Dry Eyes - suggestions?

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Ashlee H.
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Dry Eyes - suggestions?

Postby Ashlee H. » Sun Jul 22, 2012 11:09 pm

Tomorrow is another start for chemo treatment. Don't even know what number it is - I lost count after 50. All the chemos make my eyes dry. Drops tend to help, but I know with going back into active treatment my eyes are going to get real dry. The eye doctor gave me ALTEC, but it really doesn't do anything. Genteal drops seem to work the best, but I have to use it a lot. I was just wondering - any of you find anything that worked for the dry chemo eye?
-Ashlee
Stage IV w/liver met dx 7-1-09
KRAS Mutant
Member of the HIPECKERS (2011) and OLYMPHIANS (2012)
2/14 - standard chemo has stopped working
3/14 - Stivarga
LIVE LIFE!

Fede

Re: Dry Eyes - suggestions?

Postby Fede » Sun Jul 22, 2012 11:58 pm

Ashlee H. wrote:Tomorrow is another start for chemo treatment. Don't even know what number it is - I lost count after 50. All the chemos make my eyes dry. Drops tend to help, but I know with going back into active treatment my eyes are going to get real dry. The eye doctor gave me ALTEC, but it really doesn't do anything. Genteal drops seem to work the best, but I have to use it a lot. I was just wondering - any of you find anything that worked for the dry chemo eye?
-Ashlee


Hi, Ashlee

I have the same problem, the doc gave me, oftalmological tears, but I continue with the problem, try to sleep more, use cold water, and of course nervous affect it.

The best for you

Fede

Peteswife
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Re: Dry Eyes - suggestions?

Postby Peteswife » Mon Jul 23, 2012 4:00 pm

Ash, and Fede,
Pete had the same problem. We had the Eye institute specialist examining him, and then he said it is due to damage from chemo and steroids. He prescribed Heteroogous eye serum for Peter. His sister (not necessarily a family member - but healthey blood) donated 500 ml blood, of which they made an eye serum for him which repairs the epithelial cells in the eyes. In three weeks we could see the difference since he started it. He used it 5 times a day at first week, and then 3 times or more. It has a proteine base and not water based, and the effect last longer. You only use a container for a week, as it contains no preservatives, and then you use the next bottle. We got 38 bottles from 500 ml blood from his sister. I would really advice you to go into this option.

All the best, and good health, and all my love
Ilse
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

gep
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Re: Dry Eyes - suggestions?

Postby gep » Mon Jul 23, 2012 8:21 pm

My husband uses over the counter dry eye tears on the recommendation of my eye doctor. He uses them liberally and it helps.
Gloria
caregiver to Eli
dx 8/07 3B
7/09 - liver & celiac lym node
1/10 Liver Res & Lym nodes out
7/10 Back - Liver & other lym nodes
12/12 hit chemo wall
1/12 Clin Trial - MEK & AKT inhibitors
3/12 Trial failed/ spheres 4/12
7/30/13 Eli died.

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CRguy
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Re: Dry Eyes - suggestions?

Postby CRguy » Mon Jul 23, 2012 9:15 pm

Has your ophthalmologist considered increasing tear production as well as adding new "tears".. ???

There are a number of different "tear" formulas and each OphthalmoDoc will have a personal preference... but if it doesn't work...time for a new plan.

Cyclosporin will stimulate new tear production in some patients, used locally / topically into the conjunctival sac ..( but can be immunosuppressive in large doses systemically ).. SO I would ask about this ... ????

Ilse's suggestion concerns the production of actual corneal ulcers / micro-ulcerations on the surface of the eye which can result from "dry eye" (KCS : keratoconjunctivitis sicca ) -> The blood serum contains an anti-collagenase factor, (collagenase is an enzyme which breaks down collagen in the cornea.) By spinning down the blood serum, you can concentrate the anti-collagenase factor and use it as an eye drop !!!!... to stop the progression of corneal ulcers caused by collagenase. It does not ( as far as I know ) actually produce more tears in and of itself... but does help to manage the effects of reduced tear production.
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Jachut
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Re: Dry Eyes - suggestions?

Postby Jachut » Mon Jul 23, 2012 9:53 pm

I periodically suffer from this as I have this weird never heard of condition called map dot fingerprint dystrophy, where my corneas can tear as I open my eyes - they dry out during sleep and stick to my eyelids and I open my eyes and riiiiip. Laser surgery has held it at bay for a few years now.

Artificial tears in liquid form werent enough - I had to use artificial tears ointment, and run a thick, greasy line along my lower eyelid before retiring. So I'd wake with greasy, oily eyes, lol, but the viscous ointment would work well to keep my eyes moist. We have one here called Polyvisc ointment - the polyvisc drops were never as good for me.

disco nap
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Re: Dry Eyes - suggestions?

Postby disco nap » Tue Jul 24, 2012 4:52 am

I had dry eye after eye surgery.

I used a gel-based drop (allergan) and it helped, and an ointment at night.

I also found taking fish oil helped.

You can get your tear ducts closed off, they put very small plugs in them in a mini-procedure that's quick and painless. That keeps whatever tears you do make from draining out. That was my next step but it seems to have resolved itself.
DX July 2 '10 CC Stage IIIC, 11/18 nodes+
Right Hemi July 6 '10
Folfox: Aug 17'10 - Feb 17'11
Mar 2012: Lynch Syndrome MLH1
"Declared well" and been well ever since.
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tammylayne
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Re: Dry Eyes - suggestions?

Postby tammylayne » Tue Jul 24, 2012 7:13 am

Sounds very unpleasant, but as my eyes did the opposite, I have no advice. My eyes teared like cazy, to the point sometimes I couldnt drive.

Good luck Ashlee!!
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'06 Stage 1 CC,
'10 Stage 3 Rectal

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secriswell
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Re: Dry Eyes - suggestions?

Postby secriswell » Tue Jul 24, 2012 3:01 pm

Years ago I got a paper cut in my eye (It actually made the eye doctor flinch when I told her) and periodically my cornea tears if my eyes get too dry. To prevent it I use Muro 128 ointment. It works very well, but it's expensive (around $20 a tube here in the Carolinas) and it's really thick. I put it on at night right at bedtime and it helps a lot. Might be worth a try.
S.
(spouse)
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hemicolectomy Feb 09
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Rad. 10/11
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