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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Hello, all!

Postby Bev G » Mon Jul 30, 2012 4:39 am

Hi CC:

I have been away in Connecticut and Vermont for the past 10 days. Thanks to all of you who sent messages asking about my well-being. I'm pretty much OK. Same old stuff (mostly the heinous back, but my 2/3 colon was a real treat while I was away, too. NOT) But all in all, it was so nice to be up North. I kept up as much as possible with what was happening to my pals here, and am sad to see the struggles going on for many (worried sick about Rick, and a few other pals).

My husband wanted to see both kids before he went back on chemo for the lymphoma, then, the day before we left he was able to talk our onc into waiting for two months to repeat his PET/CT to see if there has been any improvement in the scan before doing anything chemo-wise. So, we have a short reprieve before anything happens. I fear this has given him a false sense of security, as he is now driven back into total denial and feels he will be working for the next two years, then retiring. Our onc says "no"...but whatever. I simply can't keep being the only one with a reality base around here, and I'm tired of trying, so I'm just going to go with the flow.

So, I've been thinking and praying about all of you in a difficult place, and I'll be back around.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

SMR
Posts: 631
Joined: Thu Feb 16, 2012 1:20 pm

Re: Hello, all!

Postby SMR » Mon Jul 30, 2012 7:22 am

Bev,

Good to "see" you around again. I'm glad that your husband was able to safely delay chemo... But boy doesn't the denial just stink. I deal with in laws who are in total denial of my husbands situation. In fact when he went in for his HIPEC, my MIL kept on saying "well, they are just going in to see IF there is any cancer." anyway, much love and continued strength to you. You are one of my CC heros!
DH DX 10/11 st IV unkown prmry
FFOX 12/11
HIPEC 3/12
FFOX 5/12
7/12 FFIRI
12/12 xeloda
1/13 resection
2/13 FFIRI
4/13 5FU/Avastin
9/13 recurrence, failed surgery
Abdominal fistula
11/13 gemzar, heart attack
12/13 Carbo
2/14 Radiation
3/28/2014 passed

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Hello, all!

Postby BrownBagger » Mon Jul 30, 2012 7:33 am

Welcome back, Bev.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

Natty
Posts: 230
Joined: Sun Jan 31, 2010 2:01 pm

Re: Hello, all!

Postby Natty » Mon Jul 30, 2012 7:44 am

Hey Bev


Nice to see you back..you've been missed




Natty
Bestfriend of 37 year old male
Stage IV
18.5 cm Colon Resection
4/6 Lymph Nodes
Lung Mets
XELOX- 7/04/2010- FINISHED 9/9/2010 (8 rounds)
Radiotherapy/5FU 22/11/2010 - 23/12/2010 (4.5 weeks)
FOLFOX+Avastin (20 rounds)
FOLFIRI+Avastin
July '72 - March 2014

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Guinevere
Posts: 3358
Joined: Tue Oct 11, 2011 4:19 pm
Location: NE TX

Re: Hello, all!

Postby Guinevere » Mon Jul 30, 2012 9:57 am

Welcome back, Bev! I'm so glad you were able to get away for a few days and see your kids. Am still praying for both you and Hubs and hope that when reality crashes for him that he can bear up under the weight. Let God take care of the acceptance (I've had to do this with my DH) and just proceed as best you can.
God bless ~
Guinevere
Hrt atk - Feb 11
CRC4 DX - Apr 11
APR liver rsct, procto - Jul 11
Folfox/Avastin - Sep 11
Xeliri - Nov 11
Iritux - Jun 12
Break - Jan - Mar 13
Iritux - Mar 13
Stivarga - Aug 13
Folfiri - Oct 13
Exhausted treatment options - May 14

RixInPhx
Posts: 1904
Joined: Fri Oct 08, 2010 11:53 pm
Location: Phoenix

Re: Hello, all!

Postby RixInPhx » Mon Jul 30, 2012 11:31 am

So good to ar from you, you have been missed very badly!!
The vacation sounds great, and I assume the weather was fairly cooperative.

Steve will be himself; just be sure to take care of your own medical and emotional needs.

Take care,
-Rick
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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CheeseHead
Posts: 1171
Joined: Sat Jul 31, 2010 2:36 pm
Location: Netherlands

Re: Hello, all!

