Bill5107, Where Are You?

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
fritts44
Posts: 534
Joined: Thu Dec 30, 2010 3:04 pm
Facebook Username: Lee Fritts

Bill5107, Where Are You?

Postby fritts44 » Wed Jul 18, 2012 8:29 pm

Well, you're kinda like Car 57...if Car 57 was constantly backfiring and currently on a scratch & dent special :)

I just wanted to let you know that I'm thinking of you and hope you're feeling ok. I'm assuming you're not posting because you feel too lousy, and that makes me upset! I hope you will feel good enough soon to come on the board so that I have some of your funny stories to make me laugh -- because, you see, it's all about ME and what I need!

OK, I'll stop joking. I really do hope you feel better and we can enjoy your company soon!
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED

User avatar
juliej
Posts: 3106
Joined: Thu Aug 05, 2010 12:59 pm

Re: Bill5107, Where Are You?

Postby juliej » Wed Jul 18, 2012 8:31 pm

Sending love to you, Bill!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Lois7718
Posts: 64
Joined: Sat Jul 24, 2010 10:10 pm
Facebook Username: Lois Rivet

Re: Bill5107, Where Are You?

Postby Lois7718 » Wed Jul 18, 2012 9:54 pm

Thanks for checking in on him guys. At the moment he's crashed on the couch. He seems to be recovering some from the radiation (I'm not pureeing everything anymore). On Friday he was feeling pretty good and even took our son out for lunch. Unfortunately since then he's been suffering from dizzy spells (his BP was very low on Monday 90/60). His blood platelets were too low on Monday to resume chemo. Current plan is to try again next week. Last night he had a really bad headache that came on while he was standing to take his meds. He actually made me get up because if it got much worse he was going to have me take him to ER. I'm hoping that stopping his BP and lasics (sp?) meds will help get the BP back to normal ranges and the head aches are just a side effect of his body adjusting to the changed meds. :?
Wife of Bill5107
DX 7/10 Stage III

User avatar
fritts44
Posts: 534
Joined: Thu Dec 30, 2010 3:04 pm
Facebook Username: Lee Fritts

Re: Bill5107, Where Are You?

Postby fritts44 » Wed Jul 18, 2012 10:52 pm

Thank you for the update, Lois. I hate he feels bad. Please give him our best & let him know we're thinking of him.

Lee F
Lee F
RC dx 12/16/10
resection & perm colo 12/17/10
8 rounds chemo, 28 rounds radiation
finished 8/26/2011
clean scope 9/20/2011
clean CT scan 12/26/2011
NED

Peteswife
Posts: 218
Joined: Sat Jun 27, 2009 2:45 pm

Re: Bill5107, Where Are You?

Postby Peteswife » Thu Jul 19, 2012 1:48 am

Thanks for update Lois! You are a special wife and caregiver! He always brag about you and his love for you!
Ilse
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Bill5107, Where Are You?

Postby NWgirl » Thu Jul 19, 2012 1:55 am

Thank you for taking the time to update us Lois. Please let him know that I'm thinking of him. Hugs to you both.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: Bill5107, Where Are You?

Postby Mona » Thu Jul 19, 2012 5:05 am

Thank Louis,
Bill please know that I have been thinking about you. You are in my prayers.
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

Deirdre
Posts: 613
Joined: Mon Sep 06, 2010 7:10 am
Location: Ireland

Re: Bill5107, Where Are You?

Postby Deirdre » Thu Jul 19, 2012 5:25 pm

Hi Lois

Thx for update. Tell Bill I was thinking about him the whole way from over here. There was an international gathering of girl guides (yes I know, v different to scouts) but I was reading about it & looking at the leaders and was thinking of Bill.

Take care
D
Daughter of loving dad, dx Stage IIIC Mar 10
Resect Apr 10. 1 lymph nodes positive
Heart history has ruled out treatments
NED to date!

User avatar
live2jett
Posts: 762
Joined: Wed Mar 11, 2009 4:36 pm
Facebook Username: debbie jett
Location: San Diego, Ca. www.live2jett.com
Contact:

Re: Bill5107, Where Are You?

Postby live2jett » Thu Jul 19, 2012 6:16 pm

Hi Lois,
Thank you for giving us the update on Bill. Please tell him we are always thinking of him. You are an amazing wife and mom (as per Bill) :)
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

User avatar
Bill5107
Posts: 1376
Joined: Sun Jul 11, 2010 5:50 pm

Re: Bill5107, Where Are You?

Postby Bill5107 » Fri Jul 20, 2012 10:57 am

fritts44 wrote:Well, you're kinda like Car 57...if Car 57 was constantly backfiring and currently on a scratch & dent special :)

I just wanted to let you know that I'm thinking of you and hope you're feeling ok. I'm assuming you're not posting because you feel too lousy, and that makes me upset! I hope you will feel good enough soon to come on the board so that I have some of your funny stories to make me laugh -- because, you see, it's all about ME and what I need!

OK, I'll stop joking. I really do hope you feel better and we can enjoy your company soon!


Hmmm...I would think you'd mean Car 54 where are you? https://en.wikipedia.org/wiki/Car_54,_Where_Are_You%3F

Image


Yeah, I've been so wiped out I sometimes don't get far online other than a little here and there on FB and email

I do have lots of stories I thought I would write in my FB Notes, but honestly it's been such a miserable 5 weeks with some issue just dominating my energy and strength every day of every week, that I just have to yield. Ok. I don't. So I try to do what I can to get ready to work, for example, then my BP decides to go all mushy, to the point the nurse could not get a distinct diastalic vs systolic pressure on me. pftyftft!

