts and prayers.

Chickens shall be swung..."poultry propellers" we like to call them :shock: and let your man know we need to pick a day for an upcoming holiday.
Tell Bill the "Mayor of Weirdsville" ...CRguy, thinks a National Farticus Festival would be a great way to...ummm..."blow off" steam ??? and since Bill is THE Farticus proponent we all love (has the clothing to prove it !), we need his input.

Sending posi+++vibes, best wishes and Harmony

Cheers buddy, let your spirit soar
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

michelle c
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Re: Bill5107 Update

Postby michelle c » Fri Aug 03, 2012 8:45 pm

Hi Lois,

Thank you for taking the time to update us on Bill. Bugger, I'm sorry that Bill is still suffering with these episodes. It must be maddening for him, and you, especially as there is no obvious reason for them. I really hope that he gets some answers soon!

It sounds like he gave them quite a scare :) And what a surprise for Bill too, to see them all in a panic. Never seems to be a dull moment when Bill goes for tests/treatments :)

Please give Bill our love and let him know we're thinking of him. Big hugs to you, too. Hope he gets some relief, and some answers very soon! Hang in there.

Michelle xox
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

ams5796
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Re: Bill5107 Update

Postby ams5796 » Fri Aug 03, 2012 9:03 pm

Lois, Thanks for the update. Send along my best wishes to Bill. I sure hope Bill can get some relief soon.

Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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fritts44
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Re: Bill5107 Update

Postby fritts44 » Fri Aug 03, 2012 9:29 pm

Hi Lois. Thanks for letting us know. I'm sure those episodes are terrifying! I hope he can get his treatments restarted soon & I'll be thinking of you both!
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED

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Kathryn in MN
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Re: Bill5107 Update

Postby Kathryn in MN » Fri Aug 03, 2012 9:51 pm

Thank you for your update. Praying and swinging chickens here.
CRC AUG09 Age 47
Sig Res T4a N2a Mx, KRAS mut codon13
Mets bones & nodes
FOLFOX, FOLFIRI, Avastin, Radiation
Irinotecan, Zaltrap & STAR RFA
APR13 pleurisy & ascites - more chemo & draining
http://www.caringbridge.org/visit/kathrynblume

las
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Location: Houston, TX

Re: Bill5107 Update

Postby las » Fri Aug 03, 2012 10:05 pm

Thanks for the update and I will be praying for the energy to come back so he can continue on treatment. Best wishes to both you and Bill.

Lisa
Lisa
Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall prefor.no removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012

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Phuong
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Re: Bill5107 Update

Postby Phuong » Fri Aug 03, 2012 10:30 pm

Lois, thank you for taking the precious time and energy to update us. I know it's been hard for you and Bill and you both are often in my thoughts and prayers. Please send him our love. CRguy,
National Farticus Festival would be a great way to...ummm..."blow off" steam ???
- fabulous idea!
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Joanne 814
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Re: Bill5107 Update

Postby Joanne 814 » Fri Aug 03, 2012 10:43 pm

Prayers for answers and comfort for Bill. Been too long they haven't been able to get him comfortable. Take care of yourself as well. We know you have a full plate with home and the kids and this roller coaster Bill's health has been on. Thanks to you on behalf of all us patients to our loving unsung heros, our caregivers!! You are awesome, and we couldn't do it without you!!

Onward!! And hoping for a post with improvements and comfort for Bill.

Joanne
Age: 51
Dx: Nov 07 @ age 43
Stage IIIC, RCa
Colon Resection: Nov 07, 4 of 27 LN
Chemo/Radiation: 28 treatments w/constant 5FU (Jan-Feb 08)
Chemo: Folfox, 12 cycles (Mar-Aug 08) DONE 8-8-08
CT Scan 1-09 NED

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live2jett
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Re: Bill5107 Update

Postby live2jett » Fri Aug 03, 2012 10:44 pm

Hi Lois,
Thank you for letting us know how Bill is. I'm so sorry that he has been having a hard time. For Bill not to come tell give us his great story telling adventure's ...I know he is not feeling great. Please tell him I think of him all the time(you too) and continue to swing many chickens your way. Lois i want to thank you for being such a great caregiver to Bill...he loves you all so much from his post to me. We are here for you anytime:)
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

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hopeful
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Re: Bill5107 Update

Postby hopeful » Fri Aug 03, 2012 10:56 pm

Lois, thank you for the update on Bill. Let him know we're all swinging chickens and sending positive thoughts your way. I hope these test give some answers, or if they don't, that the chemo makes things better.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

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Kathleen808
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Re: Bill5107 Update

Postby Kathleen808 » Sat Aug 04, 2012 4:30 am

Lois,
Thank you very much on the update on Bill. He is very loved around here and I know we have been hoping to hear from him.

I'll keep both of you in my prayers. I know you are quite a team.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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sandrichelle
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Location: Albany, NY

Re: Bill5107 Update

Postby sandrichelle » Sat Aug 04, 2012 6:38 am

That has to be so frustrating for your two!

Prayers and positive energy sending your way
Dx Stage IV CC 02/12-56.1 CEA
Resection/Bye Bye Uterus 02/12
Folfox 03/12-08/12
05/01/12 3 TX CEA-6.5
07/23/12 10 TX CEA-5.0
09/18/12 PET shows 3 suspicious spots CEA -15.5
09/25/12 CEA- 23.8
10/23/12 CEA-51.8 1st of 6 FOLOFIRI
http://www.yeswecansir.com

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pollo65
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Re: Bill5107 Update

Postby pollo65 » Sat Aug 04, 2012 7:26 am

Lois, thanks for the update---know you have many other things to do. Got no chickens in the house so swingin a couple chicken sausages will have to do. Keeping you and Bill in my prayers and thoughts.
pollo 65
CC 1/6/09
r. hemi-colectomy 1/7/09
32Ln biopsied, 28 positive
met to aorta
chemo 12 rounds
done 9/09 3 scans clear
1/11 1 met to aorta
micro cluster to peritoneum
4/11 / 9/11 scan clear
4/12 scan clear
10/12 scan clear
Iri+avastin
chemo break

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paula
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Re: Bill5107 Update

Postby paula » Sat Aug 04, 2012 7:30 am

All the best to Bill and you. Thank you for the update.

Strongest thoughts, Paula
3/08 Stage IIIa, colon resection, 12 rounds folfox
5/10 recurrence; right lobe liver metastasis
Hepatic resection 6/10; HAI pump and 6 months folfox/FUDR
Currently NED

The world is unfathomably beautiful today


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