Postby CheeseHead » Mon Jul 30, 2012 12:37 pm

Welcome back, Bev... And what Rick said.
    2008
    10 Stg 4 colon srgry
    12 Xelox/Avast
    2009
    05 Liver srgry
    -12 Xelox
    2010
    05 Xelox
    08 Iri/Vect
    11 Liver srgry
    2011
    01-05 Iri,Vect,Xeloda
    09 CyberKnife
    2012
    03-07 Ph I trial
    08-11 Regorafenib
    2013-
    Xeloda
    Vecti
    Iri
    Xelox

Peteswife
Posts: 218
Joined: Sat Jun 27, 2009 2:45 pm

Re: Hello, all!

Postby Peteswife » Mon Jul 30, 2012 12:57 pm

Hi dear Bev, I am glad you are back!
I am with you, going with the flow! Mind if I join you!
Lots of love
Ilse
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

justin case
Posts: 4265
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Hello, all!

Postby justin case » Mon Jul 30, 2012 3:15 pm

Hi Bev, missed ya! :wink:
Warm regards, Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

rosa01
Posts: 564
Joined: Sat May 19, 2012 1:24 pm
Location: California

Re: Hello, all!

Postby rosa01 » Mon Jul 30, 2012 4:07 pm

Welcome back Bev we missed you. I know what you mean about husband and one way thinking Bill has it too. He says that they will have to show him he still has this crazy disease. I found there is no way to explain that just because he feels great right now doesn't mean something isn't wrong. He has been loosing weight to the point he looks pencil thin. What I relize is instead of getting upset I too will go with the flow. His doctor says he knows how to handle him. I can't wait top see this one. In 39 years of marriage I have never been able to get throught to him. :)

Sheila
DX 12/11 DH Stg 4 cc age 60
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?

User avatar
edinaman
Posts: 1096
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: Hello, all!

Postby edinaman » Mon Jul 30, 2012 4:50 pm

Bev, I'm glad to see that you are back, and things are back to "normal". I can understand denial-that's how my parents dealt with health issues (and probably life in general).
Jeff
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

Fede

Re: Hello, all!

Postby Fede » Mon Jul 30, 2012 5:34 pm

Hi, Bev

I was thinking in you. I am happy to see you again.

Love.

Fede

SugarBubbie
Posts: 239
Joined: Sun Jun 12, 2011 3:55 pm
Facebook Username: Rhonda Pinkston
Location: Texas

Re: Hello, all!

Postby SugarBubbie » Mon Jul 30, 2012 6:59 pm

glad to see you back here. I've been meaning to tell you I like your pic too.....
DX Stage II anal cancer 2007 age 57
Radiation 6 weeks, Xeloda/oxilaplatin
DX Breast cancer Jun 2011 Stage3 one lymph nodes
Taxol 12 weeks FAC 4 tx, 31 radiations
5 year survivor certificate from MDA 2012 for anal cancer
DX triple neg bc oct 2015 4 rounds adriamyicyn, 20 radiations
"Positivity has no downside"

SaveMyArchie
Posts: 306
Joined: Tue Jan 19, 2010 10:14 pm

Re: Hello, all!

Postby SaveMyArchie » Mon Jul 30, 2012 11:18 pm

Hi Bev, welcome back. Sounds like the northeast was covered between you and me -- I was in NH/MA and you were in CT/VT, how strange! Glad to have you back and be back.
51 @ dx (I'm her son - call me Steve)

8/12: referred for hospice
7/12: significant progression
4/12: Vectibix
11/10: recurrence; XELIRI+Avastin 'forever'
7/10: NED; lingering CIPN
1/10: FOLFOX
12/09 - removed 19cm sigmoid colon/prox rectum; 5/13 nodes

michelle c
Posts: 1898
Joined: Wed Dec 02, 2009 3:58 am

Re: Hello, all!

Postby michelle c » Tue Jul 31, 2012 5:06 am

Hi Bev,

Welcome back! I bet it was nice to get away! Sometimes it's just nice to be in different surroundings for a change.

I think it's probably best just to let your hubby be himself. I guess we all deal with things differently, and like you said, just go with the flow. I'm glad he's got you to look out for him, and I bet he's glad too! You are a strong person, Bev!

Love and very best wishes,

Michelle xox
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair


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