very end......

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las
Posts: 758
Joined: Wed Jul 20, 2011 3:43 pm
Location: Houston, TX

very end......

Postby las » Mon Jul 23, 2012 4:59 pm

I am so devestated, Kevin had a follow up appointment today to see about starting chemo tomorrow and was told that doing chemo was not a good idea, they gave him 2wks to 2 months to live.... :cry: :cry: :cry: They said it is his choice, but if he does chemo he could be down and never recover from it. His liver enzyems are up and I don't know the number as I was not there, his mother and brother took him today as I didn't think we would hear this news, I thought we would hear ok chemo tomorrow. The oncologist we saw at the other MD Anderson location last week was ok with chemo this week, so i don't know what to think. I have not spoken to Kevin yet, as I am still at work. My work doesn't have a FMLA policy as it is a small company only 20 of us here. They have in the policy 1 wk off for the death of a spouse. I have so much to think about as I have to be able to support myself and its hard to find a job in the mortgage industry anyway. His mother said she would pay my bills for awhile, but I can't rely on that. It took me a year to find this job.

We don't even have the option for clinicals as any chemo will not be good they told us.

I am so upset beyond belief.....

Lisa
Lisa
Fiance DX 6/27/11 CC IV w/liver mets,adrenal glnd,pet.
7/25/11 folfox
8/2/11 surg.colon wall prefor.no removal of tumor
8/24/11 folfox ,3/12 5FU, 5/12 irinitecan failed, 7/12 didn't qualify regronfenib
8/13/12 Hospice, 8/18/12 married, died 9/10/2012
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pmterra
Posts: 599
Joined: Fri Jul 01, 2011 6:12 pm

Re: very end......

Postby pmterra » Mon Jul 23, 2012 5:35 pm

Lisa, I am so very sorry to hear your news. I cannot even begin to understand your anguish and sadness. It must have been devastating to hear the news second hand and while you were at work. You will know in your heart what you need to do. Give yourself sometime to let this all sink in, gather all the facts and your decision will be made easier. My heart hurts for you both. I am here if you need to "talk", always. My prayers and love are with you. I wish there was a way to make this all go away.
Love & hugs, Paula
caregiver to survivor husband
Stage 3C - Colon
surgery June, 2008
6 mo. chemo/FOLFOX & Avastin
June 2015 - 7 year survivor :)
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NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: very end......

Postby NWgirl » Mon Jul 23, 2012 5:45 pm

I'm so sorry. It makes it so much harder trying to balance your time with Kevin and keeping a roof over your head in the process. My heart goes out to you.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model
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esk2poo
Posts: 499
Joined: Sat Dec 17, 2011 7:17 am
Location: New Jersey

Re: very end......

Postby esk2poo » Mon Jul 23, 2012 5:48 pm

Lisa,
This is so horrible. Please try to enjoy every moment you have together and don't let this damned disease take an kre from you. I pray Kevin is without pain and has peace. So sorry to hear this.
God bless,
Allen
Dx 8/23/11 stage 3b crc
3 of 11 LN's
resection 9/15/11
folfox start 10/31/11 12 sessions
De-ported 6/2012
clear CT 7/2012
Clear colonoscopy 9/2012
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ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: very end......

Postby ams5796 » Mon Jul 23, 2012 6:08 pm

Lisa, I am very very sorry to hear this news. I wish you and Kevin, peace.


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met
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Je9616
Posts: 220
Joined: Wed Aug 25, 2010 3:44 pm
Facebook Username: jennifer.edgerton

Re: very end......

Postby Je9616 » Mon Jul 23, 2012 6:31 pm

Lisa
I am so sorry for that news, I hope you and Kevin spend as much time together as possible. My heart aches in hearing this news.
Jennifer
STAGE IV with lung mets
dx 04/28/2010
4/18/2012 bone met on rib cage
06/11/2012-started clinical trial with sofraneib
10/2012 stopped trial- stopped working
11/2012- 5 FU
01/2013-tumors growing stopped 5FU
02/21/2013- starting Vectibix
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Seriously, WTF?
Posts: 602
Joined: Wed Nov 17, 2010 10:48 pm

Re: very end......

