Postby Anji » Fri Jul 20, 2012 8:13 am
Wednesday was our youngest child's birthday. He asked for us all to go to lunch together. That's what he wanted as a gift. So, we pulled together and Larry rallied and for the first time in almost two weeks Larry left the house. Levi got his wish! I don't know how Larry did it. He was in pain and unable to eat more than a few bites. But, he did it. Took some creative planning since our house is not wheelchair accessible but we got him down the steps and in the car. Getting him back in the house was interesting to say the least.....
As we were looking at the pictures later, Levi stated that he wanted a BIG copy of the one of him and Larry to hang in his room. I was a bit slow on the uptake and asked why. And my beautiful son said it best.....cause this will be my last birthday with Dad and I want to remember it forever.
Wow. That one caught me off guard. I mean I know it. I Knew it then. But to hear it from my child.... And even in the midst of this beautiful, blessed day, the pain hit. It was excruciating and took my breath away. But I too want to remember that day forever.....
Since then Larry's pain has increased and he had a tough night last night. Calling Hospice this morning to see about tweaking pain meds again. Even as I thank God for the blessing of Wednesday, I'm cursing she cancer and the pain and the progression that I can see.....it's like walking a tight rope. Only when I fall, I'm afraid I may never get up again.
Larry is so thankful and never fails to thank me for anything I do for him. Straightening his bed clothes. Helping him shower. Bringing him a drink. I can always count on hearing him say thank you babe I love you. I dread the day I no longer hear those words. And they make me feel so bad. It's not like I'm doing anything special for him. I love him and want him to be comfortable.....
Guess I don't have a point. Just rambling and checking in. We are here. Holding on, barely.
Anji
Anji
Wife to Larry, Stage IV Colon Cancer, with mets to liver
Diagnosed 1/10 at age 44
Folfiri + Avastin 2/10 to 7/10
Liver resection and ablation 9/10
Numerous mets to lung and liver 1/11
Folfox + Avastin 2/11 to 6/11
Folfiri + Vectibix 6/11 to ???