NOthing I can do will let me function through that any more or less than my physiology will allow.

So I'm still in a holding pattern. I do appreciate the kind thoughts. I know I am mindful not to just keep coming on here and say "Hey guys! Bill5107 show is back for a minute - Here's how I am this week: Sucknitude level remains in the high 80% X-P" There really isn't much support-wise in either direction that can come from it other than the wonderful well-wishes which I still manage to get from folks here and on FB and my scouters. I don't really have energy to write a lot more anyway, though I do pick my support folks to work with. So don't worry about things from that side either. A lot of support does just happen in the background, that's one of the fringe benefits of being in such diverse groups as CC here.

Well. . . Time for a rest, my head is pumping up with pressure again, time to locate that steam valve again. X=P
2010-07-02 Dx rectal cancer (Stage 3)
'-07-21 Chemoradiation
'-10-13 APR surgery, 10/18 nodes still active
'-11-22 12x2wk rnds FOLFOX
2011-12-07 Mets X-P
Don't retreat, reload!

Laurettas
Posts: 1606
Joined: Tue Jun 21, 2011 9:49 pm

Re: Bill5107, Where Are You?

Postby Laurettas » Fri Jul 20, 2012 12:15 pm

So good to hear from you, Bill. We always think about you and hope your days are filled with peace and the love of others surrounding you. Sounds like that is the case. Take care, dear friend, and God bless you and your family during these days.
DH 58 4/11 st 4 SRC CC
Lymph, peri, lung
4/11 colon res
5-10/11 FLFX, Av, FLFRI, Erb
11/11 5FU Erb
1/12 PET 2.4 Max act.
1/12 Erb
5/12 CT ext. new mets
5/12 Xlri
7/12 bad CT
8/12 5FU solo
8/12 brain met
9/12 stop tx
11/4/12 finished race,at peace

rosa01
Posts: 564
Joined: Sat May 19, 2012 1:24 pm
Location: California

Re: Bill5107, Where Are You?

Postby rosa01 » Fri Jul 20, 2012 12:55 pm

Hi Lois and Bill

It was great to hear ftom both of you. Please take care of each other. All of us miss hearing from you but we understand it can be hard to do sometimes. Lots of hugs and prayers coming to both of you.


SHEILAu
DX 12/11 DH Stg 4 cc age 60
12/20/1 1 lungs mets
2/1/12 started chemo oxe/ava/5-fu
3/12 liver mete fnd
5/12 new chemo irt/Eberix
8/12 lung surg
10/12 irt/Eberix
11/22- 02/2013 NED
02/13 nw right lung met
06/13 2 New liver lesion
06/13 chemo ?

justin case
Posts: 4265
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Bill5107, Where Are You?

Postby justin case » Fri Jul 20, 2012 1:23 pm

Keep reloading buddy!
Regards,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

RixInPhx
Posts: 1904
Joined: Fri Oct 08, 2010 11:53 pm
Location: Phoenix

Re: Bill5107, Where Are You?

Postby RixInPhx » Fri Jul 20, 2012 3:22 pm

Best wishes on bringing the conditions under effective treatment.

Do NOT stop the Lasix (furosemide) diuretic as an attempt to raise BP, without express concurrence of the prescribing doc.
True, it is used for patients with high BP, but that is to control the fluid build-up in the heart sac (pericardem) rather than to lower BP.

HTH, Rick
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

User avatar
Bill5107
Posts: 1376
Joined: Sun Jul 11, 2010 5:50 pm

Re: Bill5107, Where Are You?

Postby Bill5107 » Fri Jul 20, 2012 7:27 pm

RixInPhx wrote:Best wishes on bringing the conditions under effective treatment.

Do NOT stop the Lasix (furosemide) diuretic as an attempt to raise BP, without express concurrence of the prescribing doc.
True, it is used for patients with high BP, but that is to control the fluid build-up in the heart sac (pericardem) rather than to lower BP.

HTH, Rick


Ah yes...All by way of my Drs. lol! Actually it was a crap shoot which Dr was going to prescribe my Lasix. No-one was interested in doing it even though each thought it was a good idea.

The only reason I was on it was to perhaps start to address the annoying but I'm told harmless swelling in my groin and leg. I can finally almost pee "normal". I still can't say I'd try to use a urinal, but it's much cleaner and easier to toilet! I can't say it all makes 100% sense to me either, but it was a late comer to the party and it did mess with my electrolytes more than perhaps we acknowledged. . .

Unfortunately I was also having a very difficul time eating and drinking enough of the right foods at the same time, so I'm thinking the Lasix may well have been more complicating than helpful, and being in as much regular distress as I've been in, well, all I can do is keep the Drs informed of how I'm doing and work with them.



Today has been pretty even keel...ups and downs, nothing horrendous, but definitely nasty enough to keep me on my backside.

On the plus side, I'm eating my first whole appple in over a month!

how's that for living large!

:mrgreen:
2010-07-02 Dx rectal cancer (Stage 3)
'-07-21 Chemoradiation
'-10-13 APR surgery, 10/18 nodes still active
'-11-22 12x2wk rnds FOLFOX
2011-12-07 Mets X-P
Don't retreat, reload!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 16 guests