Postby Seriously, WTF? » Mon Jul 23, 2012 7:54 pm

Omg! Wtf!!! My heart is breaking for you!! Xoxo i send you so much strength to help you! Be strong my friend! :-(
ALWAYS IN MY HEART!
5/7/2013
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Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: very end......

Postby Laurettas » Mon Jul 23, 2012 8:27 pm

Lisa, I am so very sorry to hear this news. I feel that we have been traveling this path together and know that we are one small half-step behind you.

I have the same fears as you about being secure financially since the economy has robbed us of the stability of our retirement. I have never worked so have no idea what I will do to supplement our income--which is no longer enough to live on.

Can you talk with the doctor at MD Anderson and get his or her opinion about what your local onc says? It is just so frustrating that colon cancer patients have so few options.

I hope that Kevin can regain strength for awhile so that you can enjoy the time that you have together. This DAMN CANCER! It just makes me so angry sometimes.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace
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michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: very end......

Postby michelle c » Mon Jul 23, 2012 8:41 pm

I'm so sorry, what a shock for you! My strongest thoughts to you both.
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair
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waw4
Posts: 847
Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: very end......

Postby waw4 » Mon Jul 23, 2012 8:53 pm

So sorry Lisa. This disease can be so cruel!
Bill's Colonoscopy 6/29/10; Dx Stage I or II
Surgery 7/15/10; Dx Stage III,15/32 lymph nodes
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
2021 dx MSH6 Lynch Syndrome positive
(as are my brother, sister & son, but not daughter)
Grateful for 2nd Chance NED time!
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lcook6
Posts: 137
Joined: Mon May 21, 2012 6:45 pm
Facebook Username: lisavangalensewell

Re: very end......

Postby lcook6 » Mon Jul 23, 2012 9:27 pm

Gosh, So sorry Lisa!! I am praying for you both!!
sister dx stage IV rectal cancer with tumor to liver 5cm age 41
dx May 10, 2012
on folfox with avastin and celebrex
July 11, 12 CT Scan tumors in the liver 20% shrinkage
continuing FOLFOX, celebrex
finished radiation/xeloda 11/23/2012 28 treatments
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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: very end......

Postby Bev G » Mon Jul 23, 2012 9:35 pm

Lisa, dear one,

I am away, and don't have my usual comp to type on. I just wanted to say I am so, so sorry to read this news tonight. My heart and my prayers are fully with you and your beloved Kevin.

Much love to you,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
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tammylayne
Posts: 2177
Joined: Fri Jul 16, 2010 9:24 am

Re: very end......

Postby tammylayne » Mon Jul 23, 2012 9:37 pm

I am so sorry to hear this news.

I hope you and Kevin are able to spend lots of quality time together making memories. I hope that his time is pain free, and that you wrap each other in love.

Sending strong postive thoughts your way...
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal

"You never know how strong you are until you have to become your own hero."
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jgall
Posts: 814
Joined: Wed Jan 05, 2011 9:44 pm
Location: New York City

Re: very end......

Postby jgall » Mon Jul 23, 2012 10:17 pm

So very sorry, Lisa. I wish the news were different. :cry:

Julia
DH Chris, 50, Dx Nov '10 Stg 4
cardiac arrest from 5-FU
Iri/Erbi, RFA, liver/colon resection, more Iri/Erbi
Oct14-Feb15 clinical trial
SIRT Apr15-unsuccessful
Stopped treatment May15
Hospice July15
Passed 8/15/15
http://www.caringbridge.org/visit/chrisandjulia
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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: very end......

Postby Kathleen808 » Mon Jul 23, 2012 10:59 pm

Lisa,
What very difficult news you all got today. I am so sorry that they say Kevin does not have any more chemo options. I am also sorry that you have to continue to work. I pray that you can get a break and spend a lot of time with Kevin.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace
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